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The Clotting Connection:
An Online Newsletter for Families with Bleeding and Clotting Disorders

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COVID-19 Adjusts HTC Schedules
 

News about the COVID-19 outbreak is changing rapidly, but our HTC is doing all we can to care for patients and maintain safe protocols for all. Dr. Mike Wang, our co-director, and the entire staff have been monitoring the situation tirelessly. Please also see his letter of March 13, 2020 now posted on our website. Many changes will occur in the coming days and weeks, especially as national, state, local, campus, and hospital policies are changing daily. We will do our best to keep you updated. Please consider following us on Facebook (facebook.com/ColoradoHTC ) or Twitter (twitter.com/HTCColorado) and sign up for our newsletter at http://eepurl.com/bnszoz in order to receive the most updated news. 

Currently the building where the HTC is located is locked 24/7 as is the remainder of the Anschutz Medical Campus except for hospitals. Our HTC staff are alternating from being on-site and off-site, and we are only seeing acute patients from 9 am to 1 pm who are not sick and do not have any respiratory symptoms. These are by appointment only because of limited staff and the need for many layers of screening. Patients needing to be seen must call and schedule a visit, and once at the HTC, must call the pager number posted on the exterior doors to then be allowed inside and be screened for respiratory illness. If you need to be seen more urgently, please discuss with a HTC clinical staff who may instruct you to go to your nearest emergency room. In a life-threatening emergency always call 911. Our world has changed and we must now balance infectious exposure risk individually. 

Please let us know in advance if anyone attending an acute clinic has ANY symptoms of a cold, flu, allergies, or other illness. We will also need to know information about the health status of close contacts. We need to take precautions for both patients and staff, as well as any others visiting our clinic. We are screening all visitors for fever and other symptoms as they arrive. The HTC staff has been working from home and clinic to make sure our patients have reliable health resources. We cannot operate without healthy staff members.   

During this extraordinary time, we know there are a lot of questions and concerns for patients and families. Please follow the local, state, and national guidelines to reduce your chances of exposure or affecting others who may be at risk. Be the best advocate for you and your family, and do your part at this time of national emergency. This includes washing your hands for 20 seconds with soap and water, maintaining social distancing, avoiding touching your face, and staying home if you are sick. 

The National Hemophilia Foundation still suggests continuing to maintain a week supply of factor medication for hemophilia patients. Pharmaceutical companies who provide factor have sent out updates sharing that there is no interruption to the supply of factor and that there is no need to stockpile as supply chains are functioning normally. If you need medication, please simply call our pharmacy to discuss your situation with us directly. At the moment, no one is suggesting accumulating excess medication. 

A separate issue has also been brought forward recently about whether bleeding and clotting disorders patients are at a higher risk to contract COVID-19. We do not have credible evidence that people with bleeding or clotting disorders are at an increased risk of severe COVID-19 illness, unless they also fit within another established risk group. Please see Health and Wellness Updates from Dr. Valentino on the NHF website. This also has useful links to keep current. There is no evidence that people taking anticoagulants are at an increased risk. Moreover, the WHO and others are not recommending against using NSAIDs at recommended doses. What we have seen, and are learning rapidly, is that we must all do our part to control this pandemic. Social distancing is the most immediate and effective tool that we have. Stated in another way, preventing infection with SARS-CoV-2 ultimately prevents the severe illness of COVID-19 and the spread of the virus in our communities.

Please refer regularly to the HTC webpage, social media, and newsletter for updates on our clinic. More questions? Our phone lines for both clinic and pharmacy continue to be answered and monitored. We are working in an increasingly constricted environment. We are here for you. Please be careful and be safe.
 
Graphic: cdc.gov. Do your part by following the CDC guidelines of regularly washing hands for 20 seconds with soap and water, maintaining social distancing, avoiding touching your face, and staying home if you are sick.
See details at www.coronavirus.gov

 

March is Social Work and Child Life Month

Get to Know our
Psychosocial Team!

Emily Wheat, PhD
Licensed Clinical Psychologist























What I enjoy most about working with our HTC population is the opportunity it provides to get to know each of YOU, our patients and families seeking care at our center. 
 
Our HTC serves a wide range of individuals who hail from Colorado, Wyoming, Montana and beyond. With such a diverse population, you can imagine how different each of my patient interactions are. Although I never know what life experiences someone may share, I’ve been pleasantly surprised to see how the individuals and families we serve have embraced me and our Psychosocial Team. 
 
Fun fact: Although I enjoy pro football, I prefer a to cheer on the Crimson Tide.  
- Emily Wheat

Whitney Tedeschi, LCSW
Licensed Clinical Social Worker


I enjoy working with the hemophilia patient population because it allows me  to get to know patients and families in a unique setting over time. 

I love seeing and supporting patients work towards goals, develop strengths and overcome challenging times.

Fun fact: I love the mountains most in the summer and enjoy long days spent fly fishing with my husband. 
- Whitney Tedeschi
 
Bryn Dunham, LCSW
Licensed Clinical Social Worker


I most enjoy working at the HTC because I build relationships with patients and families over an extended period of time, allowing me to follow families through both challenging and celebratory times throughout their lives.
 
Fun Fact: One of my life goals is to travel to all seven continents.  I’ve been to four so far.  Ask me next time you see me and I’ll tell you which ones I have left!
-  Bryn Dunham

Kim Richfield, CCLS
Certified Child Life Specialist


This is such an exciting time to be working with patients, siblings, and parents of kids with bleeding disorders. Having this diagnosis has its challenges, but there are new treatments out currently and on the horizon, and there is a lot of hope.
 
I really enjoy seeing the resiliency of this population and the desire to live life without limits!
 
Fun Fact: I love adventurous activities, like Via Feratta, canyoning, hang gliding, and skydiving
-Kim Richfield
 
 

Find Us Online
We regularly update our website, post at Facebook, and send out Tweets to keep our patients and families informed of news, various activities, and what's new at our clinic. If you haven't already, like our page on Facebook, follow us on Twitter, and check in regularly at our web page. 

  
 

Mental Health Awareness During a Global Pandemic

By Bryn Dunham, LCSW
The world today feels very different to me than it did even last week. With the bombardment of national, international, and local information regarding COVID-19 in every corner of our lives, it can be hard to find any source of peace and contentment.  Social distancing can feel like social isolation, especially in this uncertain time.  The hemophilia community is a community that relies closely on each other, embodies resiliency, and has overcome numerous obstacles.  COVID-19 is another obstacle to overcome.
 
While the information available can feel overwhelming, some actions and practices can lighten the emotional burden of this information overload.  These ideas are adapted from recommendations to manage stress and anxiety offered by the Centers for Disease Control and Montifiore Medical Center:

Avoid excess exposure to media coverage – Schedule times to check the news, using reliable news sources, and without other distractions so you can absorb the information offered. If listening or reading the latest information feels overwhelming, give yourself permission to stop.  Increase self-awareness of how much is too much.

Take care of your body – eat balanced meals, exercise, get plenty of sleep.  Use YouTube and other apps for exercise regiments if you are used to going to the gym.  Go for a walk or bike ride when the weather is nice.

Make time to unwind and relax, keeping in mind that strong emotions will fade – it is traumatic to continue to watch images and broadcasts of crises.  Try to distract yourself with hobbies you may not have had time to try before this time.  Try something new or rely on old favorites for relaxation (for me, it is reruns of The Office).  
 
Connect with others – social distancing does not mean social isolation.  Though social media can be overwhelming in this time, it also offers us great opportunities for connection without physically sharing the same space.  Text, call, Facetime, or Skype with friends and family.  Share concerns with those you love but also text positive messages.  Share jokes and funny experiences.  Laughter can be the best medicine.
 
Maintain Hope – make a list of what you are grateful for and share that list with those you care about.  Gratitude is a powerful force in the face of uncertainty. 

The psychosocial team at the HTC is here to support you and your families through this crisis and beyond.  If you need extra support, please contact one of us; our emails are the best way to reach us and are listed below.
 
Another great resource is the 24/7 Colorado Crisis Hotline (phone: 844-493-8255).  If you are experiencing severe depressive or hopeless symptoms, please go to the nearest emergency room immediately.

We are looking forward to when we can see each of you In person again in clinic!

Bryn Dunham, LCSW
bryn.dunham@cuanschutz.edu
 
Kim Richfield, CCLS
kim.richfield@cuanschutz.edu
 
Whitney Tedeschi, LCSW whitney.tedeschi@cuanschutz.edu
 
Emily Wheat, Ph.D
Emily.wheat@cuanschutz.edu  







Mark your calendars for these upcoming dates:

Please note. These dates may be tentative due to the outbreak of COVID-19. Please check appropriate websites for confirmation of events. We will update as we learn of changes or cancellations.
 
Apr 17:  World Hemophilia Day
May 19-20: Outreach Clinic—Grand Junction, CO
May 25: Clinic, Pharmacy, and Admin closed for Memorial Day
Jun 6-7: NHF CO Family Camp
Jul 3: Clinic, Pharmacy, and Admin closed for Independence Day
July 10-11: Leadership Weekend at Mile High Summer Camp
July 12-17: Mile High Summer Camp
Aug 22: NHF CO Unite for Bleeding Disorders Walk


For more details, head to our calendar of local and national/international events on our website. Each event will link to more information on each event. Our holiday/closure schedule and after hours contact info can also be found on our website. We also post updates on Facebook and Twitter.

News
We post select links to news at our website and on social media. A few recent headlines:

Medexus Acquires IXINITY from Aptevo
 
Survey of Healthcare Providers Shows Obesity a Likely Factor in Joint Bleeds
 
MASAC Addresses Concerns about Coronavirus and Bleeding Disorders
 
Valrox, Gene Therapy for Hemophilia A, Accepted for Priority Review by FDA

Novo Nordisk Launches Esperoct, Long-Acting Recombinant for Hemophilia A 

You can find these and more at our website Newsroom and News Archives.

Newsletter
 
If you received this newsletter in your email box it is because you signed up to receive our online newsletters. Please feel free to forward it to family and friends who might be interested in the content. 
Direct access to the subscription page can be found here.  If at any time you wish to unsubscribe, there is a link at the bottom of the email.

We will have printed copies of this content available in the clinic and a link to the digital version at our website. If you have questions, corrections, or feedback, please contact us at HTC.Newsletter@ucdenver.edu.

Copyright © 2020 University of Colorado Hemophilia & Thrombosis at Anschutz Medical Campus, All rights reserved.
Clotting Connection-March 2020

Our mailing address is:
HTC.Newsletter@ucdenver.edu
13199 E. Montview Blvd., Suite 100 Aurora, CO 80045
 
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Hemophilia and Thrombosis Center | University of Colorado School of Medicine · 13199 East Montview Blvd. #100, Mailstop F416, Aurora, CO, United States · Aurora, CO 80045 · USA

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