CF Talk Last Video Now Live!
The final episode of our CF Talk video series is now live!
In this final episode, our participants share some of the less discussed and potentially embarrassing side effects of life with CF.
Click here to view now.
Thank you to our wonderful video stars for sharing your personal stories for the benefit of others living with cystic fibrosis!
To view all six videos visit our website.
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We provide a range of services to individuals and families affected by cystic fibrosis.
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Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
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65 Roses Day - Posy Giveaway!
65 Roses Day is only five weeks away!
Now is the time to order fresh colourful roses to be delivered on 65 Roses Day, Friday 24 May.
Place a rose order before Friday 3 May to go in the draw for a Little Rosie Posy, delivered to your door on 65 Roses Day!
Here's how it works
1. Pre-order fresh roses to sell at work or school
2. We'll deliver your roses on 65 Roses Day, Friday 24 May
3. Sell your roses for $5 a stem and return the funds raised to CFWA
We'll announce the winner on our Facebook and E-News, so make sure you're looking out!
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Evening with CF Scientists
The annual Evening with CF Scientists is coming soon!
Join us for an annual research update from CF researchers at Telethon Kids Institute.
Date: Wednesday 1 May
Time: 6:00pm - 8:30pm for 6:30pm start
Venue: Telethon Kids Institute, Perth Children's Hospital 15 Hospital Ave Nedlands
To RSVP: Visit www.bit.ly/CFscientists19
Please note this is an 18+ event. There may be people with CF in attendance. CFWA infection prevention and control guidelines apply. For more information click here.
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Perth CF Conference - Subsidies Available
The Australasian CF Conference is heading to Perth this August, and we are excited to be able to offer generous subsidies to help WA members attend the lay conference.
Sign up before 30 April for early-bird pricing on top of CFWA financial support!
For more information and to register visit our website.
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New Short Films for Parents & Carers of People with CF
We are developing a series of short films for carers of people with CF. To ensure that the topics are relevant and appropriate we would greatly appreciate some feedback from carers in the CF community.
Take the short survey now.
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Barbagello Men's Health Series
The sixth session of the Barbagallo Men’s Health Series, proudly supporting Cystic Fibrosis WA, is coming up on Wednesday 24 April.
Hosted by Volvo this session will focus on families, with Wayne Bradshaw, CEO of the Fathering Project presenting.
A UWA based not for profit led by a team of professionals, the Fathering Project has a mission to inspire and equip Fathers and Father figures to engage more effectively with their kids.
Click here for more information and to register.
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Winter is Coming! 2019 Flu Vaccinations
Winter is around the corner, so it's time to think about your flu vaccinations.
The ‘flu’, or influenza, is a highly contagious respiratory virus that can lead to severe lung infection for people with cystic fibrosis (CF).
Click here to see how you can get your vaccination organised in time for the 2019 flu season.
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Re-Loved for Research
Inspired by Marie Kondo, CFWA board member and CF parent Rachael has been on a mission to rid her home of anything that doesn’t ‘spark joy’.
Thinking creatively, Rachael started her initiative called ‘Re-loved for research’, selling the unwanted items to raise funds for cystic fibrosis. So far she has raised over $1,800 for CFWA.
If you have any household items that no longer ‘spark joy’ (such as chinaware, musical instruments, silverware or glassware), you could donate them to Rachael by contacting the office on events@cfwa.org.au or 08 6457 7333.
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Ladies High Tea
The Cystic Fibrosis WA Ladies High Tea is coming soon!
Join us for an afternoon of delicious food, fun, laughter and champagne. We're excited to welcome Cabernet & Canvas to our soirée this year as we get in touch with our creative side and paint a rose to celebrate 65 Roses Day!
Click here register now.
This event is open to all female carers and their female +1. For more information and to register visit our website.
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Conquer CF Ball
Time to grab your tickets for the 2019 Capel Vale Conquer Cystic Fibrosis Grand Ball.
Date: 18 May 2019
Time: 7:00pm - 1am
Venue: Grand Ballroom, Crown Perth
Tickets: $210 pp - Corporate sponsorships are also available
The event has been organised by Conquer Cystic Fibrosis, which is focused on raising funds for research to improve and extend the lives of Australians with cystic fibrosis.
Click here for more information and to book your tickets.
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Institute for Respiratory Health
The Institute for Respiratory Health is one of Australia’s only integrated scientific and clinical research institute, dedicated specifically to investigating respiratory disease, including cystic fibrosis.
The Institute’s Clinical Trials Unit is one of the largest respiratory trials clinics in Australia and some of today’s medication has been the result of trials being conducted within the clinic.
At present, there are no actively recruiting trials. However, we urge anyone who would like to a part of our trials in the future to get in touch. To find out more please visit the Institute's website or get in touch with the team at (08) 6457 3198.
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