Dear all.
We have been informed that Endo, the American manufacturers of Xiapex, have decided to discontinue delivery to Europe by the end of this year. They have already stopped supplying Asia and Australia.
This appears to be a purely commercial decision, there are no concerns about efficacy or safety. We know Sobi would have preferred to keep supplying Xiapex (no matter what Endo says), but they had no choice in the matter. This means that supplies will run out early 2020, and patients will likely not be able to have Xiapex treatment for Dupuytren's or Peyronie's after that in Europe.
The more patients email or contact Endo to let them know how they feel about this, the better. At the least I think they owe us an explanation, after we fought to get NICE to accept the treatment on the NHS and argued about how for some patients Xiapex is the best if not the only treatment for their condition. Endo can be contacted via their website
http://www.endo.com/contact
The letter Sobi and Endo are putting out, as well as the letter I typed to Endo, can be found here: http://dupuytrenssociety.blogspot.com/
I hope we can show them that we stand together worldwide as patients and will fight for better treatment access!
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