What's New in the Project?
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Welcome to 2020, and thank you to Melissa Bruno, Palliative Care Link Nurse Program Coordinator, for letting us know how our work is helping her team:
“I just wanted to give you feedback from the numerous staff who have completed your modules. They have found that each module has been fantastic and very informative. They particularly found helpful the videos and role playing in the communication module. I believe it has provided them with a sound knowledge base prior to them spending a full day education session with us, so thank you for making them so comprehensive.”
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Sector News
- Spiritual Health Association (SHA) is the peak body enabling the provision of quality spiritual care as an integral part of healthcare. SHA have developed new Guidelines for Quality Spiritual Care in Health in response to the need to align spiritual care in health to the National Safety and Quality Health Care Standards 2nd edition, and the National Palliative Care Standards 5th edition 2018. The guidelines provide a framework to support a consistent approach to safe and high-quality spiritual care for patients, families, carers and staff.
- Accessing quality palliative care for people from under-served populations or people with complex needs is crucial. A recent paper, Exploratory Analysis of Barriers to Palliative Care – Summary Policy has been released for nine specific vulnerable population groups in Australia and how the palliative care sector can improve quality of care for these groups. The populations included are:
- Aboriginal and Torres Strait Islander peoples
- People from culturally and linguistically diverse backgrounds
- People who identify as LGBTI+
- People experiencing homelessness
- Veterans
- People who are incarcerated
- Care leavers and people affected by forced adoption
- People with disability
- Refugees
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Latest Evidence
- More attention and training must be delivered to clinicians so that they are better prepared to initiate discussions and to view patient death not as a result of a personal failure to deliver quality care, but as a consequence of serious illness. Standardised training will ensure physicians are better prepared to discuss end-of-life priorities and the dying process with patients, to inform patients’ families of their deaths, and to ensure patients are well-informed at the end of life.
Sutherland R. (2019). Dying Well-Informed: The Need for Better Clinical Education Surrounding Facilitating End-of-Life Conversations. The Yale journal of biology and medicine, 92(4), 757–764.
- Lack of understanding of the role of palliative care and poor availability of culturally safe specialist palliative care services impact on Indigenous people's end-of-life decision-making. Ceremonies, education and care roles involving Aboriginal people offer potential means for effectively engaging Aboriginal people in preparing for death and dealing with grief.
Thompson S, Lyford M, Papertalk L, Holloway M. (2019) Passing on wisdom: exploring the end-of-life wishes of Aboriginal people from the Midwest of Western Australia. Rural Remote Health. Nov;19(4): 5444. doi: 10.22605/RRH5444. .
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End-of-Life Essentials 'My Toolkit'
'My Toolkit' includes state-specific resources across eight professional groups to help you maintain your knowledge about end-of-life care.
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If you have previously downloaded 'My Toolkit' and received an email to participate in an evaluation, we'd really appreciate your feedback.
Thank you for your ongoing commitment to end-of-life care.
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For your Notice Board
Each month we feature a fact sheet, poster or other resource to print. Our promotional resources are available anytime for download.
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Next Newsletter
March 2020
Please forward this newsletter to others who may be interested, subscribe to the newsletter or contact us on eolessentials@flinders.edu.au for any queries.
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