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News from The Arthrogryposis Group (TAG):
 

July News from TAG

Hi to you all,

We try and hold get-togethers around the country to allow members with Arthrogryposis Multiplex Congenita (AMC) and friends to meet up. These meetings are important as it enables children, and their parents and adults to get-together and swap ideas, stories, and hints! Just think about it, there are lots of children, their parents, and adults, who have already gone through much of which you may be going through. These get-togethers are a magnificent forum.

We have now had a couple of meetings at the Think Tank in Birmingham, and at the Barbican Conservatory in London. Both were well attended and lots of information exchanged and new friendships started.

As well as the get-togethers already arranged for quite a while - see below - here are some more recently arranged ones.

Sunday 4 August
Dartmoor Zoo, Sparkwell, Plymouth PL7 5DG

From 11am onwards. This is the zoo that the true story of the super film called ‘We Bought A Zoo’. The film itself was based in the USA for ‘sellability’ but is actually about the family who bought Dartmoor Zoo – AND STILL OWN IT. well worth watching if you haven’t seen it. The visit is free for TAG members and their immediate family – you can join on the day for free - if you are not already a member! The meeting point will be by the Jaguar Restaurant. Parking is free and the DISABLED PARKING area is near the entrance. 

Sunday 1 September in Scotland at the beautiful Zaha Hadid-designed Riverside Museum, Pointhouse Place, Glasgow G3 8RS
It is free and so is blue badge parking. We will meet at the café at 11.30 am. There are things to see there of interest to all ages. Museum website >>

Sunday 8 September at the Science and Industry Museum, Liverpool Road, Manchester, M3 4FP
We will meet from 11am at the Café.  Entry to the Museum is free. However, the Museum is holding a fabulous exhibition about the sun and this is an extra £8 for adults, £6 concessions and children go free with a paying adult.  More about the Museum and exhibitions >>


Just to remind you of the get-togethers previously announced:
 


Saturday 27 July
National Museum of Wales, Cathays Park, Cardiff, CF10 3NP

Meet at the coffee shop situated in the main hall from 11am. Information from Donna at donnadavis1985_tag@aol.com.
 

Creature Corner at Tropical World

We know children love animals – so do adults! – and we are meeting on Saturday 17 August at Tropical World, Princes Avenue, Roundhay, Leeds LS8 2ER at the entrance and a little later at the Tropical World Café.  Tropical world has the second largest tropical plants green houses after Kew, and it has animals too! This event is free to members and immediate families. Parking is free too. Contact Peter on 0798 9582249. or help@arthrogryposis.co.uk


More animal action ....

Sunday 15 September at the Exotic Zoo, Lakeside Plant Centre, Priorslee, Telford, TF2 9TT.

Meet 11.30am at the entrance. This is quite a ‘hands-on’ zoo. More info from deanbroome1968@icloud.com.

If you need more information about any of these events please email  help@arthrogryposis.co.uk or phone Peter on 07989582249.

AMC Clinics

We are still looking for volunteers to help at the clinics that we now attend. We have had some volunteers but we particularly need more for Birmingham, Glasgow and Liverpool. If you can help please call Peter on 0798 958 2249 or email help@arthrogryposis.co.uk

TAG Family Weekend 2019
Family Weekend 2019

Saturday 19th October and Sunday 20th October at the Jurys Inn Hotel at Hinckley, Leicestershire. 
We already have 15 families signed up for this, our premier and most important and entertaining event of the year. There couldn't be a more central hotel and a more accessible one - with several wetrooms (first come first served) and some very accessible shower rooms too!   
The family weekend has the speakers set up with the usual array of medical and non-medical ones. Remember too that children 12 and under can be looked after by registered nannies (included in the price!!).  There are lots of details elsewhere ( on the website, and on Facebook) but if you have any questions then contact Peter on 0798 9582249 or help@arthrogryposis.co.uk    

TO JOIN US JUST COMPLETE THE REGISTRATION FORM ON THE WEBSITE OR ON FACEBOOK.  More details and booking

I hope to see you at one of our events or get-togethers this year and of course, the Family Weekend in October.

Best Wishes

Peter Lacey

Chairman of The Arthrogryposis Group 

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For more about The Arthrogryposis Group go to  www.arthrogryposis.co.uk or contact help@arthrogryposis.co.uk

Our address is:
The Arthrogryposis Group
1 Magor Hill Cottages
Magor Hill, Magor Downs
Tehidy, Camborne, Cornwall TR14 0JF
United Kingdom

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