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Irish Haemophilia Society eZine: June 2018
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Educational Grants 2018

Have you been accepted onto a post second level educational course? Are you going to college?

Do you have haemophilia or a related bleeding disorder? Are you a family member of a person with haemophilia or related bleeding disorder?

If so, why not take the time to apply for an I.H.S. educational grant?

Applications are now invited for the 2018 Educational Grants.

You can apply online via our website haemophilia.ie, or you can download the application forms from our website, and post the completed forms into the office.
 
There are three categories of grants available as follows; Maureen & Jack Downey Educational Grant, Margaret King Educational Grant and Father Paddy McGrath Educational Grant.

How much are the Educational Grants for?

Maureen & Jack Downey Educational Grant
First prize        €4,000
Second prize   €2,000
Third prize       €1000

Margaret King Educational Grant
First prize        €2,000
Second prize   €1,000
Third prize       €500

Father Paddy McGrath Educational Grant
First prize        €1,000
Second prize   €500
Third prize       €250

The opening date is Monday 18th June 2018 and the closing date is Friday 28th September, 2018.

For more details on the criteria, scoring and the application forms. please click here

Take some time to complete your application, as the more complete and detailed your application is, the higher your chance is of being successful. And please do fill out the application yourself! Good luck to everyone who applies.

Von Willebrand Disease (VWD) Information Day

The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disease (VWD) will take place on Saturday, July 7, 2018 in the Midlands Hotel, Portlaoise. 

This information day will give people an opportunity to gain a better understanding of VWD and the treatments available and an opportunity to get answers to all those unasked questions. 

Please note that no charge is applicable on the day. If you would like to attend this information day, please contact the office on 01 6579900 to book your place, or you can book in online here

⬇⬇ The preliminary programme is available below for your perusal ⬇⬇

New Member of Staff: Julia Collins

We would sincerely like to welcome our new member of staff, Julia Collins to the team and we’re delighted to have Julia on board! 

Julia joined the I.H.S. in May 2018 as Administrative Assistant. Julia is responsible for the general office duties every day and carries out tasks and duties assigned by the Chief Executive and Office Manager.

Julia is also responsible for Hyde Square; the I.H.S. apartment facility. Julia processes all accommodation bookings the I.H.S receives and deals with the handover of keys to people who have booked into Hyde Square.

Julia also handles the administration for conferences and events when necessary.

Ageing Conference 2018

The fourth Ageing Conference held by the Irish Haemophilia Society took place in the Killeshin Hotel in Portlaoise over the weekend of 22nd to 24th June.  

A variety of speakers attended and gave extremely interesting and informative talks on ageing with haemophilia. The speakers covered a broad range of topics, from the importance of a balanced diet to the effects of ageing on the body and joint care and the effect new treatments on the ageing population with haemophilia.

Our aim is to upload as many of the presentation from the conference to our website, if you would like to access them, you can do so by clicking here

This year, like the previous Ageing Conference, was full of relevant discussion between speakers and members throughout the entire weekend.

It was great to see so many members interact with speakers and already we are thinking about a preliminary programme for 2019.


Irish Haemophilia Society Gala Fundraising Dinner

Saturday, 22 September 2018 Castleknock Hotel, Dublin

Tickets are moving very fast for the I.H.S. ‘Gala Fundraising Dinner’ which will take place on Saturday 22nd September in the Castleknock Hotel in Dublin.

If you would like to attend, we would encourage you to book your place as soon as possible, to avoid disappointment. 

The evening will commence with a drinks reception at 7pm, followed by dinner at 8pm. The evening will also include an auction and music from the fantastic 16 piece brass band ‘Route 66’. The host for the evening will be the actor and TV Presenter Mr. Simon Delaney.

This black-tie event is open to those aged 18 years and over and is priced at €100 per ticket or €900 per table of 10 if reserved on or before 2nd July. The event is limited to 220 people attending and promises to be an exciting and unique event, as well as a fundraiser for the Society.

If you would like to attend this event, please reserve your ticket or table by contacting Debbie or Aoife in the office on 01 6579900. You can also reserve your ticket online via our website haemophilia.ie.

A special rate for overnight accommodation will also be available from the hotel. (Official tickets will be posted out two weeks prior to the event)

Marie Hughes Retires from NCC

Marie Hughes has retired as Office Manager at the National Coagulation Centre (NCC) on 19th April 2018.  

Marie joined the Haemophilia Service in August 1998 when it was located in Hospital 1 Ground Floor, having worked in the private sector and in other healthcare sectors prior to this.  

Marie has been an integral part of the development of services for people with bleeding disorders over the last 20 years, when the service moved first to the new National Centre for Hereditary Coagulation Disorders building and more recently, to the NCC.

Many people attending the NCC will have met Marie, who has led the team of administrative staff and took a keen interest in ensuring that people were able to access timely appointments, especially in the co-infection clinic. 

Marie will be missed by all the team in the NCC but will undoubtedly have a busy retirement, with time for family and travel.

Congratulations to Marie on her long service in the NCC and best wishes for the future.


Father & Son(s) Overnight 2018

Our Father & Son(s) Overnight, which will take place over the weekend of Saturday 21st & Sunday 22nd of July 2018 in Lilliput Adventure Centre in Mullingar, Co. Westmeath.

Information packs went out in the post last month and the deadline for bookings of Monday, July 2, is fast approaching.

This event is open to:
  • Fathers who have sons with haemophilia (please note that male siblings who do not have haemophilia may also attend this event).
  • Fathers with haemophilia with sons who do not have haemophilia.
  • Please note children must be aged between seven to seventeen.
If you have any questions or queries about eligibility to attend this event, please contact the office on 01 6579900 or, you can book in online here.
 
2018 has been a big year for the I.H.S. so far and we’ve got plenty planned as we continue to celebrate the 50th Anniversary of the I.H.S. 

Would you like to be part of helping make 2018 a memorable year?

We’ve a fantastic team of I.H.S. volunteers but we’re always happy to add to this merry band.

Would you be interested in getting involved in volunteering with the I.H.S? We are looking for people of all ages, all backgrounds and all walks of life to volunteer with us at our events!

Do you enjoy working with kids? Are you good at arts and crafts? Are you a good photographer? Do you have a hobby or skill that you could teach to others? If so, we would love to hear from you!

Click here for more info or call us in the office on 01 657 9900 or email us at info@haemophilia.ie

Kilimanjaro Climb for I.H.S.
 
We are very grateful to everyone who organises or takes part in fundraisers for the I.H.S. every year, your tremendous support for the work of the Society is really appreciated

Fundraising events are so important, not only to raise funds but to raise awareness of haemophilia and other bleeding disorders, and there is a big I.H.S. fundraiser on the not too distant horizon.

Patrick Doyle is going to climb Mount Kilimanjaro in Tanzania, Africa in October 2018, and in doing so, he will be raising money for the I.H.S. and awareness of haemophilia.

The summit of Kilimanjaro is 5,896 metres high, which is roughly two thirds the height of the world’s highest mountain; Everest.

Patrick will undertake a tough 8-day trek, 6 days up and 2 days down with temperatures that can hit -20C. 

Patrick is paying the cost of the trip himself so all money donated will go directly to the society.

We would like to thank Patrick for choosing the I.H.S. and to wish him the very best luck!

If you would like to donate Patrick’s Everyday Hero fundraising page, you can do so by clicking here.

Dates for Your Diary 2018

July:

von Willebrand’s Disease Information Day
Date: Saturday 7th July
Venue: Midlands Hotel, Portlaoise 

Father & Son Overnight
Dates: Saturday 21st & Sunday 22nd July
Venue: Lilliput Adventure Centre

August:

Mild Haemophilia Information Day
Date: Saturday 18th August
Venue: Osprey Hotel, Naas 

September:

Mother & Daughter Overnight
Dates: Saturday 8th & Sunday 9th September
Venue: Lilliput Adventure Centre

50th Anniversary Gala Dinner
Date: Saturday 22nd September
Venue: Castleknock Hotel, Dublin.

October:
 
October Conference
Dates: Friday 19th to Sunday 21st October
Venue: Radisson Hotel, Sligo

November:

Haemophilia B Information Day
Date: Saturday 10th November
Venue: T.B.C. 

December:

I.H.S. Children’s Christmas Party
Date: Saturday 1st December
Venue: Clarion Hotel, Liffey Valley, Dublin 


You can keep up to date with the latest I.H.S. info on Facebook & Twitter.
Planned Giving

The Irish Haemophilia Society and other charities are facing an uncertain financial future.

We continue to improve and increase our programmes, conferences, activities and publications for the benefit of our ever increasing number of members and families with haemophilia and bleeding disorders.

If you would like more information on our Planned Giving contributions and how you can help, please click here
 
Write an Article!

Do you enjoy writing?

Do you like sharing your experiences or feel that other people's perspectives have helped you in the past?

Maybe you had a particularly beneficial or enjoyable time at one of our conferences or maybe you would like to share a story about your experience with a bleeding disorder. 

If any of the above are true, we would love to hear from you! 

If you would like to contribute and write an article for the I.H.S. just call us in the office on 01 657 9900 or email Barry at barry@haemophilia.ie

Bon Voyage!

Are you planning on jetting off on holiday this year?
 
Be sure to be prepared with all the necessary documents and of course, the I.H.S travel card.

If you would like a reminder of everything you will need click here for the necessary I.H.S. travel tips!

 Or if you need a travel card sent out to you, give us a call on 01 657 9900 or email
info@haemophilia.ie
Connect with Us
LINKS OF INTEREST
Irish Haemophilia Society
World Federation of Hemophilia
European Haemophilia Consortium
Consultative Council on Hepatitis C
National Haemophilia Council
Barretstown Camp
Get Ireland Active
Children in Hospital Ireland
Health Service Executive
Irish Health.com
Citizens Information Bureau 
Copyright © 2016 Irish Haemophilia Society, All rights reserved. 
As a member of the Irish Haemophilia Society you have agreed to be on a mailing list from which you will receive monthly eZines from the IHS. 

Our mailing address is: 
Irish Haemophilia Society
Cathedral Court
New St,
Dublin 8, Dublin
Ireland






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