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HELP for Today, HOPE for Tomorrow

It's That Time of Year: Back To School

After a long summer full of summer camps and fun in the sun, we understand that going back to school can be nerve-wracking and exciting at the same time, especially for a child with epilepsy.

Our Educational Programs are meant to help ease the school experience for the child and family living with epilepsy. Susan Welby, our Director of Community Education & Engagement, has a message about our Educational Programs. 

"Providing accurate information about epilepsy and seizures to school personnel is key to helping people understand the spectrum of epilepsy. Sharing knowledge that seizures have multiple types, symptoms, frequency and recovery times for each student with the diagnosis is a key component. Teaching appropriate first aid response and sharing the impact epilepsy and seizures have on the student’s social wellbeing and ability to learn brings an understanding of the impact epilepsy may have on a student’s school day. Most of all, it is imperative to tell them it is ok to place few if any restrictions on the student living with epilepsy to allow them to achieve their potential. Giving school staff resources is a big part of the training: seizure action plans, seizure observation records & description sheets are a few of these tools. There is so much misunderstanding and outright misinformation about epilepsy. These trainings shed a bit of light and accuracy on the condition and it is hoped that teachers, specialists, paraprofessionals and all who come in contact with the student with epilepsy gain some insight into this complex neurological disease."  

 "I 💜 that the school district had the Epilepsy Foundation there today to make people aware of the signs and symptoms of different types of seizures. 💜💜"

For more information on our educational programs: please visit our website.

 

My Friend Matty: A Story About Living with Epilepsy

"My Friend Matty" is a book desgined to help educate children about epilepsy. "By edcuating children with epilepsy, and, even more importantly, their peers and all who deal with them, about the condition, and emphasizing that most children with epilepsy can fully participate in all aspects of childhood activities, the daily experience of children with epilepsy is greatly improved." -David E. Mandelbaum
Learn more about My Friend Matty- The Matty Project here.

Wallk With Us This Fall!

September brings the start of an exciting walk season! This fall we have serveral different walks around New England. Our walks bring out hundreds in support of a good cause. Find your favorite walk, run or race and sign up today!

September 28th: Freeport, Maine
October 12th: Lebanon, NH
October 13th: Merrimack, NH

Night at the Museum (of Science)! 

We are excited for our overnight event at the Museum of Science in Boston, MA on November 15th. The overnight event is for children between 4th-6th grade. Registration is now live!  
For more information click here. 

Young Leaders Network 

On August 31st, 15-20 Young Leaders Network members gathered at Natasket Beach in Hull, MA to close out the summer together. 



The next YLN meeting will be this Saturday at Berlin Orchards for an apple picking event! Follow the YLN on instagram for updates @efneyoungleadersnetwork

Ketogenic Diet Therapy 101: Info For Caregivers 

The ketogenic diet has been used for almost 100 years for people that have seizures that do not respond to medicine. Check out this guide to learn the basic guidelines of the diet. 
 

Looking Ahead 


ALL SHARE GROUPS HERE 

Matty Golf Tournament, Hope Valley, RI September 14

Freeport Maine Walk for Epilepsy September 28

Lebanon NH Walk for Epilepsy October 12

Merrimack NH Walk for Epilepsy October 13

Pawtucket RI Walk for Epilepsy October 27

36th Annual Boston Gala Save the Date: November 1, 2019, InterContinental Boston, honoring Dr. Cathy Phillips, featuring author Kurt Eichenwald

ALL EVENT LISTING HERE

Our Fastest Growing Fundraiser

Thanks to the dozens of people who hold Facebook fundraisers for us!  We are so grateful for you to share your special day with us!  To read about our current fundraisers, click here.

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Our mailing address is:
650 Suffolk Street, #405
Lowell MA 01854

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