CF Talk - New Episode
Episode 3 of our CF Talk video series is now live!
In this video, our participants discuss their school experiences; sharing ideas about how they navigated the challenges of gaining their education and managing CF at the same time.
Click here to watch now, and visit our website to see the other episodes.
|
|
|
|
We provide a range of services to individuals and families affected by cystic fibrosis.
|
|
|
Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
|
|
|
|
|
65 Roses 2019 - Get Involved
65 Roses Day is coming!
Every year, with the help of hundreds of supporters, we sell fresh colourful roses all over the state to raise funds and awareness for people living with cystic fibrosis (CF).
We need you help this 65 Roses Day, Friday 24 May.
Here's how you can get involved
1. Sell roses in your workplace or school on 65 Roses Day
2. Gift a beautiful bunch of flowers to a friend or loved one
3. Join our volunteer team and help us paint WA with roses
To find out more and get started visit www.cfwa.org.au/65roses or get in touch with Marnie at events@cfwa.org.au or on 08 6457 7333.
|
|
CF Talk New Interactive Magazine
We are proud to announce the launch of the first edition of our exciting new interactive magazine for young people, CF Talk!
In this first issue, we share stories from people with CF about landing your dream job, taking your medications in front of others at high school, and so much more!
Click here to read now, and please pass on to the young people in your family.
|
|
VX-445 Triple Combo - Positive USA Trial Results
Good news from the USA!
Vertex have released positive preliminary clinical trial results for the triple-combination therapy VX-445 plus tezacaftor/ivacaftor.
This is positive news, as results from trials like this in the USA help pave the way for access to new treatments in Australia, like the PBAC approval of Orkambi for Australians last year.
|
|
Men's Health Series - Book Now
The Barbagallo Men's Health Series is coming soon, proudly supporting Cystic Fibrosis WA (CFWA).
Hosted at Barbagallo Motors Perth, the series includes seven topics over seven Wednesday evenings, each covering an aspect of men's health.
The first session: Heart to Heart by Alfa Romeo, will focus your understanding on how your heart works and the benefits of fitness and training.
Heart to Heart by Alfa Romeo
Date: Wednesday 20 March
Time: 7:00-8:00pm
More information: For more info and to register visit our website
|
|
CF Conference - Early Bird Pricing & CFWA Subsidies
We are very excited that the Australasian CF Conference is heading to Perth this August!
Lay Conference
Date: 3-6 August 2019
Venue: Perth Convention Centre
Register: Register before 30 April to save with early-bird pricing
Cystic Fibrosis WA is able to offer a subsidy to help with the costs, particularly for members attending from regional WA. For more information visit our website.
|
|
CF Consumer Group Workshops
The CF Consumer Group are running a series of workshops for caregivers, adults with CF and young people (13-25) with CF to help find out what health outcomes matter most to them.
Caregivers: 26 March
Adults with CF (dial-in): 8 April
Young people (13-25) (dial-in): 9 April
For more information and to register visit our website.
|
|
Make CF Your Reason to Run This Year
Registrations are now open for the 2019 HBF Run for a Reason!
For the last two years the team ‘For Norah’ has participated in the HBF Run for a Reason, raising over $11,000 for Cystic Fibrosis WA and creating significant awareness for cystic fibrosis (CF). Check out our website for more of the team's story here.
Join team Norah and make CF your reason to run this year!
|
|
New Cepacia Fact Sheet
We have just released a new fact sheet on Cepacia, available to download on our website.
We now have over 40 fact sheet available, covering topics including; Pill Swallowing, Airway Clearance Techniques, Travel with CF and much more!
Visit our Resources page to see our fact sheets and other downloadable resources.
|
|
$13K Corporate Battle of the Bands
We can now reveal that the third annual Corporate Battle of the Bands raised over $13,000 for Cystic Fibrosis WA and Youth Focus!
A big thank you to organisers Roger and Phill, the six bands, and the team of volunteers who helped make the night a rocking success!
Read the full story here.
|
|
|
|
|