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February 2019

Supporting children, enabling adults and planning for the future

In your e-bulletin this month:

Publications

Our quick guide to person-centred future planning to support people growing older with a learning disability 

Jenny Anderton

Transformation lead with Rotherham MBC Adult Services

Image of Jenny AndertonJenny has 39 years’ experience of working with people with a learning disability and their families/carers. She works with a great team of people who are committed to supporting people with a learning disability to lead a meaningful life. In 2006 she joined the Department of Health & Social Care's Valuing People team and supports the Service Users Advisory Group’s ‘Nothing about us, without us’ report.

“Person-centred ways of working and thinking empower people with a learning disability to have a voice, make any assessment process meaningful and includes people in decisions about what is important to them, how they want to live their lives and what their futures should look like. The person is seen as a person with many talents and unique skills, rather than the label of learning disability being the first thing people see.

“As people change and grow older it is important to plan for their future and a person-centred future plan will reflect their changing needs. The NICE quick guide sets out why it is important to support people to plan for their future and will guide practitioners to focus on a number of key principles in the planning process. The quick guide will help to make future planning more consistent for people and improve the quality of plans produced. It will help to ensure the right support is in place for the person, keeping the person fully involved so they can continue to lead a valued and fulfilled life as they grow older.

“I passionately believe that a person with a learning disability should be the centre of everything we do.”
link to quick guide on person-centred future planningAimed at practitioners supporting people growing older with learning disabilities, this quick guide takes a strengths and skills based approach to person-centred future planning. The quick guide explains the process of designing a future plan, and how the future plan can support people with learning disabilities to live healthier and more fulfilled lives for longer.
 
This quick guide is based on our guidelines: Care and support for people growing older with learning disabilities,
 
To read the quick guide please click here.

New guideline on supporting adults with cerebral palsy

Our newly published Cerebral palsy in adults guideline has several recommendations relevant to social care practitioners including recommendations on support with communication, vocational skills and independent living, electronic assistive technology and physical activity. The guideline also contains recommendations on access to services and ongoing review, assessing and monitoring mental health needs, assessing and monitoring nutrition and more.

Other news

View our pressure ulcers webinar

Pressure ulcers can be serious and can lead to life-threatening complications. If you missed the hour long webinar held by NICE and SCIE last month you can view a recording here. It explains how providers can implement our guidance and recommendations to prevent pressure ulcers. Presented by care practitioners, the webinar is aimed at registered managers of care homes, but will also be useful to other practitioners in care homes.

Improving the health and wellbeing of looked-after children and young people - a shared learning example

Action for Children’s Two of a Kind service has successfully appealed to ‘harder to reach’ young people. Two of a Kind matches care-experienced Independent Visitors (IVs) with young people in the care system, and aims to enhance the life chances of children in care by facilitating access to education, reducing isolation and providing long term stability/relationships. This reflects our quality standard on Looked-after children and young people.

An interim evaluation found that, of the young people surveyed, 100% felt that their IV was someone they could talk to and that they had helped them to feel positive about their future and provided them with opportunities to try new hobbies and learn new skills.
Click here to read more.

Join our insight community: we need your feedback

Here at NICE, we continually ask people for feedback about our products and services. To help us do this, we have an 'insight community' where people have an opportunity to get involved with what we do. Over 1,800 people have joined so far and we are particularly keen to grow the number of social care members in the group to help shape our work for the sector. Participation is voluntary, with no obligation to take part and involvement can range from surveys, to user testing, interviews, etc.

A few of our social care members shared their thoughts on being involved:
Kim Hughes
Workforce quality and development consultant, neighbourhood volunteer and part-time carer for parents living with dementia.
 
Image of kim“From a professional and a personal perspective I find it exciting to be involved in anything that’s going to improve adult social care.

“Accessible resources about key subjects such as dementia, delirium, medication and community care presented for either people who are using the services, or carers and providers to help them understand the expected standards are an absolute wonder as far as I’m concerned."
Steven Baker
Image of Steven BakerPractice lead quality improvement & innovation

“To be part of the development of systems, practices and processes that guide high quality person centred care... not only does it keep you in touch with some of the standards that are being developed and discussed through NICE but also helps you to become part of the network of people who are connected to social care.”
Be involved: sign up to our insight community by clicking here.

Join a committee

Shape our guideline on looked-after children by joining a committee

Looked-after children and young people have poorer outcomes in many areas including mental and physical health, education and offending rates. We are currently updating our guideline for looked-after children and young people to ensure our advice includes new evidence which could affect recommendations for the 75,420 looked-after children and young people in England (March 2018).

We are recruiting for the following roles to join our committee to shape this guideline:
  • a director/ assistant director of social care/ director of corporate parenting
  • 2 social workers (a social worker for looked-after children and young people and an adult social worker for care leavers)
  • a residential social care practitioner
  • a teacher/ headteacher/ designated teacher/ virtual headteacher
Are you interested, or do you know someone who might like to apply? Click here for more information. Closing date: 5pm, Friday 22 February 2019.
 
We are also looking for people who have personal experience of the issues important to looked-after children and young people. Do you, or someone you work with, have experience of any of the following and would like to use your experience to help others?
  • Personal experience of receiving care
  • Personal experience of leaving care
  • A foster carer within the last 2 years
Click here to apply before 5pm, Monday 18 February 2019
Any questions?  Contact Mark Rasburn at Mark.rasburn@nice.org.uk, tel: 0161 219 3880.

Click here to find out what our committee members do.

Get involved

How are we doing? Answer our reputation research survey

Help us improve our guidance and the ways in which NICE engages and communicates with different audiences. The survey takes only 10 minutes to complete, and is conducted by an independent research agency, so your feedback is completely confidential.
 
Click here to take the survey.

Identifying and supporting children and young people with depression

You are invited to comment on the new and updated recommendations on our existing guideline: Depression in children and young people: identification and management.

We want to hear from social care practitioners, and from children and young people with lived experience of depression. If you would like to help shape our guideline updates, please click here to send in your comments.
 
The consultation closes on Wednesday 20 February 2019.

Are you interested in dementia prevention, assessment and management?

Dementia is associated with complex needs and our new quality standard will seek to provide commissioners, service providers, social care practitioners and the public with a description of what good care looks like. Our quality standards provide statements designed to improve the quality of care.

This quality standard will update our existing dementia: support in health and social care and dementia: independence and wellbeing quality standards.  It will cover dementia prevention, assessment and management and health and social care support for adults with dementia.

If you would like to help identify which important issues the quality standard focuses on, then please register and share your views OR click here and find out how.
 
You can comment up until 5pm on Tuesday 26 February 2019.

Shape our future guideline on shared decision making

Personalised care and support is at the heart of social care practice and we are about to develop a guideline for healthcare practitioners which focuses on the same principles, called 'shared decision making'. If you would like to find out more about this guideline please click here.

Become a stakeholder

If you've got an interest in our work, why not register to become a stakeholder? Registered stakeholders can help to shape our work by attending workshops, commenting on drafts and helping with distribution of our guidance and quality standards. To register, visit our stakeholder registration webpage.

Coming up in your next e-bulletin

In March's edition of your NICE in Social Care e-bulletin you will find useful information on:
  • Our resources on Improving young people's experiences of admissions to and discharge from inpatient mental health settings
  • Our quality standard on Child abuse and neglect
  • Our quality standard on People's experience in adult social care services
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