2019 Grants, Year End Donations, Gifts, 2020 5Ks + more View this email in your browser

Wishing you Happy Holidays and a heart healthy New Year! We wrapped up 2019 by making two grants to advance research. In addition to our annual grant to Mayo Clinic SCAD Research Program, we awarded a grant to Minneapolis Heart Institute Foundation. To date we have donated a total of $965,000 to research on SCAD! Thank you to everyone who has raised awareness and funds for much needed research. Research is expensive. Donations, big and small, are always appreciated.

In this issue...

Our 2019 Grants Totaling $165,000
End-of -the-Year Donations
Unique Gift Ideas
2020 SCADaddles - National 5K registration now open
SCAD Angels
French Facebook Group
Instagram & LinkedIn

SRI Awards Two Grants in 2019

The Board of Directors is pleased to announce that we awarded two grants for research on SCAD, totaling $165,000 in 2019. This brings our total donation to SCAD research, since our inception in 2011, to $965,000!
This year’s grant recipients are:

Mayo Clinic SCAD Research Program
Minneapolis Heart Institute Foundation

Background Information
Mayo Clinic was the first and only institution that had begun a research program, focused exclusively on SCAD, when SCAD Research, Inc. (SRI) started in 2011. We are thrilled by the progress that has been made at Mayo Clinic under the leadership of Dr. Sharonne Hayes with the financial support of SRI.

Mayo Clinic
To ensure that Mayo Clinic can continue its ongoing internationally recognized research on SCAD in 2020, our 2019 grant to the Mayo Clinic SCAD Research Program is $150,000. A significant portion of the money donated to Mayo Clinic has been used to generate very expensive data to learn more about the role of genetics in SCAD.

As a result of the publications from Mayo Clinic, interest in SCAD has grown and additional facilities have also begun to study SCAD. Recognizing the value of having additional research groups study SCAD, the SRI Board decided to offer a new grant up to $25,000 to another research program. This additional opportunity for a grant was announced on Facebook and in our e-newsletters.

Minneapolis Heart Institute Foundation
We received only one grant application from the Minneapolis Heart Institute Foundation (MHIF), under the leadership of Dr. Scott Sharkey, to evaluate the long-term outcomes of SCAD patients treated with stents and bypass surgery. We are pleased to announce a $15,000 grant to the MHIF to fund this study.

While we had set a hefty goal to have donated a total of one million dollars by the end of 2019, we know that we will far exceed one million dollars by the end of 2020!

Thank you to everyone who made this year’s grants possible.

SCAD Research, Inc: WE Make Research Happen Now!

Year End Gift

There’s still time to make an end-of-the-year donation to SCAD Research, Inc. through our website. In addition to making a general donation, donations can be made in honor or in memory of someone.

You can also make a donation to SRI by texting FUNDRESEARCH to 44-321.

We are an IRS approved 501(c)(3) charity established in 2011. In 2018 (the most recent year with financial data available) 96% of our revenue supported research. We have received the GuideStar Platinum Seal of Transparency in 2018 & 2019.

Unique Gifts for the Holidays

Looking for unique gift ideas? Click these links for wonderful gifts that aren't available anywhere else. Plus, your purchases will help to advance research!

SCAD Clothing and Accessories – a wide variety of clothes for men, women, children and accessories – we receive 20% of purchases
SCAD Courage Dear Heart enamel pins – two different attractive enamel pins – we receive 80% of purchases
Medical ID Jewelry through Lauren’s Hope – medical ID jewelry for men, women & children – we receive 10% of purchases You must use our unique link http://bit.ly/1OkONQt in order for SRI to receive 10% of your purchase
Cards w Cause Sets – beautiful, handmade sets of cards with matching embossed envelopes, 20 designs available – we receive 100% of profits
Heart Inspired SCAD Collection by Solsiss Jewelry donates 10% of profits from their lovely bracelets and necklaces, several designs are especially for survivors and SCAD Angel families

2020 5K SCADaddles^© Plans

Plans are underway for our 2020 5K fundraisers. We are excited to announce the following locations:

Michigan, May 16 – NEW, fun run/walk, Harrison Charter Township (approx. 20 mi from Detroit)
National/Chicago area, June 13 –9^th annual run/walk in Wheaton, IL Registration NOW open. Holiday Discount $5 off registration thru 1/1. Give registration as a gift - go to National Registration & click Buy as Gift.
Minnesota – Fall –3^rd annual fun run/walk, Minneapolis/St. Paul area
West Coast/CA – Fall –6^th annual run/walk, San Diego area
Lehigh Valley/PA - Fall - 5th annual run/walk in Center Valley area

Registration opening soon for Michigan SCADaddle. We’ll announce dates for the other 5Ks when finalized. We are hoping to add a few additional locations too!

Sponsors play a key role in helping to raise money for research. If you know of a business/organization/individual who might be interested in sponsoring a 5K, please email scadinfo@scadresearch.org.

Interest in helping at one of the 5Ks? Please email us. Many hands are needed. You can help remotely too!

Thank you to everyone who have helped to organize SCADaddles this year and/or in previous years. SCADaddles are our major fundraisers.

The National/Chicago area 5K SCADaddle registration is now open. You can give a gift to the National 5K. Click National Registration then, click the Buy as a Gift button.

Shopping Amazon during the holidays? Shop AmazonSmile instead using our unique link https://smile.amazon.com/ch/45-2678388. SRI automatically receives 0.5% of your eligible purchases at no additional cost to you.

SCAD Angels & the Holidays

The loss of a loved one is difficult anytime. It is even more so during the holidays when so much focus is on celebrating with family and friends.

Several years ago, we established a SCAD Angels Facebook group for families who lost someone to SCAD.

If you have lost someone to SCAD and haven’t already joined, please join our SCAD Angel group. It is a small, closed group administered by Susan Edelman & Jan Saillard who lost their loved ones to SCAD. You can participate as much or as little as you like.

Please contact scadinfo@scadresearch.org if you have any questions/concerns.

French Facebook Group Established

Caroline Landry, a SCAD survivor from France who now lives in Colorado, has set up a FB group esp. for those who speak French. Caroline asked us to share the following post.

Appel à tous les français et amis francophones!!

Sachez que SCAD Research Inc. possède une branche française. Nous avons une page Facebook que vous pouvez partager sur vos pages Facebook personelles ainsi qu’avec votre famille, amis, etc. Nous sommes également en partenariat avec le groupe SCAD France qui est l’équivalent de SCAD survivors pour la communauté française et francophone. Nous essayons d’unir nos efforts pour aider et accélérer la recherche concernant SCAD. Alors à l’occasion, rejoignez nous sur la page “Soutien français à la recherche et aux personnes concernées par SCAD” et faites passer! Merci de votre soutien! https://www.facebook.com/Soutien-français-à-la-recherche-et-aux-personnes-concernées-par-SCAD-2795435583818110

Thank you Caroline for your willingness to organize our French FB group and reach out to SCAD supporters!

SCAD Research Now on Instagram and LinkedIn

Did you know that SCAD Research, Inc. is now on Instagram and LinkedIn? Help spread awareness about SCAD and the need for research by following/connecting with us. Don't forget to encourage your family and friends to do the same.

Thank you survivor Tara Finck for raising awareness and funds through these social media outlets.

You can also find us on Twitter and Facebook.