The 26th Annual Boston Walk for Epilepsy on May 18th was a day to celebrate, remember, and connect with 1,300 + walkers at the Northeast’s largest epilepsy walk. Click the image below to see some highlights of the day. 



Thank you to our generous sponsors: 




And to LivaNova, WBUR, Aquestive, Medtronic, Engage Therapeutics, Neuropace and Supernus.  Thank you!

We are pleased to announce that we have been awarded two Commonwealth Corps Service Members to expand our Young Leaders Network in Lowell, Springfield, Worcester, and Boston in the coming year. We are actively recruiting service members to join us for a year of service. Learn more here.

The Young Leaders Network (YLN) participants attending the Boston YLN were surveyed in 2018 (15 of 75 respondents). The results showed that the YLN has been successful in building self-confidence and in improving communication and increasing civic engagement in participants as well as in effectively teaching skills, especially communication and teamwork. 102 YLN participants and their parents were surveyed in 2019 with a 30% response rate. Overall, results from the survey reflect participants’ positive experiences with the YLN.  Equally important, the results are consistently positive across the eight areas of questioning (social support, communication, advocacy, knowledge of epilepsy, self-care, leadership, confidence, happiness). Way to go, YLN! For more information or to get involved with a YLN, email Chanda Gunn. 

It has been 10 years since we lost Dr. Bromfield.  His legacy lives on through the thousands of kids whose lives he has forever changed. Ed helped lead the charge to ensure kids affected by epilepsy had the joy and confidence-building that camp brings. This year, Epilepsy Foundation New England will host 15 camps for children and families affected by epilepsy, in 4 states, and for all ages and abilities. The Ed Bromfield Endowment Fund for Camp continues his legacy. Contribute here,

Marie began her career at Epilepsy Foundation New England in 1980, and has worked tirelessly since then to improve the lives of those living with epilepsy. She has held a variety of positions within the Foundation including Group Facilitator, Employment Specialist, Information and Referral Specialist, Educational Presenter, and Conference Planner.  Please join us in honoring Marie on June 6 by clicking here.

Our President/CEO, Susan Linn, has started a column to share her thoughts on living with epilepsy as a caregiver. Read her eighth post here: 

For those who have been following my posts for a while, you know that my spouse, Chanda, who has epilepsy, had a “tricky” spring. At our May 18 Boston Walk for Epilepsy, we celebrated one month seizure free – though not one month fatigue, side effect, and other adverse-effect free.  We – Chanda’s health, and our family – are getting stronger every day. Last Monday, she was well enough to go horseback riding. This week, she is getting back to exercise with one-mile walks: this from an elite athlete who once spent 10+ hours a day training as an Olympic ice hockey player (while living with epilepsy). When I first met Chanda and we used to go to the gym together, it was intimidating for me. I try to keep in shape, and Chanda could literally run rings around me on the track, do more push-ups, sit-ups, etc. without even really exerting herself. I would be a messy pile of sweat while Chanda was looking for the next challenge. I run 4 miles a day, and today, Chanda is restricted from exercise. But soon, I pray/hope/believe that Chanda will run circles around me again.

This is riding the highs and lows of living with epilepsy. This week, she was here, and our family was well enough to go horseback riding. We are on a good path, and we hope the very same for you. Happy Trails!

Pictured from left to right: Susan/Dusty, Gertie/ Shiloh, Chanda/Bay, Lawton/Ginger.

ALL SHARE GROUPS HERE 

TONIGHT Battle of the BioTech Bands, May 30, 2019 6P, Boston

THIS SATURDAY NH Family Education Conference at DHMC, June 1

THIS MONDAY Golf Tournament, Fall River MA June 3, 2019

Prom, Shirley MA, June 12, 2019

Matty's 5K, No Kingstown RI, June 15, 2019 

2nd Annual Slap Out Epilepsy Hockey Clinic, Andover MA, June 22, 2019
GO BRUINS!

Joseph's Hope Scholarship Benefit Concert, Shirley MA June 23, 2019

Check Out Our Full List of Purple Camps

Save the Date: Walk with us in Freeport Maine September 28

Lebanon NH Walk for Epilepsy October 12

Merrimack NH Walk for Epilepsy October 13.

Save the Date: Walk with us in Pawtucket RI Sunday October 27

36th Annual Boston Gala Save the Date: November 1, 2019, InterContinental Boston, honoring Dr. Cathy Phillips, featuring author Kurt Eichenwald. 

ALL EVENT LISTING HERE

Thanks to the dozens of people who hold Facebook fundraisers for us!  We are so grateful for you to share your special day with us!  To read about our current fundraisers, click here.