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Chronic Disease Self-Management in Diverse Communities
Long-Term Services and Supports

Technical assistance for culturally competent care
September 2016
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LTSS Training and Technical Assistance Center
Visit the online LTSS TA Center for videos, best practices, toolkits, a resource library, and a step-by-step planning roadmap.

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CMS Seeks to Simplify, Modernize PACE
The Programs of All-inclusive Care for the Elderly (PACE) helps frail and elderly individuals meet their health care needs without moving to a nursing home or other care facility.
Holding hands
An interdisciplinary team of physicians, nurses, social workers, physical therapists, dieticians, and others collaborates to provide care in the home, the community, or at a PACE center. More than 34,000 older adults are currently enrolled in about 100 PACE organizations across 31 states.
CMS is proposing a new rule designed to increase those numbers by clarifying and modernizing the program. Under the new rule, PACE team members would be able to participate in more aspects of a participant’s care. Non-physician primary care practitioners could provide some services in the place of primary care physicians, and PACE regulations would be easier to understand and follow. CMS will take public comments on the proposed rule through October 17, 2016.
Read the proposed PACE rule.
 
  PACE in Indian Country
 
  The first PACE program sponsored by an American Indian or Alaska Native tribe or tribal organization was Cherokee Elder Care in Tahlequah, OK. Started in 2008 as Oklahoma’s first PACE program, it’s 1 of only 15 rural PACE sites in the nation. You can find more information about Cherokee Elder Care on the LTSS Technical Assistance Center, along with general information about the PACE program model, such as eligibility requirements, financing options, benefits and challenges, and a link to find out if your state has any PACE programs.
  Learn about the Cherokee Nation PACE program on the LTSS Technical Advisory Center.
  Go to the PACE model page to find information and links to resources.
FEMA’s Guide for People with Disabilities
Don't Wait Communicate. Make your family emergency communication plan today. Ready!
It’s National Emergency Preparedness Month. How might a disaster affect you? What are your personal needs during a disaster? Asking these questions is especially important for people with disabilities or elders who may have special needs or may need to take extra steps to prepare for a disaster.
FEMA, the Federal Emergency Management Agency, offers a thorough preparedness guide for people with disabilities that provides advice on planning and preparing for an emergency, including tips for creating an emergency supply kit, creating a medical plan, dealing with power outages, and planning for an evacuation with special considerations for people with specific disabilities or people who use service animals.
Talking to People with Alzheimer’s
World Alzheimer's Month The Alzheimer’s Association Caregiver Center has these suggestions for how to communicate with people who have Alzheimer’s:
  1. Be patient and supportive
  2. Offer comfort and reassurance
  3. Avoid criticizing or correcting
  4. Avoid arguing
  5. Offer a guess
  6. Encourage unspoken communication
  7. Limit distractions
There are many other websites where you can find helpful communications resources for family members and other caregivers. Three additional useful websites include:
  • The National Institute on Aging: Resources for Communication and Behavior Problems is a comprehensive list of resources that includes a free, 104-page caregiver guide on communications and behavior issues
  • The University of Waterloo (Ontario): By Us For Us Guide: Enhancing Communication, created by a group of people with dementia, this online booklet outlines the main communication-related challenges of people with dementia
  • The Alzheimer’s Foundation of America: Communication Techniques is an online tip sheet that discusses tone of voice, word choice, eye contact, body language, and more
Native Art
Alzheimer’s Conference for Caregivers and Professionals
The Native American Outreach Program of the Banner Alzheimer’s Institute will hold a 1-day conference, “Weaving the Old with the New: Care for the Caregiver,” on Friday, Oct. 21, at the Twin Arrows Navajo Casino Resort in in Flagstaff, AZ. On Thursday, Oct. 20, there will be a pre-conference for health care professionals called, “Dementia-Friendly Native American Communities.”
Visit the conference site for more information.
Native America Calling Discusses Elder Care
Native America Calling, the national news and call-in radio show, hosted a program called, “Elder Care in Native America” on Thursday, Sept. 1. If you missed it, the show is posted online on the program’s website.
Video: “How Not to Shop for Medicare”
Video to Hopi Stories of Resilience
Do any of your tribal members need help signing up for Medicare? Here’s a two-and-a-half-minute video from the National Council on Aging that they might enjoy—an easy introduction to a complicated subject with some good consumer advice.

Visit the National Council on Aging’s Vimeo page to watch the video.
Video: “Hongvi’s Song”
In the short video, “Hongvi’s Song,” Hopi tribal member Bucky Preston talks about the early poor prognosis for his son, Aaron “Hongvi” Preston, who has Downs Syndrome, and how Hongvi has triumphed over those predictions to enjoy a full and rewarding life.
Video Hongvi's Song
The video is part of the “Stories of Resilience: American Indians with Disabilities” series from the Center for American Indian Resilience, which highlights the personal stories of struggle and resilience of four individuals with disabilities and their families.
LinkedIn Tribal Affairs Group
Join the Conversation on LinkedIn
Want to learn more about or discuss LTSS in Indian Country? Looking to connect with others working in the same field? Join the Tribal Affairs Group on LinkedIn and join the conversation.
Upcoming Webinar
Chronic Disease Self-Management in Diverse Communities
Wednesday, Sept. 28, 2016
Older Americans are disproportionately affected by chronic diseases, and self-management education can improve their health and well-being. Join us for a webinar about Wisdom Warriors, a Chronic Disease Self-Management Program adapted for tribal communities by the Northwest Regional Council.
The webinar will cover strategies for implementing and sustaining evidence-based chronic disease self-management programs for Native American populations. It will offer valuable information for organizations that are just getting started, looking for ways to expand their programs’ reach, or wanting to learn more about sustaining their programs.
Please note your
location's call-in time:

 8 a.m. Hawaii
10 a.m. Alaska
11 a.m. Pacific
11 a.m. Arizona
12 p.m. Mountain
 1 p.m. Central
 2 p.m. Eastern
Presenter:
Melody Coleman Melody Coleman
Community Programs Manager
Northwest Regional Council
 
Send Us Your News
Do you have news to share about LTSS in Indian Country? Send it to ltssinfo@kauffmaninc.com, and we’ll include it in a newsletter. Contact us with other comments or feedback, too.
About the Newsletter
Long-Term Services and Supports Solutions is published monthly by CMS Division of Tribal Affairs to share information, funding opportunities, and resources with LTSS planners, tribal leaders, and supporters.
Centers for Medicare & Medicaid ServicesIndian Health ServiceAdministration for Community Living






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