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June 2020 Edition

Friday, May 29, 2020

PAINT THE REGION BLUE FOR PROSTATE CANCER

Greetings <<First Name>>,

PAINT HAMPTON ROADS BLUE this month for Prostate Cancer by wearing light blue clothing or accessories of your choice including a light blue ribbon. This is an opportunity to showcase your creative talents for a great cause. When asked about the blue, your response should include June is Men's Health Month and you are joining many others in promoting awareness and the importance of early detection.
WHY?

June is Men's Health Month

PAINT THE REGION BLUE FOR PROSTATE CANCER

WHY?

The seven-day period from June 15th-June 21st is Men's Health Week.

PAINT THE REGION BLUE FOR PROSTATE CANCER

WHY?
 
June 21st is FATHER'S  DAY.

PAINT THE REGION BLUE FOR PROSTATE CANCER

WHY?
 
THE PROBLEM
  • Prostate Cancer is the second leading cause of cancer-related death in men.
  • 2020 in Virginia, the estimated new cases: 6,200 and 800 deaths.
  • 1 in 9 of all men will be diagnosed with Prostate Cancer.
  • 1 in 6 of African American men will be diagnosed with the disease.
  • African American men are two times more likely to die from the disease and 1.7 times more likely to be diagnosed with the disease.
  • If caught early, Prostate Cancer has a five-year survival rate of nearly 100%.
  • For late-stage Prostate Cancer, the five-year survival rate is 29%. EARLY DETECTION MATTERS MOST!!!

June is Men's Health Month

UPCOMING EVENTS

As soon as it is safe, our in-person clinical studies educational seminars and registration sessions will start up again.

These events are designed to provide timely and valuable information about the three studies included in this newsletter, RESPOND, COMPPARE, and the METASTATIC PROSTATE CANCER PROJECT.

Keep reading below for information about each of these three studies. 

WHY SHOULD ELIGIBLE MEN PARTICIPATE IN THESE STUDIES?

Eligible men should participate in the studies because the information they provide will be used to help researchers make new discoveries to improve the prevention, diagnoses and treatment of prostate cancer. Men who complete the requirements of the studies will be able to practice the selfless concern for the well-being of men who have not been diagnosed with prostate cancer, especially their sons, grandsons and other relatives and friends.

NATIONAL STUDIES ROUND UP

Answer the Call

RESPOND is the largest research study ever to look for answers to the prostate cancer problem for African American men.

RESPOND is working with African American community leaders to make sure the community's voice is heard.

RESPOND needs 10,000 African American men with prostate cancer to complete a survey. RESPOND needs many of those men to also give saliva or cancer tissue samples. 

RESPOND participants will receive a $30 gift card (Walmart or Target) for completion of the survey, $30 for providing a saliva sample plus an additional $20 for giving permission to access stored prostate tissue samples.

HOW TO JOIN RESPOND: Complete the survey by mail or online: www.RESPONDStudy.org

There is a new study called COMPPARE. It stands for "A Prospective 
COMparative Study of Outcomes with Proton and Photon RAdiation in PRostate CancEr. This study is funded by the Patient-Centered Outcomes Research Institute (PCORI) and led by Dr. Nancy Mendenhall at the University of Florida. COMPPARE is asking 3,000 prostate cancer patients (ages 30-80) across the U.S. who have chosen to be treated with proton therapy or photon therapy to answer brief surveys regarding treatment choice, quality of life, and side effects for at least three years.

Patients who choose radiation therapy want to know which radiation option is best for them in treating their prostate cancer, photon or proton. However, the effects of photons versus protons on quality of life, organ function, and prostate cancer cure rates have not been directly compared in a large, multi-institutional trial. 

COMPPARE needs 300 African American men of the total 3,000 men to complete its survey.

COMPPARE participants will receive up to $250 for completing surveys before radiation begins, during treatment, and at follow-up visits.

HOW TO JOIN COMPPARE: visit http://comppare.org or email them at comppare-admin@ufl.edu.
Learn about the COMPPARE Study

The Metastatic Prostate Cancer Project (MPCproject.org) is a patient-partnered online research study for men with advanced and/or metastatic prostate cancer. The goal of the project is to generate linked patient-reported, clinical, and genomic data that is de-identified to protect patient privacy and then shared widely with the research community to speed discoveries in prostate cancer.

Both diagnosis and survival rates for metastatic prostate cancer vary a great deal, particularly across racial and ethnic backgrounds, and researchers still do not fully understand why. The MPC Project hopes to enroll and learn from men across the US and Canada, and particularly alongside those who are underrepresented in research to better understand the basis for these differences.

Participation in the MPCproject is easy:

  1. Visit MPCproject.org and click “count me in” to complete a short online form with optional questions.

  2. Fill out an online consent form that gives permission for the study team to send a simple saliva sample kit, obtain copies of your medical records, and provide an optional blood sample and/or stored tumor tissue (if available)

 Find out more at MPCproject.org

SAVE THE DATE

 2020 ZERO 5K Run/Walk 
Sunday, November 15, 2020
Virginia Beach boardwalk


We will provide more details as they become available.

1st-Ever Hampton Roads Prostate Cancer Disparity and Early Detection Summit

Hampton Roads Prostate Cancer Virtual Disparity and Early Detection Summit weekly series is planned for February 1, 8, 15, & 22, 2021.

There will be more information in each monthly Newsletter leading up to and including the February 2021 edition.

This event is being designed to provide safe and convenient opportunities for men to receive free Prostate Cancer tests (PSA) and digital rectal exams.

KNOWLEDGE:

  •  Early stage prostate cancer that has not spread has no symptoms
  •  A PSA test may indicate prostate cancer early before it has spread. 
  •  The digital rectal exam (DRE) may also indicate prostate cancer before it has spread.

FAITH:

People of faith have felt the need to express their experience with and belief in a much higher power especially in times of trouble such as learning they have cancer. Proclaiming the good news seems to serve most cancer patients well as it helps with their psychosocial and spiritual well being.

EARLY DETECTION:

  • Early treatment of prostate cancer may help some men avoid major problems.
  •  Early treatment of prostate cancer may help some men live longer.

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Copyright © 2020 Hampton Roads Prostate Health Forum, All rights reserved.


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