Care Today Cure Tomorrow for CF

Have you seen Survivor contestant Luke Toki and his family in the news this week? They have been blown away by the incredible support they've received from the Australian community, and have decided to direct further donations to support other people living with cystic fibrosis (CF).

“Care Today, Cure Tomorrow” is a collaboration between Cystic Fibrosis WA (CFWA) and Telethon Kids Institute, two of Western Australia’s leading organisations supporting kids with cystic fibrosis.

Your donation will support CFWA’s services for kids and families and Telethon Kids Institute research to discover better treatments and a cure. Click here for more information.

Parents & Carers Dinner

Cystic Fibrosis WA members are invited to attend our annual Parents & Carers Dinner. This annual dinner is an opportunity to chat with other parents and carers, share stories and meet some of the CFWA team.

When: Saturday 19 October, 7pm
Where: Little Way 161 Broadway, Nedlands
Cost: $20 per person

To RSVP for this event please click here.

This event is made possible thanks to generous support from Carers WA and Lotterywest.

New Supporter Drive

We are on a supporter recruitment drive and you can help us!

Can you can spare an hour or so in early November to deliver some letters on your street?

It's easy to get involved, just let us know how many letters you'd like to deliver in your street or suburb and we'll give you everything you need to deliver them.

It’s a great way to get out and get some exercise, meet your neighbours and of course, a great way to raise awareness of CFWA.

For more information get in touch with Marnie at events@cfwa.org.au or on 08 6457 7333.

65 Roses Feedback Survey

CFWA has been selected to partner with the West Australian University Consultants (WAUC) charity, which empowers top university students to provide high-quality consulting services to not-for-profit organisations to help enhance their social impact.

This group of innovative university students have offered to help us plan for 65 Roses Day 2020, but they need your feedback! Please take 5 minutes to complete this survey and offer some constructive feedback so we can help make 65 Roses Day 2020 even better!

Click here to complete the short survey.

Early Learning Night - Save the Date

We are hosting an Early Learning Night Event for parents and caregivers to help prepare your family for starting school.

This event is open to any families who are starting school or day-care for the first time. We will have speakers from CFWA, Ronald McDonald House Charities Learning Program, and the School of Special Educational Needs: Medical and Mental Health. PCH team members will be there to help answer any questions that you may have.

Date: 13 November 2019
Venue: The Niche Building, 11 Aberdare Road, Nedlands.

More information will be coming soon, but make sure you save the date!

Sunshine for Siblings

CFRD Survey

Do you have CF and have CF related diabetes (CFRD)?

We are undertaking a short survey to formulate a proposal for potential subsidised funding for the FreeStyle Libre Flash Glucose Monitoring System or Continuous Glucose Monitoring (CGM) products for people living with CFRD and who are over 21 years of age and meet eligibility criteria.

We would appreciate 5 minutes of your time to complete this short anonymous survey.

Perth Royal Show Tickets Supporting CF

Are you heading to the Perth Royal Show? You can save 25% on your tickets and support Cystic Fibrosis WA at the same time!

Click here for more information and to get your tickets now.

Bunbury Outreach Dinner

The CFWA team is heading to Bunbury this October! Please come along and join us for dinner.

Date: Thursday 17 October
Time: 630pm drinks and nibbles, 7pm dinner   
Venue: The Bayview Bar, 15 Bonnefoi Bvd, Koombana Bay, Bunbury

RSVP’s are essential. Please contact Kathryn to RSVP at servicesmanager@cfwa.org.au or on 0419 926 277. Our infection control guidelines apply for this event.

Thank you to Telethon for making our regional outreach program possible.

Busselton Golf Day

The Rotary Club of Busselton Geographe Bay is once again hosting a corporate golf day to raise funds and awareness for CFWA. Join them for a fun ambrose game of golf for $200 per team (or $50 per player).

To find out more, register or sponsor this event, contact Chris White at chrisrotarybsn@iinet.net.au or on 0450 152 068.

Cape to Cape for CF

Old friends Rachael and Kathryn are challenging themselves to walk the 130km Cape to Cape track over seven days in November this year, to raise funds and awareness for cystic fibrosis.

Whilst the walk will be a challenge, it is nothing like the daily challenge faced by people living with CF. Rachael knows this all too well, having a son who lives with CF and as a board member of Cystic Fibrosis WA.

To hear more about their journey click here or to help them reach their $10,000 fundraising goal visit their Everyday Hero page.