Copy
View this email in your browser

OurBrainBank is One!

A year ago this month OurBrainBank was launched in the US. Thank you for supporting us! We have record numbers of people living with GBM using our app—enhancing their quality of life and pushing research forward.
This year, we will step up our plans to advocate for faster, better treatments, learning from the HIV/AIDs movement, breast cancer campaigners, pancreatic cancer advocates, and others. Join us as we plan our campaign!
New “Shiny” enhances OBB App
Our brilliant intern Jacob Ellen designed a cool new add-on for our app which enables you to learn about your fellow GBM travelers and more. To access: open the OBB App main menu and click on "Interactive App."
Clinical Trials Survey
In February, OBB launched a survey and 162 people living with GBM or their caregivers participated. We'll publish the results soon, and plan to use the findings to help more patients get onto trials.
Strategy Meeting
In early March, patient advocates, our board, medical, and tech advisors met in NYC to brainstorm about advocacy, next steps, and a new initiative to help match GBM patients to clinical trials. Stay tuned for updates.
Brochures
Your donations have made it possible for us to produce a much-wanted brochure for patient waiting rooms. The brochure explains how the app helps patients and caregivers. We'd love to send some to you to share with your medical team. Write us at
info@ourbrainbank.org to request.
100-day Certificates
Used the OBB App for 100 days? Let us know info@ourbrainbank.org and we’ll send you this handsome certificate. Once you’ve completed 100 days, onto 1000 days! OBB founder Jessica Morris with the very first one. Send us a photo of yourself with your certificate and we’ll feature you in an upcoming newsletter.

OurBrainBank operates on a shoestring, and we need your help to made our mission a reality. Please consider a sustaining gift. To do so, visit our
PayPal donation page, select an amount (say $20), and tick “Make this a monthly donation.” Each month, this amount will automatically be deducted from your credit card or PayPal account. A one-time gift is welcome too.
Thank you to the OurBrainBank community—people living with GBM, their loved ones, friends, family, medical professionals, researchers, and anyone whose life has been changed by this terrible disease. Your support gives the magic power of hope. 
New to OurBrainBank? Learn about our efforts to move glioblastoma from terminal to treatable, powered by patients. OurBrainBank.org

Get the OurBrainBank App
Free to patients and caregivers in the US. Register using the code OBB100. Please spread the word to fellow travelers! 

  

Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"

Join our community: our private Facebook group for Glioblastoma patients and caregivers. Free monthly video support chats. YouTube channel features stories from long-term survivors and a series of "how to" videos for the OBB app.

Want to help? Please donate or set up your own campaign for OBB with your GBM story by clicking "Join the Team." 

Help OurBrainBank by shopping on Amazon. Purchases made on Amazon Smile benefit OurBrainBank. Start shopping on Smile.Amazon.com and select OurBrainBank as your designated charity.
 

Email us questions or comments—we would love to hear from YOU!  
OBB Founder and Chair, Jessica Morris, living with GBM




 
Our Supporters
Copyright © 2019 OurBrainBank, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp