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Hospice Leaders Briefing
June 2018
Welcome to the Dementia Newsletter for June 2018! In this newsletter, you will be able to read interesting articles, review upcoming events, and participate in open consultations from the wider Dementia Community. The Dementia Community of Practice is a joint undertaking between Hospice UK and Dementia UK!

We aim to keep this newsletter up-to-date and relevant to what is going on in the world of Dementia. If you have any suggestions on how we can improve the newsletter, would like to contribute to it, or know a colleague who would like to receive it, please email Heather Lovvorn by the 15th of each month.

We look forward to hearing your feedback!
2018 Dementia Community of Practice Meetings 
We have exciting news! Our two Dementia Community of Practice events will be in July and December 2018

Wednesday 4th July we will be launching our first ever Dementia Community of Practice ECHO knowledge network. You can find out general information about Project ECHO here . Joining instructions will be sent out shortly. 

Wednesday 5th December we will be holding our annual face to face event at St Christopher’s Hospice in London. We will be planning the timetable with you – focussing on key speakers, discussion and you sharing your own work with us.

Call for Papers!
Deadline Extended

The deadline for submitting an abstract has been extended to 5pm on Monday 25 June 2018.

During the week of 30 July, we’ll let you know whether your abstract has been accepted.
Submit an abstract

Open grant programmes

Bursary - MSc in Voluntary Sector Management with Hospice Leadership and Management module
St James' Place- Supporting Family Carers
Wolfson Bursaries- Hospice Staff
Wolfson Bursaries- Care Home Staff
 
Find out more
Articles and resources
Government’s Challenge on Dementia
NIHR

Delivering better research is fundamental to the Government’s Challenge on Dementia, and NIHR has a key role in boosting research to generate the evidence needed to make a step change in prevention, treatment and care. Across Government and the charity sector, research spending on dementia has doubled to over £60m a year. The ambition in the Government’s Dementia 2020 plan is for combined spending from all sources – Government, charity and industry - to be on course to double by 2025.

Visit the link below for Key Developments!
For more information
United against Dementia
Alzheimer's Society

Listen to the new-style podcasts from our Dementia together magazine, which now feature the voice of the person with dementia being interviewed as they share their experiences of living with the condition.
 
Listen here
Want to know more about NHS structures? Hospice UK CEO Tracey Bleakley explains:
 
Read article here

We are interested in finding out the views of a range of healthcare providers about what they feel is most important in a model of palliative care for people with dementia living in the community i.e. still living at home or with family but who may well transition to long-term care over time.

Please use this survey to tell us as much as possible about your views on the core components of a ‘good’ model of palliative care for people with dementia. There are no ‘right’ or ‘wrong’ answers, all views and ideas are valid.

Participate here

New guidelines for recognising and assessing pain in older adults
British Geriatric Society

New recommendations to help healthcare professionals recognise and assess levels of pain in older people were published today in the scientific journal Age and Ageing

Read it here

Being patient with EBM. “Just because we can, doesn’t mean we should” – supporting informed decision-making
Cochrane UK

In this blog, Kit Byatt (KB), a recently retired geriatrician, and Sarah Chapman (SC), from Cochrane UK, reflect on their discussion about helping an elderly relative decide whether having a test and a treatment offered would be in her best interests.

Read the blog

Drug burden in older people approaching end of life
British Geriatric Society

Dr. Denis Curtin is a specialist registrar in Geriatric Medicine in Cork University Hospital, Ireland. His paper Drug consumption and futile medication prescribing in the last year of life: an observational study was recently published the Age and Ageing journal.

Read the article

Why we need specialist care guidance for people with dementia
Marie Curie

Caring for someone with dementia at the end of their life means thinking about things in a slightly different way. And that’s what we hope this toolkit will help with.

View the toolkit here
Events

The Story of Barbara Robb
Wednesday 18th July 2018
University of Worchester

Barbara Robb (1912-76)  campaigned for better psychiatric care for older people. Robb also influenced the government to create an NHS inspectorate, provide effective hospital complaint procedures, appoint an ombudsman, create blueprints for modernising psychiatric services, and develop guidelines on managing violence in hospitals

For more information

'Achieving improvements in Young Onset Dementia Support : Positive, personal and practical initiatives and solutions'
20 September 2018

The Studio, Birmingham

Register here

13th UK Dementia Congress- Early Bird Bookings
6-8 November 2018


The 13th UK Dementia Congress will be held at the four-star Hilton Brighton Metropole, in the iconic seaside resort town of Brighton, East Sussex on the 6th, 7th and 8th November 2018.

For more information
Research Roundup!
Development and validation of a Hospital Frailty Risk Score focusing on older people in acute care settings using electronic hospital records: an observational study
The Lancet

Older people are increasing users of health care globally. We aimed to establish whether older people with characteristics of frailty and who are at risk of adverse health-care outcomes could be identified using routinely collected data.
 
See the article here
If you would like to include anything in the monthly Dementia newsletter, please email Heather Lovvorn and copy Dr Sarah Russell by the end of the second week of the month.
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