Comprehensive Care Conference
Saturday, November 18, 2017
Sheraton Toronto Airport Hotel and Conference Centre
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When it comes to rare blood disorders, finding the balance between optimal patient care and efficient stewardship of healthcare dollars is a challenge felt by doctors, hospital administrators, and government officials alike.
Care models exist that offer cost-effective benefits to patients, hospitals, and governments.
This conference will present a growing body of evidence from both domestic and international clinics where innovative strategies are:
- improving patient and caregiver experiences and outcomes
- improving safety through tracking of product use
- increasing cost effectiveness
- resulting in shorter and fewer hospital stays
- reducing product waste
Hereditary Angioedema (HAE) and Primary Immunodeficiency (PID) will be used as case studies, and rare bleeding disorder care models will be explored, along with workshop time devoted to determining best applications for NRBDO patient groups.
This conference is by invitation only, and we know that you will have much to contribute in this opportunity to reimagine rare blood disorder patient care together, allowing us all to move forward incorporating and scaling up best practices to benefit patients, caregivers, hospitals, and ministries alike.
Please join us. Register today.
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Conference Session Topics will include:
- Best practices and innovative models of care delivery (both Canadian and international)
- National patient registries
- Collaboration strategies
- Systems to ensure access to care and therapies, including home care and transition from pediatric to adult care.
Confirmed speakers include:
- Dr. Marco Cicardi, speaking on HAE care in Italy
- Dr. Marc Reidl, speaking on HAE care in the USA
- Dr. Menaka Pai, speaking on the support for integrated care models
- Dr. Stephen Betschel, speaking on HAE progress in care in Canada
- Dr. Bruce Ritchie, speaking on the John Akabutu Comprehensive Care Centre in Edmonton
- Dr. Alfonso Iorio, speaking on registries
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Who We Are
The NRBDO is a pan-Canadian coalition of patient organizations representing people with rare blood disorders and/or people with a chronic condition who are recipients of blood or blood products or their alternatives. Together we work to educate and advocate for Canadians affected by rare blood disorders.
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