Copy
Lymphedema and lymphatic disease
education, research, and advocacy.
View this email in your browser.

Lymphedema & Lymphatic Disease Matters
News from LE&RN 02.24.17

Research and insurance highlighted in New York State

Led by lymphedema and lymphatic disease advocates NY Assemblymember Linda B. Rosenthal and NY Senator Martin J. Golden, two important pieces of legislation have been introduced in the New York State legislature.

The Lymphatic & Lymphedema Research bill (A.432), which creates a lymphedema and lymphatic diseases research grants program, was reintroduced. The Lymphedema Treatment Insurance Bill (A.2271), which requires health insurance policies and contracts to provide coverage for lymphedema, was introduced for the first time.

Above photo credit of NY State Capital, Albany: WNET, NY

 

World Lymphedema Day campaign garners support

The online petition Designate "Lymphedema: Awareness & Cures" as the 2018 World Health Day campaign for the World Health Organization (WHO) now has nearly 2,500 signatures. Please continue to sign and share widely. A press release regarding this campaign is available here.

 

LE&RN Spokesperson Kathy Bates to be honored by Research!America

Academy Award-winning actress Kathy Bates will receive Research!America’s Isadore Rosenfeld Award for Impact on Public Opinion for raising the visibility of lymphedema and lymphatic diseases and advocating tirelessly on behalf of the patient community.

The award will be presented on March 15 in Washington, DC. Other awardees this year include former Vice President Joe Biden and Senator Lamar Alexander (R-TN).

For more information about the awards and this year's honorees, visit Research!America.

   

LE&RN's Virtual Expo enters 2nd year -- now with more presentations and a new look

LE&RN recently launched a new Virtual Expo, with a redesign and brand new presentations.

The Expo was created two years ago in response to comments we continually heard from patients and therapists about needing a way to connect with the companies and professionals who specialize in lymphatic and venous diseases, such as lymphedema and lipedema. Attending conference and exhibit halls just wasn't a good option for many, so we introduced the Virtual Expo.

Visit today and let the Expo keep you up to date on products and services, and give you tips from experts to improve quality of life.
 

Meet Stacey Sing, LE&RN/Lymph Notes Lymphedema Therapist Scholarship Winner

In this week's blog, Stacey Sing, a LE&RN/Lymph Notes Lymphedema Therapist Scholarship winner, writes about why she chose therapy as a career path, why she is particularly interested in lymphedema therapy, and what winning the LE&RN/Lymph Notes scholarship will mean to her and to her patients.

The LE&RN/Lymph Notes Lymphedema Scholarship is only possible because of LE&RN Supporting Members and Partners.

 

Lymphatic Forum 2017

Registration for researchers and medical professionals is open for the first Lymphatic Forum: Exploring the Lymphatic Continuum, June 8-10, in Chicago at Northwestern University. LE&RN is a proud sponsor of the Lymphatic Forum and pleased to provide LE&RN Supporting Members a $200 discount on registration.

LE&RN is offering Travel and Poster Awards in honor of Colette McDowell. These awards are for young investigators who are LE&RN Supporting Members (PhD students, medical students and postdocs). Travel awards are to defray registration and travel costs associated with attending the Forum. Twenty $500 awards will be given. In addition, four Best Poster Presentation awards (one $1,000 US currency and three $500 US currency) will be given to the top posters presented.

 

Colette McDowell was born with a rare lung disease called pulmonary lymphangiectasia, where lymph fluid accumulates in her lungs, abdomen and skin. Her family and friends are funding the LE&RN Awards as they look to brilliant young researchers for tomorrow's treatments and a cure.

 

Dr. Stanley Rockson to deliver lecture in honor of World Lymphedema Day, March 6

World Lymphedema Day will be observed on March 6 at Stanford University with a talk given by Stanley Rockson, M.D., Founding Chair of LE&RN's Scientific and Medical Advisory Council and Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University School of Medicine. Details on LE&RN's Facebook event page.

 

University of California San Francisco (UCSF) Breast Cancer Related Lymphedema Study

UCSF researcher Christine Miaskowski, RN, PhD and colleagues are conducting a research study to learn more about the signs and symptoms of lymphedema associated with breast cancer treatments. For details and eligibility requirements, see LE&RN's website.

 

Chapter News

LE&RN has state chapters and international chapters. Find out what the chapters are up to in the latest Chapter News.

 

Become a Supporting Member

LE&RN Supporting Members fund educational programs such as the LE&RN Symposium Series; research fellowships, grants, and scholarships; and advocacy efforts such as the drive to secure $70 million in NIH funding. None of this can happen without your commitment. If you haven't done so already, become a Supporting Member today. Supporting Membership begins at just $5/month.

Copyright © 2017 Lymphatic Education & Research Network, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list