Copy
See below for a daily digest of the latest Bronchiectasis news!

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

Sep 02, 2019 07:00 am | Hal Foster, PhD

 

Disorder film festivalRare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest.    Two entries in November’s “Disorder: The Rare Disease Film Festival” will focus on what siblings go through, according to the San Francisco festival’s co-founder, Bo Bigelow. “If you’re a sibling of […]

The post ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases appeared first on Bronchiectasis News Today.

Read More
share on Twitter Like ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases on Facebook

New Distribution Partnerships for SmartVest System Announced

Aug 29, 2019 07:00 am | Marisa Wexler, MS

 

DistributionElectromed has entered into new agreements with two home medical equipment distributors to enhance the distribution of and facilitate access to its SmartVest Airway Clearance System for people with respiratory problems, such as bronchiectasis, chronic obstructive pulmonary disease, and cystic fibrosis, in the United States. SmartVest was designed to help deliver high frequency chest wall […]

The post New Distribution Partnerships for SmartVest System Announced appeared first on Bronchiectasis News Today.

Read More
share on Twitter Like New Distribution Partnerships for SmartVest System Announced on Facebook

At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

Aug 28, 2019 07:00 am | Larry Luxner

 

gene editingDeveloping gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is quite another. German legal expert Timo Minssen outlined the potentially explosive ethical landmines surrounding such issues during a recent talk at the New York Genome Center. Minssen directs the Center for Advanced Studies in Biomedical Innovation Law at Denmark’s University of […]

The post At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing appeared first on Bronchiectasis News Today.

Read More
share on Twitter Like At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing on Facebook

 

Recent Posts

High Incidence of Bronchiectasis Among Children with Severe Asthma, UK Study Found
Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases
More Studies Needed on Antibiotic Use in Children With Bronchiectasis, Review Finds
Frequent Disease Exacerbations Linked to Worse Quality of Life for Australian Bronchiectasis Patients, Study Shows
Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

 


Copyright © 2019 BioNews Services, LLC, All rights reserved.
Email Marketing Powered by Mailchimp
unsubscribe from this list | update subscription preferences