Giving Thanks for Helping us
Grow a Movement
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We've just co  me back from NOLA, where we presented the initial data analysis from the OurBrainBank App to more than 2,000 of the world's leading neurologists at #SNO2018 Society for Neuro-Oncology's 2018 conference. An abstract of our findings was approved and exhibited. Since we went live in the US a few months ago, we have more than 250 users, have collected over 4,000 data points, and around 7 in 10 report finding the App extremely useful. |
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 Right on top of that trip, Jessica flew to Dallas for the Patient Hero of Hope Awards ceremony as part of the Academy of Oncology Nurse & Patient Navigators conference. Jessica was surprised and delighted to win the Award, honored alongside three impressive cancer-patient-activists, and was bowled over by the empathy, generosity, and great spirit of the nurses and patient navigators.
This is an important opportunity for us to raise awareness of the critical role of nurses as carers and navigators, any of whom provide extraordinary care to people afflicted by glioblastoma.
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 Next up is OurBrainBank on show at the European Partnerships in Clinical Trials 2018 conference. Jessica is presenting with Alexis Demopoulos MD, Director, Neuro-Oncology at Northwell Health, and member of the OurBrainBank advisory committee.
Dr. Demopoulos says about the OBB app, "What is really remarkable is how the simple act of recording symptoms increases quality of life and in some cases, people live longer and cost society less (fewer ER visits and fewer hospitalizations)." Jessica outlines the thinking behind the app.
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https://www.facebook.com/groups/OurBrainBank/ Join our private Facebook group for Glioblastoma patients and caregivers. We have free regular video support chats (if you're not on Facebook, but would like to join the video chats, please write us).
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 Using the OBB app and have questions? Or would you like to learn how? We're here to help. Contact ourbrainbank@gmail.com or subscribe to our YouTube channel with helpful "how to" videos for the app.
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Tuesday November 27 is Giving Tuesday! Please consider a gift to OurBrainBank.
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