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CCDC Logo: Colorado Cross-Disability Coalition

THE DISPATCH
May 2017 Issue


Letter from the Executive Director
Dear Members:

Some of you have heard my analogy comparing advocacy to the sea.  Keeping people afloat is our individual advocacy.  Making waves is our systems advocacy-and can involve changing laws or policies, letting the system know what needs to change and doing what is needed to bring about this change.  Yet, the real and lasting change needed for true integration will be turning the tide.  This means we are out there enough and have meaningful roles in society to the point where most people without disabilities understand that we have value and care what happens to us—where they see funds used to provide supports as a good social investment and not a charity.  We need to be working on all of these—and need to continue as we move through some very bumpy, chaotic and uncharted waters.

As I write this, I am still reeling from the House of Representatives narrowly passing the American Health Care Act in Washington on May 4. We know the Senate will do a different bill, and will  continue to work as hard as we can with our Colorado Senators to help them understand how important Medicaid is for life and liberty of so many of us with disabilities.  While everyone is exhausted by the roller coaster of emotions that occurs every time we start seeing numerous “URGENT” alerts from various organizations, now is not the time to stop our work, or put our heads under the proverbial covers.  We must instead work harder and smarter.  We need to figure out how to better communicate with the broader community.  We need to understand how people without disabilities view us and if they do not value us, we need to understand why and change those perceptions. We need to be able to work on both sides of the aisle.  Despite our hurt at the votes we have to find a way to have meaningful conversation with people that appear to support a bill that we know will hurt us.  Some people are not “moveable” and will not change their minds.  However, the people who tweet about how people should only get the health care they can afford are not the majority.

We are not saying the health care system we have is perfect, but we must not destroy the Medicaid program nor should we go backwards in terms of private health insurance.  Medicaid defense will continue to be our number one priority.  But we will not allow these threats to thwart our other goals.  We have an ambitious strategic plan that involves increasing disability employment and decreasing poverty rates within our community.  CCDC is embarking on an exciting program to do outreach to refugee communities, which will benefit both the disability and refugee communities.  We continue to work with 17 other organizations with the Colorado Trust on health equity, with an advocacy cohort of the Colorado Health Foundation on overall health advocacy, and are part of a great collaborative through Mile High Connects focusing on affordable housing, transit and livable communities.   

Our legal program continues to avenge our civil rights—and we also are fighting against HR 620 –a VERY BAD federal bill that would make enforcement of the ADA almost impossible by requiring notification prior to litigation.  Our Social Enterprise Probate Power legal services is growing by the day!   Our individual advocacy team is working hard helping members with a variety of complex problems.  We are expanding our reach working in many communities outside of Denver on a variety of projects.

As we navigate between the need to react to real threats to our very lives and liberty and the need to stay focused on our goals for greater fairness and inclusion, we feel the same fears as you do.  But we draw strength from the resiliency and kindness we see in our amazing community on a daily basis.  Watching some of our members reminds me that in a climate that has become increasingly acrimonious, I must work hard to respond with kindness.  History has taught the entire human race that policies based on dislike, distrust, or fear of others never works—for anyone.   Being on the receiving end of hatred (and having people wanting to take away your lifeline sure feels like hatred) is incredibly stressful.  However, the disability community has a unique role and an incredible responsibility.  We are everywhere: Democratic, Republican and Independent; members of every racial and ethnic group; all orientations, backgrounds and family statuses.  Disability knows no boundaries and this is a gift. We can and must be leaders in changing the social narrative from one of individualistic rhetoric to one modeling inclusion, diversity and mutual respect.  This is really hard, but we are a really tough, smart, and talented community.  As we continue to navigate these unchartered waters, we will be asking more of you—more time, more training and yes, more money.   We also want you to tell us what you need and how we can better meet those needs. We continue to try improved communication tools and will unveil our disability community Wiki later this year.  We always want to hear your feedback.  We are honored to represent our members and take that responsibility very seriously.  I know I speak for our entire staff and board when I say we have never been more grateful for the support of our members, donors and allies on this voyage.  We will do everything possible to keep the ship of disability rights upright and moving towards our destination.
  
 
Respectfully,
Julie Reiskin
Executive Director

P.S. Save the date of October 5th for our annual ADA Access Awards Luncheon.   If you know anyone that wants to sponsor us, please let Laura Gabbay know.  Laura can be reached via phone at 720-249-2208 or via email at lgabbay@ccdconline.org​  She has a Sponsorship Levels Fact Sheet she can send along or ask the company or organization directly for their philanthropic support.  The proceeds of our annual luncheon help support our programs all year-long.  So we hope to see you at the event this fall at DU’s Maglione Hall in the Korbel School of International Studies.

 

Board Member Spotlight

Kimberley Jackson, D.O.
Picture of CCDC Board Member Dr. Kimberley Jackson, D.O.
(Picture of Dr. Kimberley Jackson, CCDC Board Member.)

Dr. Kimberley Jackson grew up in New Jersey and went to college at Rutgers University, where she graduated with a B.S. in Biomedical Engineering. She attended medical school at the University of Medicine and Dentistry of New Jersey, School of Osteopathic Medicine, from which she graduated a Doctor of Osteopathic Medicine in 2008.

After medical school, Dr. Jackson specialized in family medicine and practiced in Pueblo until 2012,
when symptoms of Ehlers Danlos Syndrome forced her to leave practice. She moved to Denver in 2013, and took CCDC’s basic advocacy course in 2014. Using her experience as a physician and a person with a disability, Dr. Jackson helped to create a training on disability for medical providers, and has been to over a dozen clinics around the state to facilitate trainings.

Dr. Jackson has testified at the State Capitol on some bills important to the disability community. She serves on two committees for Colorado Medicaid, and joined the Pharmacy and Therapeutics committee in 2014, for which she is now vice chair. She was also appointed by Governor Hickenlooper in 2015 to the State Medical Assistance and Services Advisory Council. Dr. Jackson is also a board member of the Phamaly theater company for people with disabilities, and has been on stage as an actress with them as well. In her spare time, Dr. Jackson enjoys writing and teaching religious education at her church.

"I am grateful for the opportunities CCDC has given me to help other people with disabilities using my unique skill set," says Dr. Jackson. "I am hoping by being on the board I can help prepare CCDC for the next 25 years."  

Please join us in once again welcoming Dr. Jackson to our board of directors and expressing our appreciation to her for her volunteerism and activism.


Are we friends yet (on Facebook)?

Graphic of Facebook "Like" Button with thumbs up symbol(Graphic of Facebook Like Button with thumbs up symbol to the left of the text. )

CCDC would love to connect with you via Facebook!  Our page is frequently updated with the latest news, great resource articles and legislative alerts. Don't miss hearing about our last minute Calls to Action.

Our Facebook page is where you will find all of the day-to-day happenings here at CCDC, plus terrific nearly weekly photos of our advocates and members working on both the state-level and national legislation impacting the Colorado disability community.

Click here (or on the graphic image above) today and make sure to Like us on Facebook by clicking the "Like" button next to our name on our Facebook page!


Colorado Trust Health Equity Learning Series events from CCDC

Great news, CCDC is fortunate to have received a grant in 2016 from The Colorado Trust to support health equity learning in Prowers County through the Trust’s Health Equity Learning Series! The final in this four-part series is coming up and we hope you will join CCDC and other leaders in health care, education, human services, and government from across Prowers County to view a provocative presentation followed by a facilitated discussion about health equity in our communities on June 1 in Lamar. An educational program of The Colorado Trust, the Health Equity Learning Series aims to increase knowledge and awareness of health equity through presentations from experts discussing factors that increase disparities and solutions that advance health equity. The learning series brings experts from across different disciplines to discuss factors that increase disparities and solutions that advance health equity. 

For the June 1 event, the recorded presentation, with closed captioning, will be Dog Whistle Politics: Race, Politics and Economic InequalityIan Haney López, JD, the Earl Warren Professor of Public Law at University of California, Berkeley, spoke in Denver on May 4 on how coded language and racial pandering among politicians has led to public policies that reinforce racism and inequities in the United States.

June 1, 2017
6:00 pm – 8:30 pm

Dinner and child care will be provided courtesy of the Colorado Trust!

Location: The Cultural Events Center at Lamar Public Library


FREE, but space is limited! Email CCDC Advocate Kenny Maestas at kmaestas@ccdconline.org to reserve your spot.

Picture of (from left to right), CCDC Advocate, Kenny Maestas, CCDC Director of Evaluation & Development Laura Gabbay, CCDC volunteer Kevin Hernandez and Assistive Power Technology Group co-founder Don Yoxsimer at the Colorado Trust Health Equity Learning Series event in Lamar on May 4, 2017. Picture of (from left to right), CCDC Advocate, Kenny Maestas, CCDC Director of Evaluation & Development Laura Gabbay, CCDC volunteer Kevin Hernandez and Assistive Power Technology Group co-founder Don Yoxsimer at the Colorado Trust Health Equity Learning Series event in Lamar on May 4, 2017. 


 






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Upcoming Community Events (additional listed below)

BECOME A CCDC PEER ADVOCATE, WORKING ONE-ON-ONE WITH INDIVIDUALS WHO ASK FOR ASSISTANCE IN ISSUE AREAS FROM MEDICAID TO HOUSING TO SERVICE ANIMAL QUESTIONS OR GET INVOLVED IN OUR SYSTEMS ADVOCACY AND POLICY WORK. 

INTERESTED?  YOU CAN ALSO CLICK HERE TO VISIT OUR WEBSITE.

Focus will be on the following topics: 

  • CCDC History, What about CCDC and General Advocacy
  • Advocates navigating Local, State, and Federal Benefit Systems
  • Disability Determination-Social Security (SSI and SSDI)
  • Medicaid – Disability Eligibility & Determination - The Affordable Care Act and Health Equity
  • Due Process and the Appeals Process for Benefits
  • Community and Grass Roots Organizing, Nonprofit and Regulatory Boards, The Legislative Process, and Rule Application
  • Education, Employment, Housing, Transportation, and Technology
  • Effective Communication, Requesting Reasonable Accommodation (ADA)

Email Angela Nevin at anevin@ccdconline.org for more information.


CCDC's Basic Advocacy Training Course is now online!

We are pleased to announce that individuals who are interested in becoming CCDC Advocates can enroll in either our live 8-week class at DU on Tuesdays at the University College or take this course online.

Picture of Spring 2017 Graduating Basic Advocacy Training Class, along with CCDC staff members(Pictured here are the graduates of the 2017 Spring Basic Advocacy Course, along with CCDC staff members.)




About the Colorado Cross-Disability Coalition

The mission of CCDC is to advocate for Social Justice for people with all types of disabilities.  We are a membership-driven 501 (c) (3) nonprofit organization and have nearly 2,000 Members today. 

DONATE ONLINE TODAY TO CCDC (Click below and visit our COLORADOGIVES.ORG PAGE)

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PROGRAM SPOTLIGHT: Systems Advocacy

2017 Legislative Wrap Up

In addition to our direct, individual advocacy program, we also work on a broader level to ensure that the disability perspective is included in public policy, mostly on the state level within the legislative and executive branches. Our policy work is done based on community-organizing principles of involving those directly affected, determining the problem and desired solution, and then engaging with whomever has the power to solve the problem.  We also serve on various committees that plan for new programs and monitor existing programs to make sure they meet the needs of our community.

All of our CCDC Advocates complete our 8-week Basic Advocacy Training. We provide continuing education and support for our advocates.  We work with like-minded organizations, coordinating messaging, strategy and sharing our victories and struggles. Systems advocates can represent us on a board, committee or work group, act as a volunteer lobbyist, do research or address a particular policy problem.  Some current projects include

  • Obtaining rate parity between Consumer Direction and agency-based personal care. (Agencies get higher hourly rate.)
  • Working to have a fair assessment process to determine the amount of long-term services and supports one can receive (and to eliminate current intrusive processes that lack flexibility and due process).
  • Improving the quality of Medicaid client communications (this involved legislation and will now turn to committee work).
  • Grassroots organizing in rural Colorado to assure rural voices are heard in the national healthcare debate.
  • Serving on Denver Affordable Housing Commission as disability community representative.
  • Improving quality of paratransit in the metro area and improving access to transportation in rural areas.


CCDC is proud to be an active participant in Phase 3 of the 2017 Health Equity Cohort through the Colorado Trust.  Along with 17 other nonprofit organizations, we get to work as a field to develop health equity work, focusing primarily on racial inequities.  All of the data connected to health outcomes show that people with disabilities who are people of color suffer from extreme disparities. This is not acceptable.

We also had a busy legislative session this year with lots of involvement. CCDC wants to thank Board Co-Chair Josh Winkler (Thanks, Josh!) for his work and Community Organizer Dawn Howard (Thanks, Dawn!) for her persistence making sure we were represented on the hill.  Most importantly, we want to thank our many advocates who testified at the State Capitol including Fran Maes, Charlotte Morgan, Haven Rohnert, Joelle Brouner, Candie Dalton, Mary Housely, Mark Greenberg, Donna Sablan, Connie Rettig, Tina McDonald, Bryce Rafferty, Krysten Trustman, Joseph Shippley, Michael Neil, Brian Wilhelm, Natalie Wright, Robin Stephens, Valerie Schlect and Charlotte Morgan. We also want to acknowledge others including Joan LaBelle of CPWD who was a rock star on the anti-harassment bill, Aubrey Boggs of Mental Wellness Network, David Bolin of Accent on Independence, Ryan Zieger of PASCO, the entire healthcare team of the Colorado Center on Law and Policy (CCLP), Hillary Jorgenson from Healthier Colorado, and Sharon O’Hara from the Chronic Care Collaborative.  

A special shout out to Jack Regenbogen, Esq., Policy Associate at CCLP for his leadership on three important Medicaid bills CCDC strongly supported.  Those bills are SB 121 to Improve Medicaid Client Correspondence, HB 1126 which means Administrative Law Judges in Colorado will look at notices in Medicaid eligibility cases and advise clients if notice is bad that they can wait for good notice, and HB 1143 which requires audits in the future to make sure Medicaid follows certain steps with regards to correspondence. We also owe a Big Thank You to CCDC Advocate Kenny Maestas for tirelessly providing all of our advocates with talking points on the various 2017 bills.


As the 2017 legislative session ends, we have the usual good and bad. We were happy to see additional funds for affordable housing, bills to improve Medicaid client correspondence, as mentioned above, and very impactful and meaningful for the disability community, a bill to put the Hospital Provider Fee into an enterprise, making it TABOR exempt. Click here to learn why this is important.   We were also happy to see a bill making it illegal to harass people based on disability or sexual orientation.  We were very happy to finally see conflict-free case management and most of all, to celebrate finally putting into the Colorado law what should be common sense—that is to say, it is unacceptable to send someone to jail because they are having a psychiatric crisis—ever. We were disappointed and angry to see the Homeless Bill of Rights and some tenant rights protections fail.  We were also disappointed to see a failure of a compromise to improve statewide transportation (HB1242).


Picture of (from left to right) CCDC Individual Advocacy Coordinator Michelle McHenry-Edrington and CCDC Community Organizer Dawn Howard at the 2017 Center for African American Health Fair on March 11, 2017
(Picture of (from left to right) CCDC Individual Advocacy Coordinator Michelle McHenry-Edrington and CCDC Community Organizer Dawn Howard at the 2017 Center for African American Health Fair on March 11, 2017.)

More Upcoming Community Events
  • The 2017 Inclusive Communities: A Solutions Forum on Housing, the third annual Mayor's Housing Forum, will convene 500 public, private, non-profit sector, and community leaders from across the Denver Metropolitan Area to discuss policy tools and investment strategies to create and preserve affordable housing throughout the region. The forum, hosted by the Denver Office of Economic Development, will be held on May 19 at the Hyatt Regency Downtown Denver, 650 15th Street, Denver, CO  80202. "Last Minute" registration is still open until May 16 and costs $70 per person. The City will be making childcare and Spanish-language translation services available for participants at the Summit. If you have already registered and will need childcare, translation services or ADA accommodations, please email the City at housingsummit@denvergov.org so they can make accommodations.
  • May is Mental Health Awareness Month. This month Mental Health of America (MHA) is talking about Risky Business. MHA believes it's important to educate people about habits and behaviors that increase the risk of developing or exacerbating mental illnesses, or could be signs of mental health problems themselves. Download and use the MHA Mental Health Month toolkit to raise awareness this May.
  • The 5280 Challenge Track & Field Meet for Paralympic, Masters and Veteran Athletes is taking place on Saturday, June 3 at Cherokee Trail High School/Legacy Stadium, 25901 East Arapahoe Road, Aurora, CO.  Athletes can check in at 7:00 a.m.  Whether you are an experienced track athlete or a first-timer, the 5280 Challenge Track & Field Meet is a great opportunity to get out and find your stride!  Questions?  Email 5280challenge@gmail.com  This is a sanctioned event of Adaptive Sports USA.
  • And of course, Save the Date for the 2017 CCDC ADA Access Awards Luncheon.  This fall it will be held on October 5 from 11:30 to 1:30 in Maglione Hall in the Korbel School of International Studies-Sie Complex at the University of Denver.  Tickets are on sale now for $40 each. Sponsorships are available and start at $500. We are thrilled to announce that our keynote speaker will be Colorado Attorney General Cynthia Coffman. Since taking office in January 2015, Attorney General Coffman has focused on community outreach, consumer protection, and protecting public safety. We are delighted to welcome her to the luncheon program this year.  To get more details about the luncheon or to reserve your spot, call Laura Gabbay at 720-249-2208 or email her at LGabbay@ccdconline.org

Picture of CCDC ADA Access Awards Luncheon Logo

Become a CCDC Member today!


Membership in CCDC is free!  To sign up for our Member Alerts and to learn more about how you and your friends can get involved, click here.

Now when you become a Member, you can sign up for Email Alerts that are specifically tailored to the topic or issue that interests YOU.  Questions?  Email Dawn Howard at dhoward@ccdconline.org

Medicaid Helps Colorado


Graphic with text: Health First Colorado helps health insurance cost.  Keeping people insured through Medicaid keeps costs down for us all.  Graphic of prescription medicine.
(Pictured here is a graphic that reads Health First Colorado helps people with disabilities. People living with disabilities can stay in their homes and live their most independent lives with Medicaid.)

Going above and beyond private health insurance, Health First Colorado, Colorado’s Medicaid Program, provides in-home supports and transportation solutions that allow individuals living with disabilities to lead their most independent lives. Join us in spreading the word about how Health First Colorado helps.

Take action!  All are welcome to use the resources in the MedicaidHelpsColorado.org website to join us in advocating for the value of Health First Colorado, Colorado’s Medicaid program. 



Picture of CCDC Executive Director Julie Reiskin (far right front row), along with CCDC advocates and Colorado Representative Jessie Danielson at the State Capitol in April 2017
Pictured here is CCDC Executive Director Julie Reiskin (far right front row), along with CCDC advocates and Colorado Representative Jessie Danielson at the State Capitol in April 2017. 

Pictured is a drawing by CCDC Communications Manager Angela Nevin, with the Leonardo daVinci quote, "Knowing is not enough; we must apply.  Being willing is not enough; we must do."
Pictured is an original drawing by CCDC Communications Manager Angela Nevin, with the Leonardo daVinci quote, "Knowing is not enough; we must apply.  Being willing is not enough; we must do."









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www.ccdconline.org
1385 S. Colorado Blvd., Suite 610-A
Denver, CO  80222
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