AGM & Conference 2018 (Rescheduled)

As you are all aware due to adverse weather conditions we had to postpone our AGM & Conference in March. 

As you can imagine, the staff and board were all hugely disappointed as were lots of members, volunteers and speakers.

We are very pleased that our AGM & Conference has been re-scheduled and will now take place over the weekend of April 13th to 15th at the Royal Marine Hotel in Dun Laoghaire, Co. Dublin.

With just over a week and a half to go till the AGM, we are super excited and we’re looking forward to seeing everyone for the celebrations. The AGM & Conference 2018 is a big one and marks the start of a year-long celebration and commemoration for the society's 50th anniversary.

As a result of the date change, we’ve had a small number of places become available.

As places are extremely limited, if you would like to attend the AGM & Conference, we would encourage you to get in touch on 01 657 9900 as soon as possible, to avoid disappointment.

We would love for everyone attend but unfortunately that’s just not possible. We hope to see everyone throughout this year of celebration and commemoration for the society's 50th anniversary.

The final touches are being made to the Adult's Programme (please see website/social media in the coming days) but for a rundown of the Children's Programmes for the AGM & Conference, please see here.

World Haemophilia Day 2018
 

2018 is a momentous year for the I.H.S. as it marks the 50th Anniversary of the society and as such, we have some rather big plans for World Haemophilia Day 2018 (WHD) on Tuesday, April 17.

Light Up Red for WHD: 

A series of prominent buildings in Ireland, will join others across the globe, in lighting up red at night to mark WHD, including Liberty Hall, The Dublin Convention Centre, The CHQ Building, The Mansion House, The National Concert Hall, The Civic Offices at Wood Quay and Cork City Hall.

Artworks: 

Irish artist Shane O’Malley is creating two works of art to celebrate the 50th Anniversary of the society. The two pieces will be officially unveiled for WHD 2018. One will be displayed at a prominent billboard on Macken Street, Dublin 2 (close to Grand Canal Dock), and the second, a large canvas painting will be installed in the main lobby of St. James’s Hospital.

Twitter Takeover: 

I.H.S. CEO Brian O’Mahony will curate the @Ireland Twitter account from Monday, April 16 to Sunday, April 22. The account, with over 66k followers, is curated by a new person each week and in lieu of WHD 2018, Brian will take charge of the account for the week.

If you are on Twitter, please get involved and show your support, especially on World Haemophilia Day 2018 - using #WHD2018, #IHS50 & #Haemophilia50.

Non-Uniform Day

A Non-uniform day at St Brendan’s National School in Blennerville, Tralee, Co Kerry, will take place on World Haemophilia Day (WHD) – April 17. Staff and pupils are being encouraged wear something red to mark WHD. A big I.H.S. thank you to Rebecca Roche for organising this; helping to raise awareness of haemophilia and funds for the society. 
 

For updates on what is going on for WHD 2018, please see haemophilia.ie, Facebook, Twitter or contact the office on 01 6579900.

The Irish Haemophilia Society is excited to introduce the I.H.S. Youth Mentoring Programme. 

Our aim for the new youth programme is to foster the next generation of leaders in the bleeding disorders community. 

We hope that participation in this new programme for young people with haemophilia or related bleeding disorders, and their siblings, will help develop skills and foster confidence to make positive choices for the management of their health, care, recreation and personal relationships. 

The Leadership and Mentoring programme looks at ways for young people affected by bleeding disorders to communicate with each other, share experiences and learn life skills.

The programme will be for ages 13 to 17 years and will run four times a year – and will be rolled out after our AGM & Conference.

The Six Key Areas are: 

1. Haemophilia and You
2. Relationships and Social Life
3. Travel
4. Health
5. Future Career Development
6. The Irish Haemophilia Society

You can read all about it in our Spring 2018 Magazine, here. 

For further information, please contact Robert in the office on 01 6579900 or robert@haemophilia.ie
 

Peer Support

It’s very important for us at I.H.S. to bring support directly to our members and the society is piloting peer support groups for mothers.

The first one, held in the I.H.S. office on March 24, was very positive. A second meeting will take place in the Kingsley Hotel, Cork on April 21, at 12 noon. 

If you would like to register you interest, more info and/or would like a peer support group meeting near your locale, please get in touch with Lyndsey on 01 657 9900 or lyndsey@haemophilia.ie.

Women’s Mini Marathon 2018

Are you on the lookout for a challenge this summer, or perhaps just some fun in the sun? 

Well, the VHI Women's Mini Marathon might be just the ticket.

This year the race will take place on Bank Holiday Sunday 3rd June 2018. The race is for all fitness levels and all ages. You can walk, jog or run, it is totally up to you, but one thing is for sure, you will have a great day. 

We are very grateful to all the ladies who take part in the Mini Marathon for the I.H.S. every year, your support for the work of the Society is really appreciated. An event like this is so important, not only to raise funds but to raise awareness of haemophilia and other bleeding disorders.

Registration is open now, until May 18, 2018 or when maximum number of entries is reached.

So, if you’re interested Women's Mini Marathon, why not register yourself today?

For more info please contact Nina on 01 6579900 or nina@haemophilia.ie, or follow this link.

Dates for Your Diary 2018

Father & Son Overnight
Dates: T.B.C. - Info packs will be going out after the AGM
Venue: Lilliput Adventure Centre

April:
 
50th Anniversary AGM & Conference
Dates: Friday 13th to Sunday 15th April
Venue: Royal Marine Hotel, Dun Laoghaire, Co. Dublin.

50th Anniversary of I.H.S. - World Haemophilia Day Event
Date: Tuesday 17th April
Venue: Events taking place across the country

May:

Carrier Conference
Dates: Saturday 12th & Sunday 13th May
Venue: Castleknock Hotel, Dublin.

World Federation of Hemophilia Congress
Dates: Sunday 20th to Friday 25th May
Venue: Glasgow

June:

Ageing & HCV/HIV Conference
Dates: Friday 22nd to Sunday 24th June
Venue: Killeshin Hotel, Portlaoise, Co. Laois.

July:

von Willebrand’s Disease Information Day
Date: Saturday 7th July
Venue: Midlands Hotel, Portlaoise 

August:

Mild Haemophilia Information Day
Date: Saturday 18th August
Venue: Osprey Hotel, Naas 

September:

Mother & Daughter Overnight
Dates: Saturday 8th & Sunday 9th September
Venue: Lilliput Adventure Centre

50th Anniversary Gala Dinner
Date: Saturday 22nd September
Venue: Castleknock Hotel, Dublin.

October:
 
October Conference
Dates: Friday 19th to Sunday 21st October
Venue: Radisson Hotel, Sligo

November:

Haemophilia B Information Day
Date: Saturday 10th November
Venue: T.B.C. 

December:

I.H.S. Children’s Christmas Party
Date: Saturday 1st December
Venue: Clarion Hotel, Liffey Valley, Dublin 

You can keep up to date with the latest I.H.S. info on Facebook & Twitter.