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Just a couple of things to share with you as we wind down for the holiday season.

A few reminders: 

If you want to submit anything to this newsletter please email info@nrbdo.ca.

If you have board members or others who wish to subscribe to this newsletter they can do so right here.

If you wish to unsubscribe or change the email that you receive these at, scroll right down to the bottom and update your preferences. 
1. New Position Statement + Letter to Deputy Ministers of Health

As decided at our Fall Forum through a motion, the NRBDO has developed a position paper on the need for all fractionated products and their replacements to be provided universally and free of charge to patients through the CBS and Hema-Quebec formularies. 

The position paper has been adopted by the board and was presented by David Page at the CBS open board meeting on December 6th.

Also as decided at the Fall Forum through a motion, this position paper has been sent to the Deputy Ministers of Health for each province and territory. 
 

  • The letter to Deputy Ministers can be viewed here.
  • The position paper can be viewed here.
2. Save the Date! 2020 Spring Forum and Fall Conference
Spring Forum:
April 25-26, 2020 in Toronto

Fall Conference:
Tentatively booked for November 6-7, 2020 in Toronto
(note this is a Friday and Saturday, not a Saturday and Sunday as usual, to accommodate our conference audience).

Please add these dates to your calendars.
Wishing you happiness and health throughout this holiday season, and a Happy New Year!
Copyright © 2019 Network of Rare Blood Disorder Organizations, All rights reserved.


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