CHS-MC Chapter Update April 4, 2018

CHS-MC Chapter Update April 4, 2018

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In this Issue:

MOVING Forward Towards A Brighter Future
CHS-MC Education Day and Annual General Meeting
Saturday April 14^th, 2018
University of Winnipeg Duckworth Centre – Room 2D12

9:00 am Coffee and Light Breakfast

Join us at the Duckworth Centre for an informative day of learning, sharing and moving the Canadian Hemophilia Society, Manitoba Chapter forward towards a brighter future.
The formal program starts at 9:30 am but come a bit earlier to get some coffee and say hello to old friends and maybe make some new ones!
Please follow the link to maps of the University of Winnipeg and local parking.

9:30 am Special Guest Speaker - Jeremy Hall

We are very excited to have Hemophilia Alberta member, Jeremy Hall, join us from Edmonton. Jeremy is a national champion in both a summer and winter sport. He will share with us his experience growing up as a lover of sport while managing his bleeding disorder.
We are glad to have caught Jeremy right before he begins to train for the summer and grateful to him for making time for us as he works on his Masters in Biomedical Engineering,
You won't want to miss his talk. He is a wonderful speaker and his story is inspirational!

10:00 am Panel Presentation

A group of Chapter members ranging from teens to mature adults will talk about their experiences participating in sport and fitness activities. They will talk about their challenges, how they have adapted their treatment schedule to be more successful and ways the HTC has been helpful to them.

10:30 am to 11:30 am

Chapter Children will move to another room for programming from 10:30 am to 12:15 pm
In the Driver's Seat Our very own Kathy Mulder is an author of this workbook developed by members of the Canadian Physiotherapists in Hemophilia Care (CPHC) to guide young and mature adults with bleeding disorders through an organized and thoughtful approach to decision-making around physical activity.
Just the Guys Camping Trip Members of the Chapter Youth Committee will talk about the June 2018 camping trip to Riding Mountain National Park for male members with bleeding disorders between the ages of 17 and 35.
World Federation of Hemophilia Organization Twinning Program 2017 Twins of the Year Award Winners: Mongolia - Manitoba (Canada) The Chapter is so proud of the Twinning partnership with our friends in Mongolia and of the amazing work this partnership has done. This summer we are hosting a group of 6 representatives from the Mongolian National Hemophilia Association.

11:30 am to 12:15 pm Dr. Jayson Stoffman

Dr Jayson Stoffman is the Medical Director of the Manitoba Bleeding Disorders program. He will give a general overview of available clotting products and a look at emerging novel therapies.

12:15 pm to 1:00 pm Lunch

1:00 pm to 2:30 pm Pharma Presentations

The following companies will have presentations on their current products for the inherited bleeding disorders community and what they have coming up in their pipeline:

Shire
Bayer
Octapharma
Bioverativ

2:30 pm to 4:30 pm Annual General Meeting

Call to order – John Schmitke, President
Additions to Agenda
Moment of Silence
Approval of AGM Minutes – April 16, 2016
President’s Report – John Schmitke, President
Finance- Bill Featherstone, Treasurer

Approval of 2017 Financial Statements
Approval 2018 Budget
Approve Auditor for 2018-2019

Moving to Virtual Office – Christine Keilback
Office Report – Christine Keilback
Committee Reports
Election Board of Directors 2018-2019
Adjourn

Please Register in Advance!

You can register by calling the office at 204.775.8625 or email at info@hemophiliamb.ca.
If you are bringing children for the morning, please make sure to include their ages for us.
Please let us know if you have any food allergies,