65 Roses Month
65 Roses month, the national month of cystic fibrosis (CF) awareness, is here!
Here's how you can help us paint WA with roses to support people living with CF this 65 Roses Day, Friday 24 May.
1. Sell roses in your workplace or school. No pre-payment required.
2. Volunteer at one of our stalls or flagship Perth CBD stall
3. Gift a posy or bouquet, delivered on 65 Roses Day
For more information and plenty of resources to help you make the most of your 65 Roses fundraiser visit our website or get in touch at events@cfwa.org.au or on 08 6457 7333.
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We provide a range of services to individuals and families affected by cystic fibrosis.
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Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
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New Mental Health Gap Funding
We are excited to announce a new mental health subsidy, available to adults living with CF in WA, to provide more affordable access to clinical counselling support.
If you're struggling with mental health, we are now able to offer a $50 gap payment per session to subsidise a community-based psychologist, social worker or counsellor in your area. This is in addition to the subsidised sessions available through a GP Mental Health Care Plan and Medicare rebate.
For more information and to access this subsidy visit our website.
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Kalydeco and Symdecko PBAC Announcement
We had some very exciting news that the Pharmaceutical Benefits Advisory Committee (PBAC) have announced Pharmaceutical Benefits Scheme (PBS) funding for Kalydeco (people aged 12-24 months) and Symdecko (ages 12+).
This exciting development means that more Australians living with CF will be able to access these effective CFTR modulator drugs, and will help pave the way for access to future treatments.
For more information visit the PBS website.
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Parents and Carers Short Film Survey
We are developing a series of short films for carers of people with CF, similar to our recent CF Talk films.
We want to ensure that the topics are relevant and appropriate for you. We would greatly appreciate some feedback from carers in the CF community.
You can provide feedback with a five question anonymous survey here.
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John Curtin Leadership Academy
CFWA were one of the lucky charities recently selected to participate in the John Curtin Leadership Academy program for 2019. Each group of students participating in the program select a charity to partner with over the year, helping to raise awareness and funds in the community.
This year’s group of dedicated students who chose to work with CFWA are taking on a number of activities out in the community. Including an Easter Egg Hunt last weekend!
Follow the JCLA Facebook page to keep updated on their activities.
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CF Quiz Night
CFWA member Maggie is running a CF Quiz night supporting Cystic Fibrosis WA again this year.
Sign up now for a fun night out, with great door prizes and lots of raffles!
Date: Friday 17 May
Venue: Rhein Donau Club, North Lake Road, Myaree
Time: Commencing at 7pm
Tickets: $10 each, tables of 6
For more information and to book your tickets get in touch with Maggie at maggied@iinet.net.au or on 0413 862 315.
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HBF Run for Cystic Fibrosis
Less than a month to go until the HBF Run for a Reason! Thanks to the teams and individuals who are supporting CFWA in this year’s run who have raised over $10,600 so far. Here are some of our top fundraisers who have made CF their reason to run this year.
Team For Norah: $4,464
Lillian Petchell: $3,616
Team Tander: $401
Ladies With Attitude: $319
If you're running in the HBF Run and want to help make a difference, you can set up your own fundraising page here.
There's still time to sign up for the HBF Run for a Reason and help support people living with CF. With a 4km, 12km and half marathon course, there is a run for everyone! For more information visit the website.
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Just Breathe Yoga
Long-time CFWA supporter Kandy is back at it again with a Just Breath Yoga fundraiser.
Come along and relax with a guided yoga session for a good cause!
Date: Saturday 11 May
Time: 1:30pm - 3:00pm
Venue: Yab Yum Yoga, 484 Albany Hwy Perth
Cost: $25 (all funds to Cystic Fibrosis WA)
For more information and to register click here.
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Winter is Coming...Flu Season
Winter is around the corner, so it's time to think about your flu vaccinations.
The ‘flu’, or influenza, is a highly contagious respiratory virus that can lead to severe lung infection for people with cystic fibrosis (CF).
Click here to see how you can get your vaccination organised in time for the 2019 flu season.
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Conquer CF Ball
There's still time to grab your tickets for the 2019 Capel Vale Conquer Cystic Fibrosis Grand Ball.
Date: 18 May 2019
Time: 7:00pm - 1am
Venue: Grand Ballroom, Crown Perth
Tickets: $210 pp - Corporate sponsorships are also available
The event has been organised by Conquer Cystic Fibrosis, which is focused on raising funds for research to improve and extend the lives of Australians with cystic fibrosis.
Click here for more information and to book your tickets.
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Exercise and CF Interview
An Exercise Physiology student at Edith Cowan University is undertaking an assignment about the benefits of exercise for people with cystic fibrosis (CF).
If you have CF and are interested in answering some questions please get in touch with Libby at lehine@our.ecu.edu.au.
Any interviewee names and identifiable informational will be kept private.
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