Parkinson's Newsletter - Shake It Up Australia Foundation

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Dear Shake It Up Supporter,

On behalf of the 100,000 Aussies living with Parkinson’s thank you to everyone who donated to our end of financial year campaign. It has been a challenging year for all Australians, and we are deeply grateful for your ongoing support and generosity in such a challenging economic environment.

Despite the COVID-19 disruption to many businesses, Parkinson’s research continues to make progress with some promising work coming out of the Parkinson’s Progression Markers Initiative PPMI) at The Michael J. Fox Foundation. Each spring, PPMI study and site leads meet to share study updates and scientific findings. In mid-May, more than 350 investigators and researchers joined the annual meeting, which took place virtually for the first time. They shared two highlights from their research which shows they are closer to finding a blood test to measure disease progression and identifying potential tools to predict Parkinson’s disease.

Our friends at Parkinson’s South Australia are championing The Young Onset Parkinson’s Exchange (YOP-X) Project. The project involves the development of an App and online resources for people living with Young Onset Parkinson’s. With 20% of people under 50 and 10% under 40 when diagnosed this is a much needed and valuable tool for those who are diagnosed at a young age. They are looking for people to participate in several surveys including those with YOPD, their work colleagues, partners and relationships.

We encourage you to visit our website to learn about our research and how you can get involved to help make a difference.

From all of us at Shake It Up stay safe and well.

Regards

Clyde Campbell
Founder and CEO

PPMI Dispatch: Closer to Predicting Disease Progression & Symptoms

Each spring, PPMI study and site leads meet to share study updates and scientific findings. In mid-May, more than 350 investigators and researchers joined the annual meeting, which took place virtually for the first time.

“We’re incredibly proud of the study’s accomplishments in the past decade, which would not be possible without the enormous effort of clinical site teams, study leadership, working groups and committees, academia and industry partners, and particularly the participants from our patient community who have been so dedicated to this initiative,” said MJFF CEO Todd Sherer, PhD, in his welcoming remarks.

Here we share two highlights from analysis of PPMI data and samples.

Learn More >>

FDA Approves New DBS Device to Measure Brain Activity

Last week, the U.S. Food and Drug Administration (FDA) approved Medtronic’s Percept deep brain stimulation (DBS) to treat Parkinson’s symptoms. This first-of-its-kind device can sense and record an individual’s unique brain signals, a next step toward personalized DBS.

Learn More >>

GO FOR GOLD! 1st Prize $250,000

DRAW CLOSING IN A FEW DAYS

Buy a raffle ticket for Parkinson’s in the Play For Purpose charity raffle. It’s the ultimate not-for-profit raffle! Every ticket gives you the chance to win awesome prizes, all while supporting Parkinson’s research targeted at finding better treatments, ways to slow and stop progression and ultimately a cure.

Buy a Ticket and Support Parkinson's research

Buy a $10 Ticket >>

Have you been diagnosed with Young Onset Parkinson’s?

Parkinson’s South Australia are championing The Young Onset Parkinson’s Exchange (YOP-X) Project. It is in the development stages of creating an innovative App and other online resources to act as an information portal for those living with young onset Parkinson’s.

Additionally, they have developed a range of national surveys specifically for people with young onset Parkinson’s.

Learn More >>

Shake It Up Australia Foundation Annual Report

Read our 2019 Annual Report to learn about our achievements for the year, research funded, our community fundraisers and much more.

Read Here >>

S ix Tips for Your First Year and Beyond with Parkinson's

Whether you recently learned you have Parkinson’s or have been living with the disease for years, you know how unsettling a diagnosis can be. It is not unusual to feel overwhelmed and uncertain about what to do next. But know that you don’t have to figure out everything at once. Breathe, be kind to yourself and take one step at a time. Your path will fall into place.

Learn More >>

Queensland Researchers Stimulate Improvements in DBS

New research led by QIMR Berghofer Medical Research Institute has identified ways to make the most widely-used advanced treatment for Parkinson’s disease – deep brain stimulation therapy – more effective and safer.

The research was funded by the Queensland Government ‘Advance Queensland’ initiative.

Learn More >>

Monkey Mia Boys are at it Again!

After two years of incredibly successful fundraisers totalling nearly $90,000 raised for Shake It Up (Monkey Mia to Byron Bay and Monkey Mia boys go bush again), a number of the same fellows have again planned to head off this winter for a new outback adventure: Monkey Mia boys do Covid 19 desert trip. Their aim: to raise awareness of Parkinson’s disease and funds for Parkinson’s research.

Learn more about their latest adventure as they explore the roughest tracks in Western NSW.

Learn More >>

OUR HEROES

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