Copy
View this email in your browser



May is Brain Tumor Awareness Month. A time to connect, collaborate, celebrate... and GO GREY!

Haven't been to your colorist in a while? Post a photo or video of your grey roots on your social media tagged with #GoGrey and nominate a friend to do the same. And if you don't have hair, or are already rocking the grey, we want to see you too - add a grey scarf or hat, whatever works for you. It's the ice-bucket challenge for GBM!

Happy Star Wars Day! May the 4th be with you. On May the 4th, we're celebrating everyone surviving GBM and using the OurBrainBank app as the FORCE to beat GBM. Take a photo of yourself and share on your social. 

Please give on May 5th — Giving Tuesday Now, a new movement to help charities affected by Covid-19. 
GoFundMe will match gifts to campaigns that raise at least $1000 from ten or more donors. Funds are limited so please give early and often.

Our app really is a force to be reckoned with. We were thrilled to be featured in MyHealthAppsBlog who call us "a small group that's embraced technology very smartly to punch above their weight." They highlight our "bitesize video tutorials... Most commercial app developers don't do this. OurBrainBank shows that this needn't cost much or take a lot of time, but can be extremely helpful. If only more developers would spend just a little time showing how to use their apps."

Our featured patient today is the amazing Kyle Coddington who says, “Glioblastoma sucks — A LOT — but I wouldn’t trade it for anything. The people I’ve met going through this battle have been a huge encouragement and blessing. So many helpful and caring people, it’s awesome.”

The NBTS's annual event, Head to the Hill, has gone virtual. This important event allows the brain tumor community to urge congress to take action on GBM. You can still register. The virtual kick-off is this Sunday, May 3rd. 

PLEASE SUPPORT OURBRAINBANK
 
Please consider a recurring gift via PayPal, donate on JustGiving, GoFundMe CharityOurBrainBank.org, or mail a gift to the address below
DONATE TODAY
Get the Free OurBrainBank App
GBM patients and carers in the UK or US (patient must be 18+)
Registration code:
OBBUK (UK)
OBB100 (US)
Please spread the word. More than 600 people have downloaded the app. The more people we have, the more progress we'll make. 

   

Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"

Join our Facebook group for GBM patients and caregivers. Email us for invites to free video support chats. Visit our YouTube channel for longterm survivors' stories and "how to" videos for our app. Instagram too.

Want to help? Donate, set up a crowdsourcing page, give on JustGiving or mail a check to OurBrainBank P.O.Box 835 Telluride, CO 81435-0835 or a cheque to OurBrainBank UK 41 Cheverton Road, London N19 3BA

Help OurBrainBank by shopping on Amazon. Start on Smile.Amazon.com (US) or Smile.Amazon.co.uk (UK) and select OurBrainBank as your designated charity.
 
Please email us questions or comments, we would love to hear from YOU!  
 
The OBB study is approved by the IRB in the US and is UK University Ethics approved. OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.
Founder and Chair, Jessica Morris, living with glioblastoma

Photo by Maria Spann
Twitter
Facebook
Website
Email
Instagram
YouTube
Copyright © 2020 OurBrainBank, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp