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See below for a daily digest of the latest Sickle Cell Anemia news!

World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Jul 04, 2019 09:15 am | Hal Foster

 

stampIt wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his kidney, vision, and hearing problems as Alport syndrome. Although she had known for years that something was wrong, the news that David would battle a lifelong rare disease devastated the single mother of three, plunging […]

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Chronic Pain in Sickle Cell Disease Underpinned by Changes in Brain Networks, Study Suggests

Jul 02, 2019 07:00 am | Ana Pena

 

SCD, brain network, and chronic painChronic pain in adults with sickle cell disease (SCD), a frequent symptom of the disease, is associated with alterations in the connection of brain regions involved with pain perception, a study indicates. When SCD patients with chronic pain were compared to those without it, multiple differences were found in the connection of several brain regions implicated […]

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