PHACE FAMILIES - WE NEED YOU NOW!

What is the cause of PHACE?

With the support of just 25 more families we might find out....

The National Institute of Health is sponsoring a grant for whole genome sequencing that may just provide the answer we've all been seeking. Currently we have 75 family trios (child, mother, & father) enrolled; however, we need 25 more to qualify for the grant. The deadline is quickly approaching and is due by February 28th.  If your family is interested in participating in this ground breaking research, we urge you to enroll now.

If you joined the registry prior to 2010 or are unsure if your family is registered, please contact Angela Beltrame (anbeltrame@mcw.edu  414-955-2847) or Katherine Mueller (kamueller@mcw.edu 414 -955-2846).

Haven't joined the registry? Now is the perfect time to do so. When you join the registry you not only help join a community of researchers, doctors and families working together to find a cause for PHACE, but you will be helping find better treatments options and raise awareness. 
Your information needs to be updated to be included in the research.

Please help us find the cause.

WE NEED YOU!

Thank you,