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CHS-MC Chapter Update June 11, 2020
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In this Issue:


WFH Virtual Summit, CHS Virtual Summer Camp. Let's Talk Period, My Health Plan, Product Delivery Service, Self-Infusion Training, CHS Contact Online News

WFH Virtual Summit

To be an expert on your bleeding disorder, take advantage of opportunities to learn more! The speakers are world class and the topics are top rate! And....it's FREE! Register and don't miss out!
The WFH Virtual Summit will include plenary, medical and multidisciplinary sessions, an iPoster gallery, free paper presentations, and the WFH State-of-the-art book.

The scientific program will provide a comprehensive overview of the latest developments, current patient healthcare issues, and the challenges ahead in the management and treatment for people with hemophilia, VWD and bleeding disorders. 

Register now for this FREE event: http://ow.ly/FXvs50A0iiv

CHS Virtual Summer Camp 
 


It has been very disappointing to cancel CHS-MC Family Camp for 2020. We understand that a virtual program will not replace the richness of the regular program. However, we are very excited to be involved in trying something new with CHS and the Chapters across Canada.

Thank you to the CHS-MC Family Camp parents and Chapter volunteers who had a Zoom meeting to discuss what we would like to see in a virtual camp experience. We passed the notes from that meeting onto the cross-Canada group that met on June 9th.

Stay tuned for registration information and a program outline. We are so excited to have the chance to meet families from other Chapters! Thank you to CHS and the volunteers! 

Let's Talk Period

Heavy menstrual bleeding may be a symptom of a bleeding disorder. Let's Talk. https://bit.ly/2ygSCvx

My Health Plan - Manitoba Institute for Patient Safety

Do you dread the question, “what did you do last time?” when you arrive for help with a bleeding episode? To be fair, many of us don’t have the same type of bleed close together and we forget exactly what was done last time. Using a log to help document notes about a bleeding episode; what worked well and what didn’t, can be a huge help!  
 
My Health Plan is a set of tools developed by the Manitoba Institute for Patient Safety that can help you manage your bleeding disorder and other regular health issues. A health plan is much more than just patient records; it combines data, knowledge, and experience, which helps patients become active participants in their own care, and that can transform a patient-provider relationship!

For more information on the 𝙈𝙮 𝙃𝙚𝙖𝙡𝙩𝙝 𝙋𝙡𝙖𝙣 resource and to access the templates (electronic or print), visit us here https://www.safetoask.ca/my-health-plan.html.

Product Delivery Service 
 

If you need to have your medication delivered from CBS, please call CBS Blood Product Management at 204.789.1034 to check that they have your order.  Once that is done call the office at 204-775-8625* to arrange a courier. Please make sure that you are going to be home for 4 hours to accept the delivery. This service is for times when you are unable to collect the treatments yourself and is not meant to be used on an ongoing basis.

Delivery service is available Monday to Thursday. It is best to arrange delivery early in the morning to get same day service.  

*Please note: Bell has been unable to correct the service issue with the office phone. You can text your request to 204.775.8625 or email the office at info@hemophiliamb.ca.

Self-Infusion Assistance and Training

Summer camp is when many young people try doing their treatment for the first time. We spoke to the Manitoba Bleeding Disorder Program nurses, Tracy and Crystalynne, and they don’t want you to miss an important window if you or your child is ready to learn self-infusion. You can make an appointment to have a training session with them. At this time, one patient and one accompanying person can come to an appointment.
 
Not sure if your child is ready, yet? Check out this resource for Assessing Readiness to Self-Infuse  

CHS Contact Online News 


Have you visited Contact yet? Great articles!!     

Thank you Chapter Update Sponsors! 

 

 
Copyright © 2020 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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