Last Saturday, 300 people gathered to run/walk and connect at our Matty 5K in RI. The Matty 5K carries on a 16-year tradition started by Richard and Debra Siravo and their friends and family in 2003 after their five-year-old son, Matty, passed away from a prolonged epileptic seizure. Thank you!



Thank you to our generous sponsors, including presenting sponsor, Sunovion; always here for our community.

Our first Prom was a success last Wednesday night.  Thank you to Greenwich Biosciences for sponsoring our parent dinner, allowing parents to connect and enjoy while their young people partied.  Greenwich Biosciences Team Members pictured in masks.  Click on the images for the whole prom photo album.  Special thanks to volunteer photographer, Chuck Losey. 

Be part of Epilepsy Foundation New England's efforts to make our schools seizure safe and seizure smart by attending an informative webinar on Tuesday June 18 at 6P. Learn how you can help pass legislation in Massachusetts that will help make our schools seizure safe and seizure smart for all students. Hear how Lyndsey Crunk and her mother Cyndi got the first in the nation, "Lyndsey Crunk Act" passed in Kentucky.  Find out what our bill does and the steps we need to take together to get it passed here in Massachusetts.  Register here.

We are working hard to protect our community's rights, and it's working.  Maine Governor Janet Mills has signed our Step Therapy bill LD 1009 into law!  These protections will apply to plans issued or renewed after January 1, 2020. Last Tuesday, our RI Step Therapy bill passed the RI Senate, 36-0. On to the House next where it faces a fight. Read about Step Therapy here. Lend your voice with the press of a button, here. 
 

It's back for the second year! A charity hockey clinic to benefit the mission of the young leaders affected by epilepsy by making a change in their own community and building strength through support, advocacy, and outreach. Join New York Ranger Chris Kreider, NJ Devil Cory Schneider, Olympians Chanda Gunn and more Olympians, all-star coaches and referees, as they lead this group through drills, skills, and games. Guest stars added every day. A Special Hockey, Sled Hockey, & Open Skate is open to all ages and abilities! This Open Skate Includes Practice Jersey, 5 raffle tickets, motivational speakers, On-ice skills stations, games and skills competition, and more.  Few spots remain. Register Today.
 

Special Thanks to the Magoni Family for making our Fall River Golf Tournament on June 3 a success, raising nearly $30,000 for our community.  A beautiful, fun day of golf, community, games, food, and laughter.  Thank you!

ALL SHARE GROUPS HERE 

THIS SATURDAY: 2nd Annual Slap Out Epilepsy Hockey Clinic, Andover MA, June 22, 2019

THIS SUNDAY: Joseph's Hope Scholarship Benefit Concert, Shirley MA June 23, 2019

Check Out Our Full List of Purple Camps

Matty Golf Tournament, Hope Valley, RI September 14

Save the Date: Walk with us in Freeport Maine September 28

Lebanon NH Walk for Epilepsy October 12

Merrimack NH Walk for Epilepsy October 13.

Save the Date: Walk with us in Pawtucket RI Sunday October 27

36th Annual Boston Gala Save the Date: November 1, 2019, InterContinental Boston, honoring Dr. Cathy Phillips, featuring author Kurt Eichenwald. 

ALL EVENT LISTING HERE

Thanks to the dozens of people who hold Facebook fundraisers for us!  We are so grateful for you to share your special day with us!  To read about our current fundraisers, click here.