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See below for a daily digest of the latest Sickle Cell Anemia news!

Early Treatment with Hydroxyurea Lessened SCD Severity Among Infants, Study Shows

Jun 27, 2019 07:00 am | Patricia Inacio, PhD

 

hydroxyureaTreatment with hydroxyurea since early infancy, starting at the age of one, is effective and safe at preventing sickle cell disease (SCD) complications, a follow-up study has found. The study “Prospective longitudinal follow-up of children with sickle cell disease treated with hydroxyurea since infancy” was published in journal Pediatric Blood and Cancer. Hydroxyurea is a […]

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NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

Jun 26, 2019 08:06 am | Larry Luxner

 

A violinist with vasculitis, two Texas politicians and a pharmaceutical company whose marijuana-derived therapy helps kids with Dravet syndrome were among winners of the 2019 Rare Impact Awards. Officials of the National Organization for Rare Disorders (NORD) presented the awards during a June 22 dinner attended by 550 guests at the NASA Space Center in […]

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Investigational Oral Inhibitor IMR-687 Shows Promising Results in Ongoing Phase 2 Clinical Trial

Jun 25, 2019 07:00 am | Patricia Inacio, PhD

 

Imara IMR-687Imara’s investigational oral inhibitor IMR-687 is well-tolerated, and shows signs of potential for lowering blood biomarkers of sickle cell anemia (SCA), early data from a Phase 2 trial show. The results were presented at the 24th Congress of the European Hematology Association (EHA), held recently in Amsterdam, the Netherlands. “We are encouraged by this interim […]

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