|
|
Welcome to Murmur - November 2017 |
Welcome to the latest edition of Murmur. Inside you'll hear inspiring stories from mothers and daughters, doctors, midwives, nurses, and researchers who are all working tirelessly to end rheumatic heart disease in Australia. Among them Dr. Bo Remenyi, announced as winner of the Northern Territory Australian of the Year 2018 last night. Congratulations from all at RHDAustralia!
As always we welcome feedback and contributions for future editions of Murmur.
If you would like to contribute or have any feedback please contact us at info@rhdaustralia.org.au |
|
|
|
Getting the message out: advocate Mum making a difference |
“I’m really passionate about advocating for more awareness around acute rheumatic fever and rheumatic heart disease after having seen what my daughter went through. I want people to know what the symptoms are and what to look out for. I don’t want anybody to have to go through what Raychelle’s been through.”
|
|
|
|
|
Sharing a Heartbeat: love, pregnancy, and living with rheumatic heart disease |
A new film written and directed by a group of Northern Territory Indigenous women follows the story of Tess, a young women whose boyfriend, Jamie, reveals his desire to start a family. While surprised and happy, she’s not told Jamie about her rheumatic heart disease (RHD). She’s not sure how her heart disease will affect her pregnancy or if she can have a baby at all. Looking for answers, Tess turns to her best mate, her mum and the local health clinic for guidance on what to do next. Will they have the answers?
|
|
|
|
|
Dr Bo Remenyi wins 2018 NT Australian of the Year |
Congratulations to paediatric cardiologist Dr Bo Remenyi! In addition to the life saving work she does with babies and children with heart complications, she's a vocal advocate and champion in the fight to end rheumatic heart disease.
|
|
|
|
"That Heart Sickness" |
“One of the things I found in my research was that people were calling acute rheumatic fever and rheumatic heart disease, ‘rheumatic heart fever’ or ‘that heart sickness’. It all gets glossed into one term.
Read more... |
What does a culturally competent model of self management look like? | Aboriginal culture is central to health. It is value based, built on social roles, cultural obligations and responsibilities which differs to the dominant western health system. During clinical interactions these opposing worldviews collide leaving the patient no wiser on their disease management or follow up plan.
Read more... |
|
Translating research: how do women understand RHD in Pregnancy?
| The Australian Maternity Outcomes Surveillance System (AMOSS) RHD in Pregnancy study has shown that for Indigenous women in Australia, there are many misconceptions around rheumatic heart disease (RHD) and how it can impact their pregnancies. How can we use this knowledge to improve things? Read More
|
|
|
|
Q&A with Jennifer Cottrell – 2016 Churchill Fellow |
Article from RHD Action
On World Heart Day, recently returned Churchill Fellow Jennifer Cottrell speaks to RHD Action about what she would like to see happen in RHD control in Australia. Read more |
|
Playing a role in the prevention of rheumatic fever and rheumatic heart disease |
The incidence of acute rheumatic fever (ARF) and the prevalence of rheumatic heart disease (RHD) among Aboriginal and Torres Strait Islander people are among the highest in the world. ... Read More
|
|
|
|