Official Video

The video highlights the struggle that rare disease patient's face, often being unable to find answers and medical solutions they need, yet it also emphasises the importance of research and the possibilities that it can bring.

Rare Disease Day 2017

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

A Message From CAP

Rare Disease Day is always held on the last day of February. Although the mission is to raise awareness of rare disease and the battles that patients and families face, there is also a theme. This year’s theme is research. It goes without saying that research is needed to find cures and to develop treatments that will help patients in the meantime...

Social Media

Create your own profile pic here on Global Genes.

RareDiseaseDay.org has awesome images available for social media, posters, email, etc.

Here's a generic profile pic that was done on Twibbon last year.

Join the Rare Disease Day Thunderclap!

Wake Up to Rare Disease Day in Ontario

Date: February 28, 2017, 8:00 - 9:30 am
Location: Queens Park Legislative Building, Dining Room, Toronto, ON

Rare Disease Day 2017 Conference

Date: March 30 – 31, 2017
Location: Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC

Pledge Your Distance

This International Rare Disease Day, Tuesday, February 28, join Sanofi Genzyme in raising awareness and pledge to run or walk in support of the rare disease community.

About Pompe

Pompe Disease is a neuromuscular disorder that causes muscle weakness in persons of any age. It affects everyone differently but, in general, causes progressive muscle weakness, especially of the proximal muscles. This is why the patient's breathing is often affected. Patients that are affected as infants can also have organ involvement. Early diagnosis is critical.

About the Canadian Association of Pompe

The Canadian Association of Pompe was established to help persons in Canada, and elsewhere, become familiar with Pompe disease, and to support persons with Pompe disease.

...www.pompecanada.com