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65kms 65 Roses Challenge this Weekend!
Good luck to Hunter Jackson who's running an incredible 65kms from Two Rocks to Cottesloe this weekend, raising money for his sister with CF and others like her.
He has raised nearly $8,000, what and awesome achievement!
Good luck for this weekend Hunter! |
Help Complete Our Wall of Roses
14th-25th September
The Deloitte Spring Rose Art Show and Exhibition is coming soon and we are once-again inviting CFWA members to have their work displayed alongside nationally renowned artists by painting a rose on a canvas we provide.
Both children and adults are welcome to take part. If you’d like to contribute, please contact Shelley at events@cysticfibroiswa.org or 08 9346 7339. |
Telethon Kids Institute Seeks Consumer Representatives
Expressions of interest are invited for both the Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA and our Scientific Management Committee at the Telethon Kids Institute (TKI).
For more info visit the AREST CF website here. |
Changing of the Guard at US CF Foundation
Earlier this week Robert J. Beall, Ph.D., announced he will step down as president and chief executive officer of the Cystic Fibrosis Foundation in the USA, effective 31 December 2015.
Preston W. Campbell III, M.D., currently the Foundation’s executive vice president for medical affairs, will succeed Dr. Beall as president and CEO.
Click here for more information. |
CF Adult Network Page
CFWA are offering a private, closed group intended for the specific purposes of sharing information, thoughts, issues and general support for adult people with CF and people supportive of adult people with CF e.g. spouses.
This group is by invitation only and will not be viewable by people outside of the group. If you would like more information please contact Kathryn at servicesmanager@cysticfibrosiswa.org or 9346 7348 |
Bunbury Outreach
Tuesday 28th July
CFWA members are invited to join us for dinner and a catch-up in Bunbury. 
We are available for individual consultation, education sessions (school or hospital) during the day, or just a chat over dinner.
To RSVP or to request a meeting please contact Kathryn at servicesmanager@cysticfibrosiswa.org or 08 9346 7348 |
Coffee Morning Mandurah
Friday 31st July, 10am-12pm
Come along and meet CFWA staff and other members who live close to your area, and enjoy a coffee and cake (our shout).
Where: Dome Café, 73 Mandurah Terrace, Mandurah
RSVP: to Gillian on recreation@cysticfibrosiswa.org or 9346 7338 at least 1 day prior. |
Promising Research out of Adelaide
Results of a carefully-conducted clinical trial of a Cystic Fibrosis (CF) airway gene therapy performed in the UK have shown that when a healthy copy of the defective CF gene is transferred into diseased patient airways, lung function can be improved by an average of 3.7%.
This research is being used as the basis for a new trial being run in Adelaide. Click here for a full media release. |
Swan River Run
Only nine days to go until the Swan River Run!
So far the Swan River Run participants have raised $2,019, which is a great effort! Remember to share your fundraising page with friends and family to get some last minute donations to your page, and good luck on the run! |
Merchandise Kits in Stock
If you would like to place a merchandise kit in your office or business or know someone else who would, then please let us know.
The individual items sell for $5 each and this year the kits feature hand sanitizers, mints and ear buds.
If you can place one or more of the kits please contact Shelley events@cysticfibrosiswa.org or 9346 7339. |
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