We really hope to see you at this year's conference held at the DoubleTree Hilton in downtown Atlanta from Friday, June 29 through Sunday, July 1! And there is still time for your family to register. 

Register today to gain access to top PHACE medical specialists, excellent networking for families affected by all areas of PHACE Syndrome, conference education materials, children’s programming and more.

Just fill out this form  and submit payment to secure your spots at the 2018 PHACE Syndrome Family conference.

The deadline for family conference registration is June 6. 
 

This year's Keynote Speakers are: 
Dr. Leslie Gordon and Dr. Scott Berns

After serving for 14 years at the March of Dimes National Office, where he was the Senior Vice President of Chapter Programs and Deputy Medical Office, in October 2015 Dr. Berns became President and CEO of the NICHQ (National Institute for Children’s Health Quality), an independent, nonprofit organization working to improve children’s health.

Scott is a board-certified pediatrician and pediatric emergency physician. He is a Clinical Professor of Pediatrics at the Warren Alpert Medical School of Brown University and Clinical Professor of Health Services, Policy and Practice at the Brown School of Public Health in Providence, RI. Learn more about Dr. Berns...

Denise Adams, MD, Co-Director, Vascular Anomalies Center, Boston Children’s Hospital, Associate Professor, Harvard Medical School​

Beth Drolet, MD, Medical Vice President, Ambulatory Services, Children's Hospital of Wisconsin, Medical Director, Birthmarks and Vascular Anomalies Program, Children's Hospital of Wisconsin, Professor, The Medical College of Wisconsin and Chair, PHACE Syndrome Community Medical Advisory Board​​​

Maria C. Garzon, MD, Professor of Dermatology and Pediatrics at CUMC Columbia University, N.Y.

Geoffrey Heyer, MD, Pediatric Neurologist, Nationwide Children’s Hospital, Associate Professor, The Ohio State University College of Medicine

Dawn H Siegel, MD, Associate Professor, The Medical College of Wisconsin​

FRIDAY JUNE 29, 2018

• Welcome and Opening Remarks
• Keynote, Dr. Leslie Gordon & Dr. Scott Berns
• History of PHACE Syndrome, Dr. Beth Drolet
• The PHACE Syndrome Community: Mission, Vision, Values and our Common Journey, Jerri Lauffer
• Diagnostic Guidelines for PHACE Syndrome, Dr. Maria Garzon
• The PHACE Registry: Update and Review of Accomplishments, Dr. Dawn Siegel
• Hemangioma Treatment Panel, Dr. Denise Adams and Dr. Elena Pope
• “Routine” Neuroimaging, Headaches, Aspirin Therapy, and Risk of Stroke in PHACE, Dr. Geoffrey Heyer
• Cerebrovascular anomalies in PHACE, Angiograms, and Role of Neurointerventional Radiology and Neurosurgery, Dr. Darren Orbach
• Preparing your child for sedated vs unsedated neuroimaging and role of child life, Dr. Matt Hawkins and Emily Ammons
• Neuroimaging Panel Q and A, Dr. Geoffrey Heyer, Dr. Darren Orbach, Dr. Matt Hawkins
• Roundtable Discussions: All speakers
• Dinner and Tour: Georgia Aquarium​

SATURDAY JUNE 30, 2018

• Team Care for PHACE and MAB Research Update, Dr. Beth Drolet, Dr. Maria Garzon
• PHACE Registry and Kids First – Future Directions, Dr. Dawn Siegel
• PHACE Syndrome Community: Future Directions and Call to Action, Jerri Lauffer
• Explaining PHACE to family, friends, and your community, Dr. Leslie Lawley
• Taking care of yourself: Strategies to reduce stress and promote resilience, Stephanie Feely and Allison Pellettieri
• Motor delays in children with PHACE and the role of physical therapy, Ellie Hoover and Sonika Tataria
• Speech-language and feeding disorders in children with PHACE and role of the SLP, Dr. Adriane Baylis
• Patient/Parent Panel (TBD)​
• Roundtable discussions: All speakers

SUNDAY, JULY 1, 2018

• Family Fun Day, Centennial Olympic Park