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See below for a daily digest of the latest Bronchiectasis news!

Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

Aug 02, 2019 07:30 am | Larry Luxner

 

Jade Day, OklahomaOklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage girls, and has the nation’s third-highest rate of uninsured residents — with 13.9% of all Oklahomans lacking health coverage. As if that’s not enough, the Sooner […]

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Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

Aug 01, 2019 05:41 pm | Grace Frank

 

Newborn screening actScreening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state today tests for all 35 disorders recommended under a federal screening panel, and even in those that come close, rare diseases can fall to competing priorities. […]

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Bronchiectasis Patients Have Worse Quality of Life if Disease is COPD-related and More Severe, Study Says

Aug 01, 2019 07:00 am | Joana Carvalho

 

quality of life, bronchiectasisThe quality of life of patients with bronchiectasis is heavily affected by the root cause and severity of their disease, with worse quality of life if the cause is related to chronic obstructive pulmonary disease, a study has found. The findings of the study, “Aetiology and disease severity are among the determinants of quality of […]

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