Parkinsons News Today Weekly Forum Digest

Did your tremor come on slowly or did it manifest itself fairly quickly?

Feb 06, 2020 05:51 am | Jean Mellano

Replies: 29

I was diagnosed in 2015, poor handwriting, poor fine motor skills, fatigue and bradykinesia were identified then.  Left side affected the most.   Just recently, one or two times a day, my left pinkie shakes depending on the position my hand is in.  also experiencing muscle twitch on inside palm below left pinkie around same time. If you have tremor, did it come on quickly or gradually?

Your Amantadine Experience?

Feb 05, 2020 06:54 am | Cemal

Replies: 0

I am 44 years old. I have been fighting parkinson for 1 year.

I started with azilect for 1.5 months 6 months ago. I have not seen any benefit.

But when I left azilect, my complaints increased and started tremors and shaking on my right feet when I had no tremors.

And now, Bradykinesia in my right arm that impressed me the most. I am young, I have difficulty in doing my job and profession.  I don’t want to start levadopa/carbidopa  for resistance in the future. I avoid and afraid these treatments.

Now my Neurologist recommended amantadine for my symptoms and I’m afraid it would make me worse. Anybody can tell me experience about amantadine using in PD .

Use of continuous release (CR) Carbidopa levodopa.

Feb 05, 2020 06:05 am | Garrett McAuliffe

Replies: 13

I am trying to use continuous release (CR) carbidopa levodopa at times when I experience stress or an upcoming social situation, as vaguely suggested by my neurologist. So before teaching I have tried adding a 125/100 CR to my usual dose of IR (immediate release). It hasn’t worked the first time I tried it when I had to teach at about 4 PM and I took my CR dose along with my regular IR dose about an hour before class. Has anyone had an experience with using CR combined with their regular dose for upcoming social situations or performances they have to give?What do you know of any guidelines and experiences with use of CR? I do take one and a half tabs of CR when I’m going to bed and another tab with my usual dose of IR in the morning when I wake up. I assume that’s helping me get started in the morning. Perhaps I should give up trying to go to social situations or trying to teach, as I am off during much of those times I’m trying to function under some pressure. It seems that stress trumps the medication!

CBD Oil and Parkinsons

Feb 05, 2020 03:09 am | Mary Beth Skylis

Replies: 2

I’m a Colorado-based athlete, and I recently discovered CBD oil’s recovery benefits. As a rock climber, I occasionally suffer from tendinitis or general muscle soreness. I’ve been taking a CBD tincture for less than a week, and my current symptoms are nearly gone.

While I was speaking to a local sales rep, he mentioned that regular use of a CBD tincture has dramatically impacted people with Parkinson’s. This information led me to wonder: Have any of you tried CBD oil? If so, in what form? And has it made a difference for you?

CBD Tincture and Sleep

Feb 05, 2020 12:00 am | Mary Beth Skylis

Replies: 0

My Dad (diagnosed in 2013) has always slept lightly and for less time than average. So it didn’t seem surprising that his sleep would suffer after being diagnosed with Parkinsons. But I’ve wondered if a CBD tincture that’s designed for deep sleep could help him rest more peacefully. Have any of you used a CBD tincture that’s designed for sleep? Did you see benefits? How regularly did you use it?