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Hospice Leaders Briefing
July 2018
Welcome to the Dementia Newsletter for July 2018! 

We aim to keep this newsletter up-to-date and relevant to what is going on in the world of Dementia. If you have any suggestions on how we can improve the newsletter, would like to contribute to it, or know a colleague who would like to receive it, please email Heather Lovvorn by the 15th of each month.

We look forward to hearing your feedback!
2018 Dementia Community of Practice Meetings 
In conjunction with Karen Harrison Dening (Dementia UK) and Liz Bryan (St Christopher’s Hospice), we are delighted to tell you that progress is being made on the forthcoming Dementia Community of Practice ECHO. 

We held our first ECHO awareness webinar on Wednesday, 4th July and now invite you to:
 
Register for the Dementia ECHO Network.
 
‘Drop in’ to Hazel Webb to check your zoom and IT connections. The drop in sessions will take place:
 
Weds 1 August:        15.00 - 16.00
Tues 7 August:         12.00 - 13.00
 
To join, use Meeting ID: 128 987 199
 
In preparation for our next webinar on the 4th September 1230 – 1345, (and even if you are planning to join) please complete our curriculum planning survey. This will enable us to report and decide upon your wishes and preferences for topics, timing, frequency and length of sessions.
 
To join the webinar on the 4th September:
 
Topic: Dementia ECHO Network
 
Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/128987199
 
Or Telephone:
        
        United Kingdom: +44 (0) 20 3695 0088  or +44 (0) 20 3051 2874
    
Meeting ID: 128 987 199


Wednesday 5th December we will be holding our annual face to face event at St Christopher’s Hospice in London. We will be planning the timetable with you – focussing on key speakers, discussion and you sharing your own work with us.
Articles and resources
Look how far we've come: The birth and growth of the Dementia and End of Life Care Community of Practice

Karen Harrison Dening, Dementia UK Lead, looks back over the development of the Dementia Community of Practice.
 
Read the article
Dementia Community of Practice: A New ECHO

Dementia Lead at Hospice UK, Dr Sarah Russell, explains how Project ECHO is helping to train more people to support those affected by dementia.
 
Read the article
Thinking of taking part in dementia research?

Don’t forget to join Dementia Research as  place to register your interest in participating in dementia research.
Join here!
Events

'Achieving improvements in Young Onset Dementia Support : Positive, personal and practical initiatives and solutions'

20 September 2018

The Studio, Birmingham

Register here

13th UK Dementia Congress- Registration now Open!
6-8 November 2018

Registration is open for the 13th UK Dementia Congress  Brighton, East Sussex on the 6th, 7th and 8th November 2018. Please mention on booking if you are a Hospice UK member, as you maybe entitled to a reduced rate!

The full programme can be accessed here
Book here
Research Roundup!
  1. A tool doesn't add anything  The importance of added value: Use of observational pain tools with patients with advanced dementia approaching the end of life-a qualitative study of physician and nurse experiences and perspectives
  2. Advance care planning in dementia  recommendations for healthcare professionals.
  3. Barriers and facilitators for GPs in dementia advance care planning: A systematic integrative review.
  4. Prevalence and intensity  of dyspnea, pain, and agitation among people dying with late stage dementia compared with people dying with advanced cancer: a single-center preliminary study in Brazil.
  5. The facilitators and challenges of dying at home with dementia: A narrative synthesis  

 
If you would like to include anything in the monthly Dementia newsletter, please email Heather Lovvorn and copy Dr Sarah Russell by the end of the second week of the month.
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