Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
Aug 01, 2019 10:02 am | Larry Luxner
Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage girls, and has the nation’s third-highest rate of uninsured residents — with 13.9% of all Oklahomans lacking health coverage. As if that’s not enough, the Sooner […]
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Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state today tests for all 35 disorders recommended under a federal screening panel, and even in those that come close, rare diseases can fall to competing priorities. […]
Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage girls, and has the nation’s third-highest rate of uninsured residents — with 13.9% of all Oklahomans lacking health coverage. As if that’s not enough, the Sooner […]
Wide interest in a CBS 60 Minutes story about a Florida woman with sickle cell disease (SCD) whose symptoms were eased through gene therapy has prompted the National Heart, Lung, and Blood Institute (NHLBI) to raise awareness of other work the National Institutes of Health (NIH) is doing in this disease. In the March TV […]
Emmaus Life Sciences, accompanied by the Emmy Award-winning National Football League (NFL) broadcaster Solomon Wilcots, took its Sideline Sickle Cell campaign to the recent 6th Annual Sickle Cell Disease Patient & Family Educational Symposium that took place in Plano, Texas. Hosted the Sickle Cell Association of Texas Mark Thomas Foundation, the As One Foundation and the Carol’s […]