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MWS Foundation events for 2018
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April 2018

Happy Spring MWS Families!
We have some great news to share and great events planned for 2018. Please take a minute to read through this e-mail and let us know if you have questions.

Research Update

We have launched the Growth Data Survey on the MWS Patient Registry. We hope to be able to provide the valuable information necessary for the development of Mowat-Wilson Syndrome specific growth charts. 

It's important that all families participate!

Go to the MWS Patient Registry

Upcoming Events

1964.. THE TRIBUTE
Concert to Benefit the MWS Foundation

 May 5th, 2018 - Barre, VT
 
Come to Barre this Spring, join us for a great night of great music. All MWS families are welcome. There are several areas in the building that can be accessed should the event be too over stimulating or loud for any attenders.  The building is wheelchair accessible (an elevator to get to all floor levels) and chairs on the floor can be moved to accommodate wheelchairs. There are handicap accessible bathroom stalls.  There will be an area designated for MWS families.

It will be a memorable night! 

If you are planning to attend, please notify Wendy & John Sell.

Buy Concert Ticket

MWS EUROPEAN CONFERENCE
June 22-23, 2018 - Lisbon
 
Meet with Dr. Mowat and Dr. Wilson at the 2018 MWS European Conference.
The MWS Foundation is a proud supporter of the conference and will be represented by some of its directors. 

For information, please contact info@mowat-wilson-portugal.org

Register for European Conference

MWS FOUNDATION REGIONAL EVENTS
 
MWS Family Beach Day - Connecticut
August 4th, 2018 - Waterford, CT
For information, contact Laura Chrysostomo

MWS Pool Party - Atlanta
August 18th, 2018 - Atlanta, GA
For information, contact Susan Triunfo

MWS Get Together - Pennsylvania
Date and Location TBD
For information, contact Sandie Flannery

 
 

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Copyright © 2018 Mowat-Wilson Syndrome Foundation, All rights reserved.


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