SPECIAL EARLY BIRD RATE FOR THE RENEW! RETREAT
DETAILS BELOW
|
|
|
|
|
Are you a spouse, family member, friend or care partner of a person with Parkinson's disease or another movement disorder? This retreat is for YOU!
|
|
|
HELP US SERVE YOU BETTER!
Currently you're receiving every email we send out, regardless of where you live. We now have the capacity to sort our mailings by address/zipcode, but we don't have that information yet.
Please partner with us to serve you better by updating your subscriber profile. Our goal is to have all subscribers updated by September.
Why does it matter?
- Address and zip code information assists us with program planning.
- Many grants require that we capture where the people we serve live. Adding this information is essential for program sustainability.
- The ability to map service needs assists us with resource allocation, outreach and educational activities.
We do not share or sell information. This information is used exclusively to help us serve you better! Simply click here to update your profile:
Update Profile
|
|
|
|
Impaired Decision Making & Motor Symptoms
New Research Indicates Impaired Decision Making May Be Linked To Motor Issues
Judy Talley, MA Gerontology
Program Director, PMDAlliance
People impacted by Parkinson's or other movement disorders often comment that cognitive changes present their own set of challenges. These changes can have a disproportionate impact on quality of life for everyone who must cope with them. That's why we discuss various non-motor symptoms, including cognitive changes, at all of our conferences and in our newsletters. If there's a particular topic you'd like to hear more about, please write us at info@PMDAlliance.org or call us at 800.256-0966. We'll work with our physician partners to generate an article addressing your interest.
This month, UCLA announced results from research tied to cognitive changes. UCLA researchers discovered that people with Parkinson’s disease have a form of impaired decision-making that may be a major contributor to the movement problems that characterize the disease. The finding suggests that the neurological factors underlying Parkinson’s, which currently affect nearly 1 million people in the United States, may be more complex than commonly believed. The study also could pave the way for strategies to detect Parkinson’s earlier in its course.
|
|
|
MOVE IT! Join a Parkinson's Based Exercise Club!
PMDAlliance's Move It!™exercise clubs provide group-based exercise for people with PD who ,in underserved communities, may be homebound, or are part-time residents. Club members will access a Parkinson's based exercise class three times per week and also have the opportunity to participate in a facilitated discussion group after class once per week.
Unlike exercising to a DVD, which lacks community engagement, socialization or feedback and relies entirely on self-motivation, our Move It!™clubs offer active, real-time exercise using internet technology. People with PD interact with each other, develop a sense of community and participate in an exercise program that is specific to their needs.
|
|
|
SPECIAL FREE OPPORTUNITY FOR PD SCREENING
Dr. David Shprecher & Dr. MJ Liu
 As with other diseases, Parkinson’s disease (PD) early detection and management has a positive impact on quality of life and may prolong survival. PD is the second most common neurodegenerative disorders. It is defined as a progressive neurologic condition that can cause motor and non-motor symptoms, including tremor, sleep disorders, rigidity, balance issues, swallowing problems, constipation, loss of smell and more.
 Banner Research Institute is offering free screenings this month for people who have not been diagnosed with PD and may have risk factors for the disease. The free PD screening will include a brief questionnaire and observation and brief consultation by a board certified movement disorder neurologist.
We are still learning what the risk factors are for PD. What we do know is that these factors contribute to being at risk for PD:
Advancing age - Although there is the occasional case of the disease developing in a young adult, it generally manifests itself in the later years of life. The risk continues to increase with advancing age.
Gender - Males are more likely to get Parkinson's than females. However, due to declining estrogen levels, post-menopausal women who do not use hormone replacement therapy are at greater risk. as are those who have had hysterectomies.
Family history - Having one or more close relatives with the disease slightly increases the likelihood that you will get it.
Environmental Exposure - Exposure to an environmental toxin such as a pesticide or herbicide puts you at greater risk (farm work). Some of these toxins inhibit dopamine production and promote free radical damage.
Head Trauma - Recent research points to a link between damage to the head, neck, or upper cervical spine and Parkinson's.
FREE Parkinson’s disease screening will take place on July 29th,2016 from 1 – 4 PM at Banner Sun Health Research Institute. 10515 W. Santa Fe Drive. Sun City, AZ 85351. You must register and secure an appointment. To secure an appointment, call 623-832-3248
|
|
|
|
UPCOMING CONFERENCES
LEARN. LIVE. CONNECT.™
RENEW! RETREAT™
To register for any conference, please send an email to info@PMDAlliance.org or
call 800.256.0966.
Be sure to indicate which conference(s) you will be attending and date.
July 23 - Learn. Live. Connect. Parkinson's Conference. Show Low/Pinetop
August 19 - Learn. Live. Connect. Parkinson's Conference. Flagstaff
August 20 - Live It Up! Community Education & Celebration. Prescott
September 17-18 - Renew! Retreat for Care Partners. Westward Look, Tucson (also includes daytime activities and programming for people with PD)
Every conference includes a presentation by doctors who are movement disorder specialists or medical providers. Some of the movement disorder specialists who partner with us for the conferences are Dr. Maria Christina Osipina, Dr. Virgilio Evidente, Dr. Padma Mahant, Dr. Johan Semanta, Dr. David Shprecher, Dr. Charles Alder, Dr. Katheryn Bradley, Dr. Scott Sherman, Dr. Tanya Lin, Dr. Cynthia Reed, Dr. Ming Jai Liu, and Dr. Shyamal Mehta.
Visit our website and friend us on Facebook to learn about conferences near you. Some events require registration; many do not. Tell your friends and family to join our e-news and invite them to attend with you.
|
|
|
|
|
RENEW RETREAT
Nearly everyone with PD has or will have a care partner. Care partners need support and care too! Our
signature Renew!™ Retreat, September 17-18th at the Westward Look Resort & Spa in Tucson, AZ, promises to honor, support and invigorate
care partners,
sending everyone home more relaxed, less stressed and feeling good. To learn more visit our website!
|
|
|
|
LIVING WELL WITH PD
PMDAlliance's mantra is you first, then the disease. Knowing that you are more than your disease, we host monthly Get Out! casual dinners in Phoenix, Tucson and Prescott. These events include a time to connect with new and old friends. Get Out! events are about more than fun; they're based in science that demonstrates how important socializing is for aging brains.
|
|
|
|
|
CARE PARTNER CORNER
Parkinson's and other movement disorders are a team sport - offering equal opportunity to experience strain and fatigue. As a part of our program development , we seek your input to design programs that not only meet your needs but also enhance your ability to live life more fully.
Please take a moment to
click here
to complete the survey.
|
|
|
|
|
WE ARE GRATEFUL FOR OUR GENEROUS DONORS.
WITH YOUR HELP WE PROVIDE SERVICES TO THOUSANDS
OF PEOPLE WITH PD & THEIR CARE PARTNERS.
|
|
Mary Ganapol
Bill & Anne Hanne
Lynn Jabs
Helmy Mahrous
Gayle Palma
Harlan & Betty Ronksley
Robert & Wanda Stauffacher
|
In Memory of Lee Blake
Erika Geobel
|
|
|
Want to attend an upcoming event? View our calendar here.
|
|
|
SAVE THE DATE
Additional information related to
details, logistics
and dates of events beyond September are available
on the calendar at www.PMDAlliance.org
MONTHLY GET OUT! DINNERS
GET OUT! West Phoenix
2nd Mondays, 4-6 PM
GET OUT! Prescott
4th Monday, 4-6 PM
NEW DATES & LOCATIONS
GET OUT! Tucson
1st Wednesday, 4-6 PM
GET OUT! East Phoenix
3rd Wednesday, 4-6 PM
CONFERENCES & EVENTS
July 23rd
Learn. Live. Connect. Parkinson Conference
Show Low, AZ
August 19th
Learn. Live. Connect. Parkinson Conference
Flagstaff, AZ
August 20th
Live It Up! Community Educaton & Celebration
Prescott, AZ
September 17-18
Renew! Care Partner Retreat
A special retreat for care partners,
including a separate activity-based program
held concurrently for people with PD
Tucson, AZ - Westward Look Resort
|
|
|
| |
PMDAlliance serves as a hub of information about activities occurring in your community. We offer direct support services, programs and events that enhance the daily lives of people with Parkinson disease and other movement disorders and their care partners. Our services assist others in building local community programs and offer opportunities to socialize and have fun!
PMDAlliance relies on the generosity of its program sponsors and individual donors to provide its many events and programs to the thousands of people across Arizona who benefit from them.
We direct 100% of donated funds to services for people in Arizona. If you like what we're doing, please consider a donation today. |
|
|
|
|
|
|
|
