Brain Tumour Alliance Australia E-news
Dear friend of the brain tumour patient and caregiver support community
BTAA is the umbrella organisation providing a strong national consumer voice for brain tumour patients, carers and their families. BTAA’s focus is on support and advocacy.
This issue encourages our subscribers to mark the Australian Brain Cancer Action Week – Ideas, Action, and Hope.
In this issue:
Support is Available
Diary Dates 2016
Brain Cancer Action Week 1-7 May 2016
Cooperative Trials Group for Neuro-Oncology (COGNO) 11 – 14 September
BTAA National Summit
International Brain Tumour Awareness Week | 22 – 29 October 2016
Cancer Australia Supporting People with Cancer Grant
Supporting BTAA
Support is Available
To talk with experienced caregivers, call BTAA on the Freecall number: 1800 857 221, and see the support groups available in your local area at www.btaa.org.au – look for support organisations.
Cancer Council Support
Cancer Connect telephone (13 11 20)
Brain Tumour Patients Telephone Support Group Freecall 1300 755 632 Monday - Friday 9 am - 5 pm or email tsg@nswcc.org.au
Cancer Connections (online) www.cancerconnections.com.au
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Diary Dates 2016
- Brain Cancer Action Week, 1 – 7 May. Various events, forums on 6 May in Sydney and Melbourne. See BTAA events page.
- Our Ambassador Mel Johnson Goes Gray in May for BTAA and for Brainstorm RPA, 28 May, Tickets from the Bathurst Panthers Club.
- ISPNO (International Symposium on Paediatric Neuro-Oncology) 12-15 June in Liverpool, UK.
- ASCO (American Society of Clinical Oncology) 2-7 July in Chicago, Illinois.
- SNO (Society for Neuro-Oncology) 1st Meningioma Conference, 17-18 June in Toronto, Canada. SNO is jointly organized by the Society for Neuro-Oncology and the Consortium on Meningioma in Toronto.
- COGNO, 11 – 15 September, Sydney. BTAA will be supporting the Mary Lovely’s visit to Australia for COGNO 2016 and she will visit New Zealand on the return journey to San Francisco. Read more about COGNO including Mary and the other keynote speakers here.
- Curefest Australia 25 September, Sydney.
- International Brain Tumour Awareness Week, 22-29 October 2016
- SNO 2016, 17-20 November in Phoenix, Arizona, USA.
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Brain Cancer Action Week 1-7 May
The week provides all of us with an opportunity to awareness of the impact of the disease on our communities and the need for more research including research on much needed emerging therapies. It is also a time to focus on the support needs and existing services available for those living with brain tumours, their family, and friends.
- Brisbane, 1 May, Footprints Walk fundraiser organised by Cancer Council Queensland. See more here.
- Canberra, 1 May, Fashion Parade fundraiser for Sydney Children's run by Dainere's Rainbow.
- Melbourne, 2- 6 May, Robert Connor Dawes Foundation Brainweek.
- Brisbane, 5 May, Free forum run by Cancer Council Queensland. See more here.
- See here Sydney 6 May, Free Sydney Brain Tumour Support and Education Forum run by the NSW Oncology Group - Neuro-Oncology. New venue: Wesley Conference Centre, 220 Pitt Street. Register program here.
- Register here Melbourne, 6 May, Free Melbourne Brain Cancer Community Awareness and Information Forum. Cancer Council Victoria, Level 3, 615 St Kilda Road. Program available here.
- Sydney, 7 May, Diamonds are Forever Gala Ball fund raiser for research run by the Cure Brain Cancer Foundation.
Or simply take the time to read and share our Brain Cancer Action Week newsletter here.
Consider Fundraising for BTAA, or supporting someone who is here.
BTAA will have copies of the QUT resource “It’s OK to Ask” at the forum as well as a range of other resources on display. Download this resource – second dot point on the list here or email us and ask Assistant Secretary Philip to send you some copies to btaa@shout.org.au. We have printed plenty and want to get them out to health treatment centres across Australia.
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Cooperative Trials Group for Neuro-Oncology (COGNO) 11 – 14 September
COGNO is hosting the 13th Asian Society for Neuro-Oncology (ASNO) Meeting / 9th COGNO Annual Scientific Meeting in Sydney, Australia. from Sunday 11th September - Wednesday 14th September 2016.
There will be a half day patient/allied health professional forum.
Further details will be available on the official website www.asnocogno2016.org.au.
BTAA provides support for allied health professionals and researchers to attend COGNO and other events. Email btaa@shout.org.au for more information.
BTAA will be supporting US based Associate Adjunct Professor Mary Lovely Ph.D., RN, CNR to attend COGNO and then to travel to New Zealand on her way home. Mary is the First Author for Clinical Nursing Practice Guidelines for Adult Brain Tumor Patients through the American Association of Neuroscience Nurses.
Read more about the benefits of becoming a member of COGNO here. Consumer members are made welcome.
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BTAA National Summit
BTAA will again be holding our AGM and our 4th National Summit in September in conjunction with COGNO. The provisional date and venue on Wednesday 14 September 2016, Sydney at the Cancer Council NSW conference room. The Summit is by invitation only and brings together who work with and for brain tumour patients and their families.
The focus for the Summit will be our two major resource development projects for 2016: the Cancer Australia grant to develop a range of resources including in a range of languages (see more below) and a project on care in the end stages and grief support.
Contact BTAA on btaa@shout.org.au for more information on our National Summit.
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International Brain Tumour Awareness Week | 22 – 29 October 2016
The dates for the 2016 International Brain Tumour Awareness Week led by the International Brain Tumour Alliance (IBTA) are 22 to 29 October 2016. See how you can get involved here.
Perth-based Committee Member Diana Andrew is coordinating her second brain tumour community lunch hosted by Professor Anna Nowak during IBTA week.
There is a great summary of events held around the world on the IBTA website, including our Australian Summit. See here.
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Cancer Australia Supporting People with Cancer Grant
BTAA has partnered with Cancer Australia to develop a range of information resources to help brain tumour patients improve the health and quality of life outcomes for people from culturally linguistically and diverse communities.
During its first year, the project will identify and commence translation of identified resources suitable for at least five major culturally and linguistically diverse groups in Arabic, Greek, Italian, Simplified Chinese, Vietnamese and Easy English.
In its second year and third years, the project will extend the range of languages to five others identified through consumer and health professional consultation.
The project will also develop a suite of video patient/family/carer stories in other languages.
The project is led by BTAA Secretary, Tricia Berman. Please contact Tricia at btaa@shout.org.au if you would like to take part in consultative meetings to identify the best resources for brain cancer patients, their families, and caregivers.
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Supporting BTAA
BTAA is run by volunteers and we need your help to support you. See how you can support us here.
To make a donation see the options here.
If you are thinking of running in one of the major runs this year please consider running for BTAA. Find us on the Everyday Hero Channel. City to Surf race registration opens on April 20, 2016. $25 enables us to provide a pack of information to a newly diagnosed adult and their family. $75 enables us to provide a paediatric pack, including a small gift for the child and any siblings.
BTAA will be represented at the three free forums in Brisbane, Sydney, and Melbourne and look forward to meeting many of you there.
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Useful Links
See a range of useful links https://www.btaa.org.au/page/29/usefullinks including:
Brain Tumour Australia Information www.btai.com.au
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Thank you for reading.
Editor: Mark Dalliston
Assistant Editor: Susan Pitt
Brain Tumour Alliance Australia
btaa.org.au
BTAA on social media
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Twitter: @BrainTumourAA
Youtube: Search 'BTAA' for various videos
DISCLAIMER*: The material provided in this e-newsletter and on our website is general in nature. It is made available on the understanding that BTAA is not engaged in rendering professional or medical advice. Before relying on the material users should carefully evaluate its currency, completeness, and relevance for their purposes, and should always obtain appropriate medical advice relevant to their particular circumstances.
Note: BTAA welcomes feedback on the content and format of these eNews services.
Please contact btaa@shout.org.au.
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