50th Anniversary AGM & Conference 

Many thanks to everyone who attended our AGM & Conference in Royal Marine Hotel, Dún Laoghaire, to celebrate the 50th Anniversary of the society. 

It was a fitting way to mark the 50th; a weekend of celebration and commemoration as we honoured the past while looking toward a bright future. 

The movie premiere on Friday night was very moving and we think you'll agree that Goran has done an amazing job, distilling 50 years of the society into just over an hour of film, and it is an absolute triumph. 

On Saturday morning, Minister for Health, Simon Harris TD officially opened the AGM which was followed by a series of very interesting, informative and engaging sessions on the iPath, Perceptions of the I.H.S. and History of the Society. 

The Service of Commemoration and Through the Generations session on Sunday morning were both touching and very emotional.  

Meanwhile, The Mad Hatter's Tea Party on Saturday afternoon went down a treat as did the young member's fantastic movie, which preceded the awards and Gala Dinner.  

Last but certainly not least, a special thanks to all the volunteers, without their dedicated and Trojan work, we couldn't make events like this what they are. 

We felt it was a special weekend and hope you did too!

We are looking forward to seeing everyone throughout the year as we continue to celebrate the I.H.S.'s 50th Anniversary. #IHS50

If you would like check out photos from the weekend, you can do so by clicking here. 

World Haemophilia Day 2018
 

2018 is a momentous year for the I.H.S. as it marks the 50th Anniversary of the society and as such, to mark the occasion, we had an extremely busy but productive World Haemophilia Day (WHD).

The day kicked off bright and early with I.H.S. pair, Brian O’Mahony and Seamus McDonald appearing on Ireland AM to speak about the development of Haemophilia care in Ireland over the last 50 years.

The WHD celebrations continued with the unveiling of a street art project on Macken Street, Dublin 2 and in St. James’s Hospital. Reflecting the personal experience of patients and nurses from St James’s Hospital, the two artworks, commissioned by the Irish Haemophilia Society in partnership with Roche, were developed by artist Shane O’Malley to celebrate the 50th Anniversary of the I.H.S.

Meanwhile, in Kerry, there was a non-uniform day at St Brendan’s National School in Blennerville, Tralee. Staff and pupils turned out in red to mark the day with some students tasked with teaching staff and pupils all about haemophilia and how it affects junior infants students Adam and Grace Roche. 

A grand total €710 was raised between Blennerville National School, Tralee Musical Society and Leighton Bellinger at Hurcles Gym. A massive thank you to Rebecca Roche for organising and helping to raise awareness of haemophilia and funds for the society.

The day concluded as a series of prominent buildings in Ireland, joined others across the globe, in lighting up red at night to mark WHD. This year, the buildings included Liberty Hall, The Dublin Convention Centre, RCSI, The CHQ Building, Stephen's Green Shopping Centre, The Mansion House, The National Concert Hall, The Civic Offices at Wood Quay The Capitol Building, Cork City and Cork City Hall.

It was a very busy day by all involved but totally worth it and there are some fabulous photographs from WHD2018, which you can see here.  

The Irish Haemophilia Society is very pleased to announce that we have organised a ‘Carrier Conference’, which will take place over the weekend of Saturday 12th & Sunday 13th May, 2018 in Castleknock Hotel, Dublin.

The conference is open to females aged 16 years and over. However, those under 18 years attending, must be accompanied by a parent or guardian. The I.H.S. are delighted to be able to subsidise the cost of this conference for members.

The cost to attend is €50.00 and includes attending the conference on Saturday and Sunday, overnight accommodation on Saturday night, lunch and dinner on Saturday and breakfast and lunch on Sunday.

For more information, please click here or you can book in online here, or call the office on ☎ 01 657 9900.

We hope to see you there! 

Barretstown Camp 2018

Barretstown is a specially designed camp for children and families affected by serious illnesses and lifelong conditions such as haemophilia.

The Barretstown programme is based on an approach known as Therapeutic Recreation. This approach offers children and their families the opportunity to enjoy fun activities while exploring the four main areas of personal development – Challenge, Success, Reflection and Discovery.

Camps are specially designed programmes where children and teenagers can attend, have some fun and meet other children and teenagers from Ireland and the UK.

These weekends will be jam packed with activities from sailing to rock climbing, arts and crafts, team building games and more - they won't want to leave!

There are spaces available for some camps at Barretstown (the dates are below) so if you're interested, please get in touch with Lyndsey on 01 657 9900 or lyndsey@haemophilia.ie.

The dates for the available camps are:
 

Summer 1; June 11th – 18th (age 13 - 17 years)
Summer 2; June 22nd – 28th (age 7 - 13 years)
Summer 4; July 16th – 23rd (age 13 - 17 years)
Summer 5; July 27th – August 2nd (age 7 - 13 years)
Summer 6; August 7th – 13th (age 11 - 15 years)

Women’s Mini Marathon 2018

Are you on the lookout for a challenge this summer, or perhaps just some fun in the sun? 

Well, the VHI Women's Mini Marathon might be just the ticket.

This year the race will take place on Bank Holiday Sunday 3rd June 2018. The race is for all fitness levels and all ages. You can walk, jog or run, it is totally up to you, but one thing is for sure, you will have a great day. 

We are very grateful to all the ladies who take part in the Mini Marathon for the I.H.S. every year, your support for the work of the Society is really appreciated. An event like this is so important, not only to raise funds but to raise awareness of haemophilia and other bleeding disorders.

Registration is open now, until May 18, 2018 or when maximum number of entries is reached.

So, if you’re interested Women's Mini Marathon, why not register yourself today?

For more info please contact Nina on 01 6579900 or nina@haemophilia.ie, or follow this link.

Dates for Your Diary 2018

May:

Carrier Conference
Dates: Saturday 12th & Sunday 13th May
Venue: Castleknock Hotel, Dublin.

World Federation of Hemophilia Congress
Dates: Sunday 20th to Friday 25th May
Venue: Glasgow

June:

Ageing & HCV/HIV Conference
Dates: Friday 22nd to Sunday 24th June
Venue: Killeshin Hotel, Portlaoise, Co. Laois.

July:

von Willebrand’s Disease Information Day
Date: Saturday 7th July
Venue: Midlands Hotel, Portlaoise 

Father & Son Overnight
Dates: Saturday 21st & Sunday 22nd July
Venue: Lilliput Adventure Centre

August:

Mild Haemophilia Information Day
Date: Saturday 18th August
Venue: Osprey Hotel, Naas 

September:

Mother & Daughter Overnight
Dates: Saturday 8th & Sunday 9th September
Venue: Lilliput Adventure Centre

50th Anniversary Gala Dinner
Date: Saturday 22nd September
Venue: Castleknock Hotel, Dublin.

October:
 
October Conference
Dates: Friday 19th to Sunday 21st October
Venue: Radisson Hotel, Sligo

November:

Haemophilia B Information Day
Date: Saturday 10th November
Venue: T.B.C. 

December:

I.H.S. Children’s Christmas Party
Date: Saturday 1st December
Venue: Clarion Hotel, Liffey Valley, Dublin 

You can keep up to date with the latest I.H.S. info on Facebook & Twitter.