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Welcome to LPCN News August 2020! 

On behalf of the Leeds Palliative Care Network, I would like to take this opportunity to thank all partners across Leeds providing palliative and end of life care for the incredible job they have done during the COVID-19 pandemic. We recognise that this has been an extremely challenging time for patients, carers and health and social care teams delivering end of life care; and that it is far from over.

We would like to acknowledge the significant increase in end of life care delivered by partners and the way services have innovated, collaborated and pulled together to maintain existing frontline services and develop new ways of working. 

Collectively you have:

  • Continued to provide personalised palliative and end life care for patients and their loved ones wherever they are.
  • Supported friends and family in safely delivering care at home and supported those who may not have been able see their loved one as much as they wished or mourn them in the way they would have chosen.
  • Developed and provided guidance and support for colleagues who were often working in new and demanding ways and supported city-wide strategic working to meet the needs of the people of Leeds.
  • Creatively responded to resolve challenges like access to medications and equipment such as syringe drivers.
Thanks to your efforts we have been able to:
  • Support patients to die in their preferred place of care and death.
  • Enable people to plan ahead using EPaCCS and ReSPECT.
  • Rapidly develop clinical guidance and remote training to support frontline clinicians delivering face to face care.
  • Enable effective use of medication for the relief of symptoms.
  • Develop new ways of working and care pathways.
  • Offer essential care after death and bereavement services.
  • Disseminate critical information through the LPCN website.
  • Provide support to colleagues facing unprecedented challenges across care settings.

Without your hard work and dedication we would not have been able to respond so effectively to the challenges of the pandemic. The LPCN continues to consider and monitor the longer-term impact of COVID-19 on patients’ care preferences and delivery of palliative and end of life care across all care settings.

Thank you all for your ongoing commitment to delivering high quality patient care.

Dr Adam Hurlow, Chair, LPCN 

Getting Back to Business as Usual 

We are very pleased to say that as the lockdown eases and people are starting to find a bit more time to connect back with LPCN, the main network group and working groups have started to meet again virtually.

With so much incredible change over recent months we hope all groups manage to reconvene to take stock and review their plans for their future improvements.

The notes from the last LPCN group meeting can be found here.
 

Electronic Palliative Care Coordination System (EPaCCS) 2019-2020 Now Online!

The EPaCCS report for 2019-20 for Leeds CCG is now available on our website here.

Key findings of the 2019-20 Report (Q1-Q4) report are:
- 49% of adults who died in Leeds had an EPaCCS record compared to 45% the previous year.
- 79% achieved their preferred place of death this year compared to 73% last year; with 68% dying outside of hospital compared to 67% last year.
- The proportion of patients whose EPaCCS record was started more than 3 month before they died is at 52% compared to 53% the previous year.
- The proportion of patients without an actual place of death recorded has decreased to 12% from 13% last year.

 

Training Courses – book now!

St Gemma’s Hospice is offering the following training courses over the next few weeks. Click on the links below for further information and booking details.

Training on Verification of Expected Adult Death with Remote Support for Care Home Staff in Care Homes without Nursing

Advance Care Planning and ReSPECT Training Sessions for GP Practices
 


 

The Grief Series 

Leeds based artist Ellie Harrison recently presented her Grief Series to LPCN. The Grief Series is a series of seven project and each instalment is a collaboration with another artist working in a different field including performance, design, photography, installation and sculpture.  

The series aims to create safe spaces where notions of grief and bereavement can be discussed and expressed openly and through a range of empowering creative practice. For more information, visit www.griefseries.co.uk or view the presentation on our website here


 

 
News Update 
 
New Grief and Loss Support Service for West Yorkshire and Harrogate

West Yorkshire and Harrogate Health and Care Partnership has recently launched its Grief and Loss Support Service. The helpline offers help and support to anyone experiencing grief and loss.
Open 8am – 8pm, seven days a week.
Call 0808 196 3833 or visit www.griefandlosswyh.co.uk for more information.


 
 
And finally… LPCN Annual Report Now Online

We have recently published our Annual Report which provides a summary of our challenges and achievements from March 2019-20. 
Thanks to everyone involved for pulling it together at a very busy time! To view, visit our website here.


 
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