NOVEMBER NEWSLETTER

November was a busy month for The Unicorn Foundation with lots of news to share! From World NET Cancer Day on November 10, to the Adelaide NET patient education forum and COSA, we were super busy!

The International Journal of Cancer published an article on the unmet needs found within the neuroendocrine tumour community, with thanks to our CEO, Simone Leyden, and it was confirmed that the first results from the CONTROL NETs trial will be presented at ASCO GI next year.

A huge thanks to all of the people involved in fundraisers and events this month, we had an unprecedented amount of support and donations, which are all going back to assisting the lives of those affected by neuroendocrine tumours. Although we could not cover all of them this month, don't worry we will be updating more next month including sailing the southern oceans, head (and beard) shaving, marathons and more!

Next month we will also have be updating you all with 2020 Patient Support Dates as we head into the Christmas break......

Read on for all the details...

WORLD NET CANCER DAY 2019

Sunday 10 November was World NET Cancer Day and again the Unicorn Foundation was a proud contributor of this global event. 15,000 branded coffee sleeves were distributed to 26 cafes around Australia who served their coffee in the ‘Let’s Talk About NETs’ branded coffee cups and encouraged conversation amongst the community.

The Unicorn Foundation’s Simone Leyden featured on the National radio station, Smooth FM throughout their morning news reads at 6.30am and 7am, helping to raise awareness about NET Cancer Day and the often misdiagnosed symptoms of the disease to their 1.7 million listeners, twice!

Globally the #letstalkaboutnets campaign reached over 12 million impressions on social media this year. Another hugely successful campaign that we are so proud to be a part of.

Special mention to our Adelaide Support Group, who hosted a hugely successful event to 120 guests at Picolli Piatti café in North Adelaide. Close to $10,000 was raised at this sold-out event. Thank you to all those involved including the wonderful organising committee, Kathy Hatzi, Jackie Barreau, Jess Mercurio, Diana Rundle, Marilyn Little and Anna Batt. Job well done!

Another special mention goes out to Bronwyn Wallace who hosted a High Tea fundraiser at Sass@Bowers in Tarree on World NET Cancer Day. Despite nearly having to cancel due to the devastating bushfires surrounding the town, Bronwyn pushed on and went on to raise close to $2,000. To show our appreciation for the local community the Unicorn Foundation are splitting the proceeds with the local community to support them through this devastating time.

We look forward to another successful #LetsTalkAboutNETs campaign in 2020, thank you to all who were involved.

RESEARCH

International Journal of Cancer Publication

Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals, published in the International Journal of Cancer.

READ MORE HERE »

First results of CONTROL NETs trial to be presented at ASCO GI 2020

We are pleased to report that the Unicorn Foundation supported trial, CONTROL NETs, which finished recruiting at the end of last year has been accepted for presentation at ASCO (American Society of Clinical Oncology) GI (Gastro-Intestinal) meeting 2020.

READ MORE HERE »

Clinical Trials and Neuroendocrine Tumours

The Unicorn Foundation wants to see more clinical trials open for NET patients. We also want to understand what barriers stop people from participating in them. Your responses to this survey will help us work with our partners to achieve this and we value your input.

READ MORE HERE »

FUNDRAISING

There were so many wonderful fundraising events throughout the month that we were unable to list them all in this month's newsletter. Below is a small collection of all the amazing events that took place, but we thank all who participated.

Please head to the Fundraiser section of our website to view all campaigns and see what's happening:

VIEW ALL FUNDRAISERS HERE

Thank you WA Patient Margaret Powell for her Sunday Market fundraiser

Thank you Margaret Powell and her support crew for a wonderful Sunday market in Bunbury WA.

Margaret wishes to thank all those who helped her with the event.

READ MORE HERE »

Shauna and John Parsons approach the end of their 1000km Trek for NET funding

After setting out on October 10, along the Bibbulmun Track, Shauna and John Parsons are now only 200km from Albany and the end of the 1000km track.

READ MORE HERE »

Unicorn Foundation Car Show organised by Mark Camilleri and friends

Gamekeepers Secret Country Inn and the Geelong Exotic Car Club (GECC) played host to the first Unicorn Foundation car show on Sunday,17 November.

With around 250 cars in and out on the day, everyone agreed the variety of cars was amazing to look at. From novelty cars such as the popular Barbie car, through to Mustangs and everything in between, it was a feast for the eyes.

READ MORE HERE »

Despite bushfires, Bronwyn raises awareness and funds on NET Cancer Day

On November 10, Bronwyn hosted a High Tea at Sass@Bowers, as part of World NET Cancer Day.

Despite nearly having to cancel due to the devastating bushfires in the town, Bronwyn pushed on and the sold-out event went on to raise close to $2,000.

READ MORE HERE »

Annual Craft and Gift Show, another success for our QLD Unicorns

The wonderful patients of Brisbane have once again excelled at the annual Brisbane Craft and Gift Show. This was the 5th year in a row for these incredible women, including the ever motivated Fran Fitch, Dee Connolly and Wendy Terblanche.

READ MORE HERE »

PATIENT SUPPORT

Adelaide NET Patient Education Forum

Our final NET Patient Forum for 2019 was held at SAHMRI at Adelaide University on Thursday, 14 November 2019. This was very well attended by more than 40 patients, carers and health professionals. The forum was also videoed for those who could not attend, and will be available on YouTube soon.

46th Annual Clinical Oncology Society of Australia (COSA) Meeting

COSA held its 46th ASM in Adelaide 12 – 14 November 2019. There was an excellent attendance of multidisciplinary practitioners at the conference which was themed “Putting Precision and Personalisation into Practice".

READ MORE HERE »

First World NET Forum

INCA is proud to be associated with the first ever World NET Scientific Forum to take place next year at the annual European Neuroendocrine Tumor Society (ENETS) Conference in March in Barcelona. Unicorn Foundation CEO and INCA President, Simone Leyden has been actively involved in the Steering Committee, planning this inaugural meeting.

READ MORE HERE »