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September 2018 eNewsletter

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The Bubbles Are Here!

 
September is Pulmonary Fibrosis month, and CPFF is asking everyone to show their support by blowing bubbles for those who can’t. Go to our Facebook and post your pictures or videos on who you are blowing bubbles for, with the hashtag, #CPFFBubbles. Send your pictures or videos to admin@cpff.ca along with your story. When you send your pictures or videos, along with your stories, it is assume that you have given CPFF permission to use them on our website, in our printed materials, as we push for the Patient Charter of Rights, earlier diagnoses and support for our caregivers.
 
During this month, CPFF have events taking place in BC, Alberta and in Ontario. CPFF have requested several buildings to be light up in CPFF’s colours of Red & Blue to create awareness of Pulmonary Fibrosis. Please take a picture of the building light up and send it to me if possible to admin@cpff.ca
 
September 19, 2018 in Calgary, AB
Calgary Tower will be light up
 
Proclamation for the City of Calgary

Proclamation for the City of Edmonton 

September 8, 2018 in Hamilton, ON
Locke Street Festival, come out and visit CPFF booth
 
September 19, 2018, starting at 10 pm in Toronto, ON
CN Tower
Port Credit Light House
City Hall
 
September 28, 2018, starting at 10 pm in Niagara Falls, ON
Niagara Falls facing Canada
 
September 19, 2018 in Vancouver, BC
BC Place
Roger’s Arena
Harbour Centre
Vancouver Convention Centre
5 Sails
 
For further details on the day’s events in BC, click here or contact George Kaminsky george@cpff.ca (604-841-3853)


 

Parkash Kaur Ahluwalia Maloni Legacy Fund

 
Parkash from 1994 in MontrealGrateful son establishes Legacy Fund to honour his mother, the Parkash Kaur Ahluwalia Maloni Legacy Fund
 
Parvinder Maloni believes it was his late mother’s intervention that sent him the life-saving gift of a donor lung on Mother’s Day, 2018, five years after his diagnosis with pulmonary fibrosis. It was a medical intervention that was not available to his mother Parkash Kaur Ahluwalia Maloni, when she succumbed to the same disease in 1997 at the age of 73.



Parkash from 1994 in Montreal

“Our breath is life and my mother was the breath that gave life to her family and all the generations and friendships that came from her love. And event after death, she continues to watch over our whole family and she blessed me in my greatest time of need,” says Parvinder.
 
In honour of his mother, Parvinder is establishing the Parkash Kaur Ahluwalia Maloni Legacy Fund with the Canadian Pulmonary Fibrosis Foundation (CPFF). He is reaching out directly to his family members and friends to make donations to the Fund and he and his brother Narinder’s family will match all donations made to the Fund.

Parvinder’s parents from 1982 in Montreal
Donate Now
 

To date, this fund has raised $4,612 which will double to $9,224!
$10,000 supports 10 CPFF Patient Support Groups
$20,000 supports a small research project
$90,000 supports to train a Fellow in becoming a Respirologist and Researcher

“Your support for this special initiative to honour my mother and the life-changing gift of a lung transplant, which I believe she has given me, will help researchers find a cure for pulmonary fibrosis."

My brother Narinder and I will match every dollar donated to this fund.
 

Parvinder & Narinder with his mother and aunts; London, England from 1970


Parvinder, Narinder with their parents, India from 1962
 

Scotiabank Toronto Waterfront Marathon Challenge on Sunday October 21, 2018

 
Join Team Captain, Erica Morra of the Dream Team, who is running in the Scotiabank Marathon Challenge with her friends in support of CPFF!

This team has currently raised $1,700! Please consider pledging them.

This is the link to the team page: https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx?teamID=830007&langPref=en-CA

If you are interested in creating your own team, below are your discount codes to use.
 
Your customized DISCOUNT CHARITY PIN codes for race registration (in addition to applicable taxes and processing fees) will be:
  • Marathon or Half Marathon ($80): 18CPFF42K
  • 5k ($40): 18CPFF5K
  • 5k with Stroller ($50): 18CPFF5ST
Register here:
http://www.torontowaterfrontmarathon.com/the-weekend/schedule-of-events/

For more information about CPFF, visit the CPFF website
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