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December 2019 Edition

Tuesday, December 3, 2019

GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Celebrated on the Tuesday following Thanksgiving. This year, the date falls on December 3, 2019. As a supporter of our organization, we ask you to keep the Hampton Roads Prostate Health Forum and its mission in mind as you are considering avenues for charitable giving this year. We appreciate your support!
I'd like to donate to the Forum

NEW SERIES:
CANCER SURVIVOR STORIES

In November we launched a new series by introducing members of our Community Advisory Board whose cancer journeys have prepared them to be sensitive to and mindful of the impact of cancer on the patient and the family. 

This month we are pleased to introduce another member of our team whose story reminds us of the importance of annual tests & exams and early detection.

CONNIE BUSH

Community Health Educator, Sentara Cancer Network

Not unlike others who have received the news “cancer”, I was surprised and taken aback.  Faithfully every year, for the past 20 years, I’d go for my annual mammogram screening resulting in no suspicious findings.  In July 2018, since I had no symptoms, I thought about following the recommendations of some health care providers, researchers, and advocates that recommend women 55 years and older be screened for Breast Cancer every 2 years.  By August 2018, I’m thankful my internal dialog kept reminding me of the education I provide to the Peninsula community informing them to have discussions with their primary care physicians, and that the gold standard for early detection of breast cancer is an annual screening mammogram starting at age 40.

I went for my annual screening mammogram the last week in August.  After a Call Back, Ultrasound, and Biopsy, I was informed that I had late Stage 2 Breast Cancer.  If I had skipped my annual screening last year, my options and outcomes would have been more limited.  Thankfully, I followed the education I provide to our community. Remember to get your annual mammogram.  It could save your life!

Community Engagement and Informative Events

UPCOMING EVENTS

Over the next 11 months, the Hampton Roads Prostate Health Forum will be helping to facilitate monthly Educational Seminars to provide timely and valuable information about the three studies included in this email, RESPOND, COMPPARE, and the METASTATIC PROSTATE CANCER PROJECT. 

We are happy to report that two men who attended the Nov. 23rd seminar signed up to participate in the RESPOND study. 

These Educational Seminars are being hosted by Riverside Cancer Care Center.

Read on below for information about each of these three studies. 
Register for a seminar

UPCOMING EVENTS

Dec. 21 
Next Riverside Educational Seminar

NOVEMBER EVENTS RECAP

The Annual ZERO Prostate Cancer 5K Run/Walk took place on Sunday, November 17, 2019. Runners braved the elements to raise money to eliminate prostate cancer.
Hampton Roads Prostate Health Forum President Charlie Hill and Virginia Beach Mayor Bobby Dyer agreed to meet and discuss other prostate cancer activities and events in Virginia Beach.
Serving the Community: Hampton Roads Prostate Health Forum’s Prostate Cancer Warriors helping the community by giving Thanksgiving boxes of food to the needy. At least 270 boxes of food were distributed to members of the community in need at The Basilica of St. Mary in Norfolk.

(Left) Hampton Roads Prostate Health Forum Warrior, Lawrence Davis. (Center) Warrior Terrance Afer-Anderson and Knight of Peter Claver, Isaiah Robinson.

NATIONAL STUDIES

Your Oppportunity to Answer the Call

RESPOND is the largest research study ever to look for answers to the prostate cancer problem for African American men.

RESPOND is working with African American community leaders to make sure the community's voice is heard.

RESPOND needs 10,000 African American men with prostate cancer to complete a survey. RESPOND needs many of those men to also give saliva or cancer tissue samples. 

RESPOND participants will receive $10 for completing the survey, $20 for providing a saliva sample, and $20 for giving permission to access stored prostate tissue samples.

HOW TO JOIN RESPOND: Complete the survey by mail or online: www.RESPONDStudy.org
 

There is a new study called COMPPARE. It stands for "A Prospective 
COMparative Study of Outcomes with Proton and Photon RAdiation in PRostate CancEr. This study is funded by the Patient-Centered Outcomes Research Institute (PCORI) and led by Dr. Nancy Mendenhall at the University of Florida. COMPPARE is asking 3,000 prostate cancer patients (ages 30-80) across the U.S. who have chosen to be treated with proton therapy or photon therapy to answer brief surveys regarding treatment choice, quality of life, and side effects for at least three years.

Patients who choose radiation therapy want to know which radiation option is best for them in treating their prostate cancer, photon or proton. However, the effects of photons versus protons on quality of life, organ function, and prostate cancer cure rates have not been directly compared in a large, multi-institutional trial. 

COMPPARE needs 300 African American men of the total 3,000 men to complete its survey.

COMPPARE participants will receive up to $250 for completing surveys before radiation begins, during treatment, and at follow-up visits.

HOW TO JOIN COMPPARE: visit http://comppare.org or email them at comppare-admin@ufl.edu.
Learn about the COMPPARE Study

The Metastatic Prostate Cancer Project (MPCproject.org) is an patient-partnered online research study for men with advanced and/or metastatic prostate cancer. The goal of the project is to generate linked patient-reported, clinical, and genomic data that is de-identified to protect patient privacy and then shared widely with the research community to speed discoveries in prostate cancer.

Both diagnosis and survival rates for metastatic prostate cancer vary a great deal, particularly across racial and ethnic backgrounds, and researchers still do not fully understand why. The MPCproject hopes to enroll and learn from men across the US and Canada, and particularly alongside those who are underrepresented in research to better understand the basis for these differences.

Participation in the MPCproject is easy:

  1. Visit MPCproject.org and click “count me in” to complete a short online form with optional questions.

  2. Fill out an online consent form that gives permission for the study team to send a simple saliva sample kit, obtain copies of your medical records, and provide an optional blood sample and/or stored tumor tissue (if available)

 Find out more at MPCproject.org

KNOWLEDGE:

  •  Early stage prostate cancer that has not spread has no symptoms
  •  A PSA test may indicate prostate cancer early before it has spread. 
  •  The digital rectal exam (DRE) may also indicate prostate cancer before it has spread.

FAITH:

People of faith have felt the need to express their experience with and belief in a much higher power especially in times of trouble such as learning they have cancer. Proclaiming the good news seems to serve most cancer patients well as it helps with their psychosocial and spiritual well being.

EARLY DETECTION:

  • Early treatment of prostate cancer may help some men avoid major problems.
  •  Early treatment of prostate cancer may help some men live longer.
Copyright © 2019 Hampton Roads Prostate Health Forum, All rights reserved.


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