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The CRE is an NHMRC funded venture between two of the leading hubs in stroke research in Australia - The Florey Institute of Neuroscience and Mental Health in Heidelberg and the Hunter Medical Research Institute in Newcastle.
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We hope this newsletter finds you well and keeping safe in our new world dealing with COVID-19.
Some research work can be undertaken while working from home but many projects have been paused as the health and well-being of their potential participants is paramount.
Due to an urgent need for telehealth information Coralie English and clinicians worked with the Stroke Foundation to collate resources and put them online. Read about this later in the newsletter.
Above all, please stay safe but connected as we see how this viral situation plays out.
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'Including Everyone in Stroke Research' workshop - 25 Feb 2020
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Even with a few last minute changes to the program our Including Everyone in Stroke Research day went off well. We are working on putting an edited version of it up on the web but it seems that COVID-19 has thrown a spanner into the works. While we are still working, most of us are adjusting to working from home and having our priorities changed.
The day was facilitated by Adrian O'Malley and Liz Lynch (as Gillian Mason was unwell).
With an introduction by Julie Bernhardt, Brooke Parsons led us through her research story. Meredith Burke and Emily Ramage gave us a real picture of the rewards and difficulties of co-design. Ciara Shiggins, Emma Power, Barry Moore and Dana Wong spoke on including people with cognitive impairment and aphasia in stroke research.
Some great discussion came out of the presentations and these were recorded by our Graphic Reporter.
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Many events have been postponed due to COVID-19
8 September
CRE Rehab workshop
At the Stroke Society of Australasia conference in Perth
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Coralie English's team practice using virtual backgrounds on the videoconference system - Zoom.
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Some of the Florey Stroke team on a Zoom meeting.
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Gillian Mason conducts her first research participant appointment via tele.
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Community of Practice for Telehealth and Stroke
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We are looking for clinicians and researchers to help support the current work we have being doing in stroke, related to the provision of telehealth services. Nationally, this work has required fast-tracking because of the current COVID-19 crisis.
Dominique Cadilhac and Coralie English are working with the sector to formalise the Community of Practice for telehealth and stroke that began with two workshops last year.
Briefly, the purpose of the Australian Telehealth for Stroke Community of Practice is to:
- provide a forum for clinicians and researchers working in stroke rehabilitation, recovery and long-term management;
- enable a facilitated, credible and trusted communication channel for discussion and collaboration towards a common purpose;
- share resources, experience, skills and knowledge of best practice for using telehealth to deliver services or for electronic data capture;enable
- build capability via mentoring;
- develop training tools for health care professionals.
We have set up a mailing list for interested clinicians and researchers to become involved with this initiative, and for us to effectively communicate information to the group. Please join the mailing list here, if you have not already done so.
The first videoconference meeting will be on Thursday 9 April at 4pm AEST. Details will be sent to those people on the mailing list ASAP.
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An amazing team of researchers, academics, clinicians and the Stroke Foundation have pulled together the beginnings of a web site repository to support clinicians and researchers to rapidly transition to telehealth for delivering stroke services.
It is a one-stop shop so individuals don’t have to trawl the internet for resources and it will continue to grow.
This telehealth resource page is now live and accessible on the Stroke Foundation's Inform Me website.
If you have further resources that could be added to this site please send through to Coralie English.
There are a number of caveats to the Stroke Foundation hosting the information and these are listed on the web page and reproduced below.
The resources on this page have been collected for use by stroke care and rehabilitation professionals to provide telehealth services due to COVID-19 isolation or social distancing.
Please note:
- This web page contains links to information and materials and other content that might assist health professionals work and consult remotely with people with stroke, and with people with stroke who may have been discharged prior to completing their full rehabilitation programs.
- The linked information, materials and other content on this web page has not been created, produced or endorsed by the Stroke Foundation.
- The linked information, materials and other content on this web page is not intended to replace a health professional’s own professional judgement and decision-making.
- The Stroke Foundation shall not bear any liability for reliance by any user on the linked information, materials and other content on this web page.
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Healthcare Communication Support Resources - including COVID-19
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The Aphasia CRE has also been working to collate resources for use in this time of need. You can find them here.
If you have additional aphasia resources to add, please email Ciara Shiggins with original source information and links or PDF’s.
You can also find links to the Aphasia CRE seminar series on that page.
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BDH – Otto Löwenstein Research Award
Closing on 15 April 2020
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The entry closure date for the BDH – Otto Löwenstein Research Award is approaching (15.04.2020).
It is one of the few internationally posted neurorehabilitation awards for young researchers (below the age of 40).
The application is very easy (email submission of a peer-review publication from the last 2 years, application form, and an English summary [best structured in accordance with the evaluation criteria as stated in the information leaflet]).
Eligible work includes:
· Translational research with high clinical application potential
· Observational or experimental clinical study (non-RCT or RCT)
· Evidence synthesis (includes meta-analysis)
· Health care research
Please take the minor effort to submit a proposal; everybody from any profession or region of the globe is very welcome to submit.
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Heart Foundation Health Professional Scholarships
Applications close 1 May 2020
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Health Professional Scholars are established health professionals who have become active in research through the undertaking of a PhD. Applicants will be encouraged to continue their cardiovascular health practice during their PhD, whilst being encouraged to develop evidence-based health practice and research translation.
Health professionals who have a strong research background are uniquely placed to champion and lead the translation of research into practice, with the potential to produce immediate health outcomes.
Eligibility
- Established health professionals, however, recently graduated health professionals are also eligible.
- Priority is given to health professionals working in cardiovascular healthcare. This includes but is not limited to general practitioners, clinicians, cardiologists, nurses, physiotherapists, pharmacists, other health professionals.
- Be involved in any area of cardiovascular health research including biomedical, clinical, public health and health service delivery.
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Nat Fini has achieved her PhD. Congratulations to Nat. She will also be featured on the 'A Neuro Physio' podcast soon. It will be on their website.
Karen Borschmann has featured on the podcast speaking on Post-Stroke Bone Health, Post Stroke Glycemic Control and the Stroke Recovery and Rehabilitation Roundtable (SRRR).
Science of developing stroke rehabilitation and recovery studies is the topic of an upcoming webinar with Julie Bernhardt and Peter Sandercock on 7 April, 2020 at 07:00 PM, AEST
Register for the webinar here.
Dominique Cadilhac has been invited to speak at a number of conferences:
Improving Stroke Unit Care Around the World, World Stroke Organization Conference (ESO-WSO 2020) and she is also chairing a Scientific Communications Session: Thrombectomy Systems and Economics;
Global Challenges in Undertaking Research: Examples from Low and Middle Income Countries. State-of-the-Science Stroke Nursing Symposium, ASA’s International Stroke Conference, Los Angeles;
Stroke Data in Australia. ASA’s International Stroke Conference, Los Angeles;
IMPROVISE Economic evaluation plan and Lessons learnt from other quality improvement projects. The STELAR Project, Shared Team Efforts Leading to Adherence Results in New Delhi.
Steven Faux was at the March International Society of Physical & Rehabilitation Medicine (ISPRM) conference to give an invited lecture on stroke rehabilitation.
Monique Kilkenny has recently been appointed as Adjunct Lecturer, Department of Physiology, Faculty of Science, Monash University. COVID-19 allowing, Monique will be off to Vienna to the European Stroke Organisation and World Stroke Organization Conference (ESO-WSO 2020) to present on Using Big Data to Measure Outcome After Stroke. She will also speak on Optimal combination medication treatment improves survival at one-year following ischaemic stroke/TIA: Linked Registry and pharmaceutical claims study.
Dana Wong presented on the topic Does conference participation lead to clinical translation of stroke research? at the Organisation for Psychological Research into Stroke (OPSYRIS) meeting in Hobart.
Dana was also featured on the La Trobe University website. Read the interview that covers how she is helping people with acquired brain injuries to find new ways of navigating their brains, and the world around them.
Julie Bernhardt was in Brazil for the Global Stroke Alliance and GAINS meetings in March. While there she visited hospitals in Porta Allegra which are planning on joining the AVERT-DOSE trial. On her return she was in isolation for two weeks.
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Dominique Cadilhac and Monique Kilkenny together with other colleagues have been successful in gaining a $5,000,000 NHMRC Synergy grant. Synergies TO Prevent stroke (STOPstroke). Dominique has also received grants for the Australian Stroke Clinical Registry (AuSCR) and for Economic modelling for a state-wide 24/7 Telestroke service in WA.
Kate Hayward and Vincent Thijs are investigators on a NIH R01 grant recently awarded. The application, led by Dr Sook-Lei Liew from University of Southern California (USC), was titled Effects of global brain health on sensorimotor recovery after stroke. Kate and Vincent will run this study at Austin Health, which is the only international site involved. Other collaborating sites in the USA include USC, Emory and New York University.
Dana Wong and colleagues received a $35,000 La Trobe University Sport Exercise & Rehabilitation Research Focus Area Grant Ready for the project Enhancing wellbeing after acquired brain injury: A Phase II randomised controlled trial of the VaLiANT (Valued Living After Neurological Trauma) group program.
Dana and Miranda Rose also received a $5,485 La Trobe School of Allied Health, Human Services & Sport Strategic Research Grant, for Measuring clinical competencies in facilitating psychological interventions after aphasia.
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Coming up soon on The Project (Channel 10) tune in to hear one young woman's story of stroke & Karen Borschmann talking about the Young Stroke project at
The Florey.
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How to run a big conference online
A conference in Computational Neuroscience was conducted as a free web-based 'unconference' for neuroscientists and it cost them less than $200 for the broadcasting platform (Crowdcast). They had about 3,000 registrants, about 1,000 maximally viewing simultaneously, 2,000 online and about 400 chat messages/hour. To find out what they learned click here. To view the unconference click here but you will need to sign in.
On-demand webinar: COVID-19 and doing virtual fieldwork
Isolation measures to contain the spread of COVID-19 means that social researchers who conduct face-to-face fieldwork (interviews, focus groups, participant observation, ethnographies etc) are now faced with the challenge of either delaying or re-inventing their methods so that they can continue their research until these measures are relaxed. This webinar will explore ways that researchers can adapt their methods.
Deborah Lupton, Ph.D. Professor at Centre for Social Research in Health and Social Policy Research Centre, University of New South Wales, Sydney.
COVID-19 productivity - an alternative view
Aisha S. Ahmad writes on Why You Should Ignore All That Coronavirus-Inspired Productivity Pressure.
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Caleb Rixon at Genyus Network is hosting regular coffee catch-ups clubs, to connect people - stroke survivors & researchers welcome.
It is a good chance for people to connect & relax, and also for anyone who needs to increase digital literacy.
See the video and book in here.
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- Keep to the same work routine - get up, start work, have lunch, finish at the same time as you would on a normal workday.
- Set an alarm to stand up and stretch routinely during the day.
- If you are missing your office buddies, give them a call.
- Do a ‘commute’ to work. e.g. walk around the block, cycle around your neighbourhood.
- Reduce consumption of bad news (i.e. news feeds, Twitter etc).
- Get some fresh air during the day.
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The Towel Challenge is raising money for the Stroke Foundation – to prevent, treat and beat stroke!
Lee Carseldine and David Genat encourage you to get involved.
Like thousands within our community, they too have been impacted by this devastating disease.
Get involved. Donate or even grab a towel and take a photo (however you’d like to wear it), post it onto Instagram in black & white, with #towelchallenge. Nominate your friends and family to join the challenge.
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WORLD STROKE SURVIVOR DAY
7 April 2020
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The first World Stroke Survivor Day is on 7 April 2020. Kate Allatt in the UK has started this event.
Celebrating stroke survivors, For stroke survivors, By stroke survivors
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SSA 2020 ANNUAL SCIENTIFIC MEETING
Stroke Society of Australasia
8-11 September 2020, Perth
Perth Convention and Exhibition Centre
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At the Museum of New Zealand (Te Papa Tongarewa) they have put come of their collection on line as jigsaw puzzles.
When will you find time to do them all?
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For anyone who has had a paper accepted and wanted to give a press conference click here. A video from Ciaran Fairman, a postdoc at Edith Cowan University.
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Facebook
Now we have 377 followers on Facebook. We have put events on hold for the time being but click here to read up on previous events and research in stroke rehab research.
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Twitter (@strokeCRE)
To keep up with the latest in stroke rehab research join Twitter and follow us. Find us here and follow along with 3,333 other interested people.
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Kim, J., Thayabaranathan, T., Donnan, G. A., Howard, G., Howard, V. J., Rothwell, P. M., … Thrift, A. G. (2020). Global Stroke Statistics 2019. International Journal of Stroke. doi: 10.1177/1747493020909545
Prajwal Gyawali, Wei Zhen Chow, Madeleine Hinwood, Murielle G. Kluge, Coralie English, Lin Kooi Ong, Michael Nilsson and Frederick R. Walker (2020) Front. Neurol. Opposing associations of stress and resilience with functional outcomes in stroke survivors in the chronic phase of stroke: a cross-sectional study, doi: 10.3389/fneur.2020.00230
Bovim, M. R., Indredavik, B., Hokstad, A., Cumming, T., Bernhardt, J., & Askim, T. (2019). Relationship between pre-stroke physical activity and symptoms of post-stroke anxiety and depression: An observational study. Journal of Rehabilitation Medicine, 51(10), 755-760.
R. Sheedy, S. F. Kramer, L. Johnson, N. Shields, L. Churilov, D. A. Cadilhac, and J. Bernhardt, (2020) Acute Hospital Admission for Stroke Is Characterised by Inactivity Stroke Research and Treatment, Article ID 5879295, 8 pages
doi: 10.1155/2020/5879295
Shannon, M. M., Nordin, S., Bernhardt, J., & Elf, M. (2020). Application of Theory in Studies of Healthcare Built Environment Research. HERD: Health Environments Research & Design Journal. doi: 10.1177/1937586719901108
Lawson, D., Stolwyk, R., Ponsford, J., McKenzie, D., Downing, M., & Wong, D. (2020). Telehealth delivery of memory rehabilitation following stroke. Journal of the International Neuropsychological Society, 26 (Special Issue 1), 58-71. doi: 10.1017/S1355617719000651
Zelencich, L., Wong, D., Kazantzis, N., McKenzie, D., Downing, M., & Ponsford, J. (2020). Predictors of anxiety and depression symptom improvement in CBT adapted for traumatic brain injury: Pre/post injury and therapy process factors. Journal of the International Neuropsychological Society, 26 (Special Issue 1), 97-107. DOI: 10.1017/S1355617719000791
Kilkenny MF, Dalli LL, Kim J, Sundararajan V, Andrew NE, Dewey HM, Johnston T, Alif S, Lindley RI, Jude M, Blacker D, Gange N, Grimley R, Katzenellenbogen JM, Thrift AG, Lannin NA, Cadilhac DA On behalf of the Stroke123 investigators and AuSCR Consortium. Factors Associated With 90-day Readmission After Stroke or Transient Ischemic Attack Linked Data from the Australian Stroke Clinical Registry. Stroke 2020;51(2):571-578 doi: 10.1161/STROKEAHA.119.026133
Cadilhac DA, Kim J, Wilson A, Berge E, Patel A, Ali M, Saver JL, Christensen H, Cuche M, Crews S, Wu O, Provoyeur M, McMeekin P, Durand-Zaleski I, Ford GA, Muhlemann N, Bath PM, Abdul-Rahim AH, Sunnerhagen KS, Meretoja A, Thijs V, Weimar C, Massaro A, Ranta A, Lees KR on behalf of the ESO Health Economics Working group. Improving economic evaluations in stroke: a report from the ESO Health Economics Working Group. European Stroke Journal 2020 doi: 10.1177/2396987319897466
Cadilhac DA, Bagot KL, Demaerschalk BM, Hubert G, Schwamm L, Watkins CL, Lightbody CE, Kim J, Vu M, Pompeani N, Switzer J, Caudill J, Estrada J, Viswanathan A, Hubert N, Ohannessian R, Hargroves D, Roberts N, Ingall T, Hess DC, Ranta A, Padma V, Bladin CF. Establishment of an internationally agreed minimum data set for acute telestroke. Journal of Telemedicine and Telecare 2020 doi:10.1177/1357633X19899262
McAllister PJ, Khatkova SE, Faux SG, Picault P, Raymond R, Gracies J-M. Effects on walking of simultaneous upper/lower limb of Abobotulinum toxin A in patients with stroke or brain injury with spastic hemiparesis. Journal of Rehabilitation Medicine, 2019; 51(10): 813-816 doi: 10.2340/16501977-2604
Loetscher, T., Potter, K.J., Wong, D., & das Nair, R. (2019). Cognitive rehabilitation for attention deficits following stroke. Cochrane Database of Systematic Reviews, Issue 11. Art. No.: CD002842. DOI: 10.1002/14651858.CD002842.pub3
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Can you help?
Do you want to participate in research? Send us comments on our research? Want to join in CRE activities? Then stay on this mailing list.
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