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CHS-MC Chapter Update April 26, 2022
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In this Issue: 


CHS-MC Board, Thank You Milena, All Product Review Webinar, Virtual Camp, Buzzy: Needle Pain Relief, 
 

CHS-MC 2022/2023 Board of Directors




To learn more about the Chapter Board members, please visit Board Profiles.

Thank You Milena! 


 

Milena Pirnat has completed three years of service to the bleeding disorders community as the President of CHS-MC. Milena guided us through strategic planning, advocacy for Hemlibra, a second Twinning project, COVID-19, and a new era of advocacy for women and girls with inherited bleeding disorders.

Milena continues to serve the community in Manitoba as the Chair of the Education Committee, Twinning Committee, and the Women & Girls Advocacy Committee. She is also volunteering as the Chair of the CHS Care & Treatment Committee. Her dedication to the global community continues with her participation with CHS Twinning and sitting on the WFH Hemophilia Organizational Twinning Committee.

Milena is the administrator for the international Facebook group called Hemophilia Mother. Hemophilia Mother is an OPEN group for women with bleeding disorders and mothers (all women that are related to children, brothers, and fathers) who have hemophilia and other rarer bleeding disorders.

Invitation to Hemophilia Ontario Webinar

Hemophilia Ontario All Product Review & Physician Panel
Wednesday April 27, 6:30-8:00pm EST

Please join us for Hemophilia Ontario's product comparison and physician panel session. The webinar will feature a presentation and review of current and future therapies for people with bleeding disorders, followed by a discussion panel with clinic hematologists from Ontario. David Page, National Director of Health Policy at the Canadian Hemophilia Society, will be presenting the product comparison and will be joined by our expert panel of eminent hematologists in the bleeding disorders community.

Dr. Jerry Teitel, St. Michael’s Hospital, Toronto
Dr. Robert Klaassen, Children's Hospital of Eastern Ontario, Ottawa
Dr. Manuel Carcao, Sick Kids Hospital, Toronto

Don't miss your chance to take part in this interactive session where you will have the opportunity to have your product questions answered. This session is exclusive to people with bleeding disorders and their families and will NOT include any industry representatives and will NOT be recorded. If you have product questions you would like to see answered during the webinar in advance, please send them to bpirnat@hemophilia.on.ca.

  • Review and comparison of current and future therapies for people with bleeding disorders including:
  • Standard and extended half-life products (recombinant and plasma), subcutaneous treatments, gene therapy, and more!

Register Now! 

Virtual Camp Opportunity



 

Buzzy: Needle Pain Relief




Thanks to a very generous donation by a Chapter member, we are offering “Buzzy” to members who are having trouble with pain associated with venipuncture or subcutaneous medication delivery. The Manitoba Bleeding Disorders nurses are familiar with Buzzy and we have one pediatric member who has found Buzzy to be extremely helpful with their treatments.

Buzzy uses natural “gate control” pain relief by confusing the body’s own nerves, thereby dulling, or eliminating sharp pain. In the same way that rubbing a bumped elbow helps stop the hurt, Buzzy controls sharp pain. The premise is that when nerves receive non-painful signals such as vibration or cold, the brain closes the gate on pain signals.

The second part of Buzzy’s efficacy, and the reason it can help even when distant from the site of procedural pain, is called Descending Noxious Inhibitory Control, or DNIC. DNIC is another effective mechanism of pain control that uses the brain’s ability to dampen out unwanted signals. Instead of happening right where the nerves are, though, an intense degree of cold can work anywhere on the body. In scientific terms, intense cold activates a supraspinal modulation raising the body’s overall pain threshold.

If you would like a Buzzy, please contact the office at info@hemophiliamb.ca or call 204.775.8625 and we will send a Buzzy to you!
 
Click on the image to see how Buzzy works! 

There are more videos on YouTube showing where to position
Buzzy for a variety of injections sites.

Thank you Chapter Update Sponsors! 

 
Copyright © 2022 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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